Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
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@salare I'm in Ontario and we have some excellent resources here. But some of what I hear about BC just blows me away with the support and some very progressive ideas. Tracy Kolwich @TracyOCC who oversees our site for OCC is also the Regional Director out that way. I think she runs a regional zoom group you might be interested in. I've tagged her in hopes she sees this and lets you know but you can also reach out to her directly at tkolwich@ovariancanada.org and she let you know what else might be there and helpful to you. It's always valuable getting to know the OCC folks directly.0
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What ever works for you @Tinazzie
My friends uses an Osteopath for many of her ailments. She swears by the results so hopefully it will help.
Good luck with the bone scan.
@Fearless - Vol Mod, i would love to just sit and listen to the ice...that would be heaven for me. You definitely should get out. It is beautiful today. It may be windier by the lake but... it is still beautiful
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@Tinazzie
I agree it's hard not to compare. But remember that so many things factor into recovery....your age, your physical state before you got the disease, your environment, meds you received...the list goes on. So it's impossible to compare apples to apples. Just focus on competing with yourself and celebrate the wee improvements as much as you'd celebrate something huge. Before you know it you'll see how big the steps are you're really taking without even realizing it. The fatigue is the worst for just about everyone. Try as much as I did it was almost a full year where I needed nothing more than a fifteen minute cat nap in the afternoon...and when I look back I think that was a factor more of my age than the residual effects of treatment.1 -
Thanks @KarenBemi. Glad you were out as well - the sounds of nature do work wonders for the soul!
Have a good week all
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@laurabadaura I see you just signed in and we haven't met you before...welcome. We love to have new members join in. Feel free to just follow the chat or join in at will. No pressure to participate but always love new perspectives and stories. And feel free to reach out if there is anything we can do for you today...0
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I love nature. I am trying to get out as much as possible. It sounds bad but I miss my days during my treatment. I made a point to go for a walk every day no matter what I felt like. Now that I am back at work... i want to be able to go for my walk everyday... but sometimes, my schedule just doesn't allow for it
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@KarenBemi make that time in your schedule. I spent 40 years in the corporate world always putting off ME time for the sake of business. And here I was teaching others to set boundaries and value balance in their lives but couldn't practice what i taught. Not much I regret these days but that is one thing I do. Try your best to actually plan that time into your work schedule and make it sacrosanct. You'll never regret it.1
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Hi! I'm actually not sure if this chat is for me.. I'm @salare's daughter - I don't have cancer but have been along for mom's ride. It's really neat that this chat exists - if not for me, then for my mom and for all of you with OC
I'm sending all my positive and healing thoughts to you all.2 -
@laurabadaura - Good on you for supporting her like this. I think it is actually good that you are here joining to support you mom. Even if you just listen to the stories. Something said here...may be something you can use to support your Mom.3
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@laurabadaura @salare is lucky to have you by her side. Often those who support us so ably are the forgotten in the process. Feel free to use the OCC resources to educate yourself. The more you know, the better you can help your mom. If either of you haven't already, there is a booklet on the OCC website you can download...By Your Side. It's a wonderful resource and guide from diagnosis through the first line treatment cycle.1
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Nice chatting today ladies. Good luck with your week ahead. Must go back to work now.1
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I'm really glad i joined this chat today and met all you supportive folks. I'm an introvert and this is stepping out of my comfort zone big time. I can see the benefit to speaking to other women who are going through this and getting first hand experience. So valuable!!! Thanks all for showing up with your wisdom and encouragement2
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Glad you could make it @KarenBemi
Welcome again @salare and @laurabadaura Come back, both of you , anytime. Hope you found your first visit productive.
@Tinazzie good luck with that back of yours. Hope the bone scan results are good ones and lead to some relief.
Have a wonderful week everyone....."see" you again next Thursday hopefully!1 -
THURSDAY, FEBRUARY 11..........
and for once I'm almost speechless. Maybe I've been spending too much time absorbed in the impeachment trial in the US....maybe it's just the joy of seeing my region go back to green yesterday and knowing all those businesses have a new lease on life Can't believe how fast the Buy Local, Shop Local signs went up
Good news to share though. I like to think of it as "your voice in action". Based on some of your feedback OCC will be starting an education series on topics you've asked them to address. On Tuesday upcoming there will be an announcement about the first in the series, Clinical Trials; something i know many of you will have an interest in. So save the date of February 24.....7:00pm EST. If you don't regularly receive communications from OCC, you can check its Facebook site or website on Tuesday and I will copy their post into an announcement here for convenience of our community.
So, welcome today everyone. It's 1pm EST so let's get going....who'd like to kick off today?0 -
Hello All, I'm looking forward to next week when, fingers crossed, our area of Southern Ontario opens up again.
Other than that, just grateful for recent run of beautiful days!
Nothing new on my end, how's everyone else?0 -
Just you and me right now @Readersmaven
I'm surprised no one has engaged yet in your discussion topic Radiation. I'll reach out to a couple of gals I know were struggling with lymph node issues like you and see if they have any experience to share that might be helpful to you. In the meantime was that you on Cancerconnection and I was the ditz who steered you to OVdialogue without realizing it was you?0 -
@Fearless - Vol Mod, yes it was me. No worries about reply, it may help someone else and point them towards us.
Not surprised no one else is on... it's a beautiful day, we should be outside! I just came back. Had to get out, had my phone consult scheduled for this AM, dr called 45 minutes late asking to reschedule. Not a problem, apparently she had emergency, but you know how you get set for these things and then they don't go according to plan. Time out helped reset my mind. She'll call end of day.
How are you? Feeling OK this week?0 -
Hi @Fearless - Vol Mod and @Readersmaven,good to be here today.Enjoying some cold and sunny weather in south eastern Ontario .Nothing new for me,just trying to keep busy during this lock down,walk for an hour daily, helps me mentally and physically.
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Hello ladies
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@Readersmaven
Thanks. The entire time I was typing that reply suggesting you reach out on OVd I kept thinking I knew someone with a similar problem....boy that brain fog is really getting to me I guess.
Yes, it is a beautiful day out here for me too....nice to see our lockdown over (for now) and am sure you're anxious for the same. Not that I expect to being going out much. I try to stay isolated as much as possible while I'm back in chemo. And thanks for asking....I'm on my two week hiatus from treatment so feeling not too bad and getting better each day. Surprised though how long after each treatment I stay feeling pretty awful. Much longer than when I was in my original treatment. The fatigue alone is a killer. But it's working and heading into cycle 4 on the 24th so half through now. Light at the end of the tunnel!
Sorry about your doctor delaying the meeting. At least she called and you weren't left hanging all day. But yes, I get so readied for my consultations that any delay can be a big let down. Is this the radiologist or just your regular gyne/onc?0 -
@Fearless - Vol Mod I'd be grateful if you could reach out to others for me. It would be great to hear from others. I had a phone interview with nurse on Tuesday to update my info and at end she asked if I had questions, my reply was at this point I don't know what I don't know... so insights would be helpful.0
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@CountryLiving
good to have you with us today. How are things with you?
@Rad
where in SE Ontario are you? I didn't realize you're in my neck of the woods...LOL, or maybe I did know but "brain fog"...it's my excuse for everything these days.0 -
Beautiful sunny day here..all is good.0
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@Fearless - Vol Mod call is with radiation oncologist. I'm sure I'll decide to go with radiation, but I'd like to hear from her on why this is being suggested rather than chemo. My oncologist just said, well because the scan doesn't show anything to treat with chemo. RO may say same but I'll ask.0
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@Readersmaven
are you ok if I edit your post title to Radiation / or Lymph Node experience. It might draw out some members to comment ? I have edit control so can do that. And yes, I'm thinking of one gal in particular who I know mentioned some surprising news about one of lymph nodes but hasn't been with us for a few weeks. I owe her a check in anyway so may ask her to reach out directly to you if she has anything she can share.1 -
@Fearless - Vol ModI am in Brampton Ontario and I totally empathize with how you are feeling because my last 2 chemo was tough, took me to dark places and I only started to feel better after 2 weeks past each treatment.0
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@Fearless - Vol Mod so glad you've reached halfway point, I'm not surprised that you are more fatigued and not bouncing back as quickly but I'm sure once you're on the other side, you'll be feeling much better.
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@Rad
ah....in the "red zone". Many of my friends are in the GTA and surrounding areas and very tired of the lockdown. But I guess no choice. Hopefully the numbers will continue to decline and things will start to open up soon. Beyond the impact that has on our day to day lives I can't imagine how some businesses can survive much longer without revenue streams open to them again. Very sad.0
