Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
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Fortunately I've had a great week following my three month check up last week. I found it to be so stressful and depressing prior to. They say it gets easier and I hope it does.1
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Hi ladies,sorry you guys are having technical issues. Good to be on this chat today.0
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Hi everyone, glad to be here with you all. Missed a couple of the Thursday chats, but have been catching up later. Welcome to the group @Annie1950 - I hope you find it helpful and supportive - and also get a few laughs in the process. I know I did!
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@KarenBemi in answer to your question, we’re in an old historic granite stone cottage on Lake Ontario. We do have forced air propane but find our wood stove heats the entire place and is so nice and cosy. So we rely on it more for heat.As for my health. Now half way thru chemo. CA dropped from 3000 to 111 after first 2 rounds and cancer down 25% so happy with that despite side effects being a bit more and lasting longer than I remember from 4 years ago. Day 1 cycle 4 on Wednesday so will have new blood work and hopefully even better results.2
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@Annie1950 great news... congrats! We love hearing positive reports!0
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@Fearless - Vol Mod so glad you are responding to treatment, I'm sure that's always a concern when dealing with a recurrence.
I've heard chemo can be harder during treatments for a recurrence. Think that's another reason for my oncologist suggesting radiation when no visible areas on scan other than single lymph node.0 -
@Readersmaven, good to hear that a treatment plan is coming together. I know waiting is the tricky part, so, hope it's not too long.
How are you doing @Fearless - Vol Mod? You must be at end half of your treatment...isn't that great?!!0 -
@Readersmaven, I hope your radiation goes well and sorry that you have to go through this.0
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@Annie1950 that is amazing. very happy for you. I do hope that the anxiety prior to appointments does go away. It hasn't eased up for me yet when an appointment is coming up. Next one will be my 1 year.
@Fearless - Vol Mod - So happy to hear that you are having positive results this time. Certainly makes the side effects worth it
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@Annie1950 that is great news and yes, the anxiety does get better over time. But I think everyone will admit it never totally leaves. This group can be enormously helpful with perspective if anxiety starts to overwhelm. And I often recommend accessing the services of your cancer centre social work department as a resource to lean on.@Readersmaven yes, the old ‘patience’ issue. Waiting never gets better does it? Glad you’ve got the treatment plan now though. That’s some good progress.0
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I'm in Real Estate and nowadays every home has multiple offers on it. Prior to the deadline for offers we're required to scan and send multiple pieces of paper. It's always at this time that my computer gets a glitch, my scanner decides to eat paper, I run out of paper/ink...it's part of our world.2
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@Tinazzie and @Annie1950 thx for support, as with initial chemo treatments, I just want to get to it. Otherwise I'm good about it. Seems like 5 treatments are completely doable and will be over and done with quickly.
I'm anticipating that it will be early March.1 -
@Annie1950 Welcome.@readersmaven hope you get that radiologist appointment soon I know waiting can be tough.@Fearless, happy to hear your treatment is working.0
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@Readersmaven What a great attitude you have. It'll help see you through it.1
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LOL I have myself convinced the worse the side effects the more effective the chemo. Seriously though the side effects are tolerable. Fatigue is, as usual, the worst. Thankfully I get a 2 week rest between cycles so a chance to do some normal stuff without interference.1
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A friend of ours, now in her late seventies, has been without disease progression for nine years. I'm hoping that this is going to be our fate as well. Has anybody else encountered similar stories?1
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@Annie1950 Wow, that's inspiring love to hear these stories.0
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@Annie1950 my friends mom is 10 years, a few ladies in my Gyne Cancer Group through my cancer support centre are over 5 years. But that is it for my OVC experiences. I know my Dr said she is hopeful that I will get 3 years. That was as far as she would say.
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@Annie1950 many. And belong to a local support group of about 15 survivors. In that group we have 3 who’ve been clear over 20 years and a couple more over 10. Lots more f members on this site are long term survivors. Some never having recurred. Others living great lives but with the disease there but stable long term.2
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@Fearless - Vol Mod - thanks for the heads-up about the Speaker Series sessions starting next week. I have signed up for the Clinical Trials session. Hoping there might finally be some news on trials for clear cell OC....0
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@Fearless - Vol Mod @KarenBemi
Oh, that's so wonderful to hear. Were any of them diagnosed in stage 3 originally?0 -
@Annie1950. 2 of the very long term survivors were stage 2. But the 2 over 5 years were both stage 3. When I joined there were two others who joined same time as me and all 3 of us were stage 3c high grade serous. I’m the only one who recurred so far but now in the 5th year of survival.0
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I had hipec chemo pumped into my abdomen after surgery on a clinical trial. Hope it helps!0
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@Annie1950 I’ve heard very positive outcomes from that treatment process. You were lucky to have been able to try it.0
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@Annie1950 ....What the heck is hipec? I would love more information on that if you don't mind sharing
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@Fearless - Vol Mod Good to hear, now I don't feel I have to spend all my money in a short period of time .3
