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Is there a deadline for completion? I always have good intentions but sometimes things go missing from my brain 😁. Thanks ...

Hi all. Late to the party again. This is my travel home day from Toronto after treatment…so just got home. ...

@Alwayslearning I can't ant figure out why I can get my CA125 same day before I leave my Drs appointment in London but it ...

@Alwayslearning Sounds like a great time. Love your golf "ball" and "club." Well…did you win a prize…if not for your play ...

Hello all from Ontario North country. We've been visiting friends at their cottage on the French River (about 6 hours north of ...

Thanks for catching that! I have added the survey link to the top of the post. Please let me know if you have any other ...

Nope, link doesn't work.

@Jessica@OCC . I don't think the link works

Survey Link

Hi, I was diagnosed in October 2022 with HGS Stage 3, I receive treatment in Abbotsford. I was offered hereditary testing which ...

@ellie thats kind of how I feel I want to be Ned for as long as I can. I'm scared of not taking the drug and having a recurrence ...

@pepperbee from the notes I've seen my doctor was looking at niraparib too. Her notes mentioned there was no nurse doing hrd ...

Thank you @meinvan and @ellie for your replies I will be looking up niraparib and making notes. I appreciate the drug name. ...

Hi, HRD testing was arranged by Princess Margaret. I believe it was related to the niraparib prescription. Your oncologist ...

I believe that I don't have access to hrd testing currently, is there somewhere private to get this done?

Hi, I am HGSOC Stage 3b at diagnosis in May 2022. Went thru optimal debulking and 6 rounds of chemo ending November 2022. ...

@Tanja Hi. Thanks for the link! Unfortunately, I am now only eligible for Phase 1 trials. I have had so many treatments ...

@melissa good to know the bullet holes are gone! 😁 ...

@pepperbee hi and welcome. I just posted this evening about needing to start talking about the post chemo meds PARP inhibitors. ...

@GloHo I try again. Apparently, this post went wrong. You may want to check these out. They may not be for you, but all in Toronto ...

Hello I am new here - I've been reading people's post and gaining a lot of information. I feel familiar with some of you now ...

Hi @ Alwayslearning - no, at the time, I was not eligible for any maintenance drugs. Now as to what's happened since, if I had ...

My labs are good, hgb came up to 112 post op and the 1 unit of blood I got…. Yeah. Meet with my oncologist today and she said ...

@mfallis_OCC thank you for this info. I was thinking it was purely the zoom chat, I didn't realize it's also weekly online here. ...

@mfallis_OCC thank you very much - got it 👍 ...

Hi @pepperbee , Teal Thursdays are a special time each week when our community comes together right here in this thread to ...

@mfallis_OCC hello - I am interested in attending the Thursday (14th) Teal Tea. I am still trying to maneuver my way around ...

Thank you ladies for your kind and wise words. @alwayslearning you couldn't be more right. Nobody on this earth knows when there ...

Hi Ladies, My name is Katie Lark I am an Ovarian Cancer Previvor and the Chair of the Walk of Hope here in Ottawa. I was ...

@GloHo I figure the more people know, right?! I was so thankful for the tips & tricks info at PMH. I never thought about getting ...

@GloHo I love the GO train. Agreed it doesn't necessarily save time but it saves grey hairs 😂 Thank you for the ...

@Alwayslearning Good question and something I've never written about. The first trial I participated in, in 2024, just ...

@Alwayslearning Thanks for the add ons! I forgot to mention about arriving early because that is my constant modus ...

@Alwayslearning I will have to go to Toronto on Days 8 & 15 because the blood collection is for the trial…they provide ...

@hgtv Thank you so much for sharing your journey. I have heard about HIPEC and I find it curious that the treatment isn't ...

@hgtv you just made me LOL. You don't sound like an ass at all. You were sharing your story. In the definition of miracle, these ...

@melissa I get it. I feel like my husband just thinks get thru chemo, surgery removed everything, you'll be fine. Where I think ...

Sorry I just reread my post and I sound like an ass. To be clear I’m not a miracle - if I was a miracle I wouldn’t have gotten ...

@GloHo totally agree,wouldn't it be great to have a full service team that treats medically and holistically. The last few years ...

Melissa, Alwayslearning beautifully articulated supportive words as well as a truth that pertains to all of us human beings. ...

Hi @melissa First thank you for feeling safe enough in this space to share your feelings. It's interesting as we all ...

@hgtv thanks for the clarity. That is interesting that your procedure was at Mt Sinai.

Your story is compelling hgtv, and I really appreciated learning about your cancer experience and healing perspective. It has ...

Yup they did Hipec at mount Sinai because they don’t do it at PMH. Not sure why and was my oncologist just different hospital! ...

Thank you @sheryl 😊 ...

Although, I do not post much, I would like to add my thanks to Strong Woman and Always Learning. I appreciate that Strong Woman ...

@hgtv thank you so much for your story. I know sometimes it can be very hard to relive pieces of it and it sounds like you've ...

Happy to share more on my story! And the reason oncologists don’t already recommend these additional modalities is complicated ...

@GloHo I'm guessing once the 'drug' part of the trial is no longer being administered it ends however it's certainly a curiosity ...

@GloHo we did indeed!!! #Anythingbutcancer