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@HorseGirl I have also been wondering about @Strongwoman . I hope she is just busy, enjoying the holidays with her family.
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Hi @JoanEG I'm sending positive vibes your way for nothing but good news. I understand the anxiety completely. Even 4 months into my Lynparza (Olaparib) I have terrible abdominal cramps. I saw my oncologist in late December and she did an internal exam. She said she wasn't worried at all (my CA-125 was 21 which is pretty much in my average zone). I hadn't had a CT scan since July so she put a req in for one. Sadly that isn't scheduled until late March (they are trying to get it moved up but PMH is down one scanner). I try to stay calm based on her assessment however it's unnerving.
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@Alwayslearning thanks for the well wishes. I’m sorry to hear you still have abdominal pain. I also take Lynparza but fortunately have had no adverse effects. I think we are all in agreement that every ache or pain brings a sense of worry! I hope your scan gets moved up so your mind will be put at ease sooner rather than later!
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@JoanEG I’m glad you are trouble free on Lynparza!! That gives me hope. Other than the abdominal pain (which approximately 40% experience- lucky me), I’ve also been good on it. 🤞
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@JoanEG fingers crossed for good scan results. Like many of us have mentioned I think the fear of the floor falling out from under us is strong. I can 100% relate to what you said, the stronger you feel the more nerve-wracking it can be. Especially the further we get from front line treatment.
@HorseGirl I've been feeling very well for a long time. I do have what seems like chemo induced arthritic pain and hot flashes from induced menopause, might finally ask me MD to give me some hormones. I've been working 3 days a week since July and started lifting weights a while back. I'm learning to live with all the little mild discomforts. And everytime I have a scan and nothing is seen I put that worry to the back of my mind.
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@melissa lifting weights sounds like a great idea. How does that make you feel overall? I had early onset menopause in my early 40s, so I’ve been living with menopause effects for years. I’ll be 60 this month! The arthritis is likely age-related on this end, but I definitely experienced more joint pain overall when I was in front-line chemo (Sept-Dec 2023), and Bevacizumab (Sept 2023-July 2024). Putting worry to the back of one’s mind is the best thing one can do to be in the moment, right here, right now. Easier said than done some days. This time last year, I felt like I’d been dragged over 10 miles of bad road, but now I’m doing okay. Have to be careful not to lift too much in the barn due to several small hernias left along my incision line from the debulking surgery. The occasional cramps spook me at times, but that’s not something I can control, so I try to just keep doing what I can.
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