Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
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@Fearless - Vol Mod With so many rounds of chemo you have coped amazingly well but now you need to rest up and look after yourself. I'm sure you'll be back in the saddle next week:)0
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Hello all… @Fearless - Vol Mod southern Ontario is overcast with plenty of rain today so hoping you can have the rainfall be your background rep music for continued rest.
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I am wondering if anyone is recurrent, is that correct word? As it appears I might be headed that direction and it’s hitting me harder than first told last year. I have ordered “Still there..” copy and started to read e-version last night, but I was overtired, it was well past 2am, emotional.0
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@ToughAsTeal Thankfully I'm not recurrent but I'm sure it's horrible both mentally and physically. I hope you can sleep tonight and maybe a nap this afternoon...0
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@ToughAsTeal It looks like it's just you and me today and I have to go for a nap soon. I'm pooped. I was hospitalized again for a few days without food or water with a bowel blockage courtesy of residual scar tissue from last year's surgery. I'm now on a very strict diet that excludes pretty well everything that's deemed healthy:(0
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My brain has never been easy to shut off. Not even if on vacation. Keeping thinking about learning mindfulness, but then I remember I have a to-do list somewhere. This is a “comical” thing about me that family and friends etc know about me. Now I am just feeling scared.0
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And sad. A dear friend is not doing well with her cancer (breast). Has now been in hosp for close to 2 weeks. We were diagnosed around same time, and my heart is so sad. She has been an understanding support to me.0
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Awww...it's a horrible beast!! Without a support group like our families, friends and this site it would be so much harder. Good luck to both you and your friend and I'm so sorry you're going through this emotional pain. It's usually worse than the disease.0
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@Annie1950. Rest too…listen to rain. Yes, no poop can make one pooped. Everyone, keep moving forward. Check in next week.🌻🦸♀️0
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@ToughAsTeal Have a good week and big hugs from southern Ontario.0
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Hello Ladies, yes it is another rainy day west of Toronto. I think my plants have had too much water!
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@Fearless - Vol Mod rest up and we will look forward to hearing from you next week. Curl up with a warm blanket on a comfy chair and rest. Rainy days are good for that..0
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@Annie1950 sorry to hear you were hospitalized. Glad to hear you are back home and hopefully your bowel problems will settle in time.
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@ToughAsTeal it is very hard when friends are not doing well. I am sorry for you and your friend. I too have a friend that I met in a womans cancer support group 1.5 years ago. She was the first woman I met, and sat beside. She has the same cancer and was a great support to me when going through treatment. She recently had a recurrence and it spread rapidly through her kidneys and bladder. She has decided not to do any treaments. Very hard to deal with. My heart goes out to her and her family.0
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I think the rain today is reflecting my mood. Pathetic fallacy.0
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Yes the rain does pull us down a bit. I am trying to use this day to get things done inside the house. However I am sitting here instead.. lol0
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@ToughAsTeal how is your physio going? Are you still able to do it?0
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I stopped. It gave me good start and I can continue at home. I don’t think the therapist took seriously(?) what I needed. Every visit he would comment that other folks were there with “real” injuries etc. I think as well that maybe he would double book me. Would work with another. At same time tell me to do a different exercise…when done that, you are done for today…. Oh. Ok! Just wasn’t the fit I needed.0
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I am in Guelph, Ont. I go to Juravinski.0
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@ToughAsTeal oh my we are neighbours. I live just south of you near the Casino! I have just completed a 12 week exercise program online only for cancer patients. You have to qualify however and I heard about it from another lady in this group.
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Well helllloooo neighbour! Can you send me whatever program it was and maybe I can watch fifty they run another session?0
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@ToughAsTeal remind me next week and I will get it for you then. The next session starts in September. It is after 2 and I must go. See you next week.0
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Thankyou! Signing off too. Everyone have a good week😀0
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Have a good week ladies and see you next week!0
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THURSDAY JULY 15....AND I'M BACK.....WELCOME TO TODAYS LIVE CHAT.
For any new members, be sure to sign in to OVdialogue if you want to participate. Otherwise feel free to just follow the discussion.
Missed all of you last week but I did need to think about me. It's been a harrowing couple of months since the switch from Carboplatin to Cisplatin; the side effects being far more brutal than I had expected. Then add a slow and tiny uptick in my CA125 left me wondering if all of this was for naught, a huge hassle getting my CT booked so we could see what was going on, and despite all efforts to stay positive a bit of challenge keeping myself out of that dark place we all go to sometimes. So last week I just needed to walk away from everything related to the Big C. And I know you all understand.
But good news to report...one more example of why we need not think too far ahead and try to fill the gaps in information with negative thoughts. My CT shows that the cancer that reduced by 50% in the first cycles, has stabilized No significant growth, nothing new. And so my oncologist is giving me a holiday from chemo for at least 3 months...and maybe longer. Woo hoo. And so today the healing begins. I really feel rather beat up so now need to attend to me...lots of rest, get back to walking and some exercise...and get myself feeling healthy again.
A good question for all of you today....what do you do to keep yourself feeling positive or at least staving those negative feelings that we all succumb to at times?
An added bonus to the CT last week...they found a blood clot on my right lung that might have gone undetected. So I'm on a series of shots to thin out my blood and break up the clot. Never thought I'd have the guts to inject myself but the alternative was to have every day for the next few months interrupted with having to go to our local Paramed office to have the injection done. And being the control freak I am , learning to inject myself and having control over my daily schedule, was a small price to pay. And guess what...it's easy as heck to do.
So that's me today gals. A few reminders:
The FOR HER auction ends tomorrow at 6pm. Still time to bid or share with your friends who may see something to bid on.
The July schedule for the Teal Teas is up, the Wednesday being dedicated to Young Survivors.
And, of course, the annual Walk of Hope is gearing up for September. Think about participating.
That's it for me for today. It's now 1pm and time to say hello......so who's there, who'll start us off today?
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Hellloooo! Self needles blood clot I think I had to do same…stab in the upper leg. But I was self injecting 20+ year ago for fertility. The gold swing came back quickly.
what helped me this morning get into a light mindset was catching up with a friend by phone. It’s been 15 years?! And being proactive with better choices to help with the digestive issues. Made me feel a bit more in control. And a short, fast walk around the block. Because Lord knows it isnt hot enough that I need to go walk up a sweat! And I did work up a sweat!0 -
Ugh. I type too fast. I did fragmin for clot prevention last sept for 28 days.0 -
Golf swing!0
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@Fearless - Vol Mod You have been through a lot. Emotionally exhausting. I have those shots too. Even though I give myself b12 shots those blood thinner are not nice. harder to give.. How are you feeling now?
I have been given a new oncologist, which I'm thrilled with. she really knows her stuff. While the tumour has returned and i'm a difficult patient, there are a couple of things she will try. Gives me some hope. a estrogen reducing drug that has a small changes of helping with no big side effects0
