English community

So sorry to hear your fur baby is gone. We love them so much. Big hugs 😔 ...

Hi Golden Daisy, let me know when you register, I would like to go with your team if that's ok? I'm in Montreal region as well ...

Congratulations Leslie! 🥳😊 ...

Hi I was diagnosed end of January 2025 with high grade serous 3A, had chemo from March to July which went well except for treatment ...

For those of you on Lynparza and following Facebook, do you happen to know the statistics of those who stop Lynparza after 2 years ...

@LeslieA how true. We are first and foremost individuals. There is no 'one' plan or path. While I appreciate there are 'standard' ...

@Courtenay I have seen a number of posts on a Lynparza Facebook (FB) page I belong to that speak to this. From what I can surmise, ...

Hi Mom2boys Thankyou for responding and telling me about your experience with Zejula - sounds like it made your life miserable, ...

Hi Wendy Thankyou for responding so quickly and for sharing your experience on Zejula. I'm not sure how common this is, but ...

Hi , when I was first put on zejula, and as someone who suffers from aixenty and depression already these made me feel like ...

Hello PaddyK, I was on Zejula after my first round of chemo, starting late 2021. Experienced severe sleep deprivation & developed ...

Alwayslearning, In reading your response about scans along with other Teal Sisters' experiences, it helps me realize all the ...

Hi friends - I'm new to the community as a 74 year old - first diagnosed in 2017 with 2b serous & recurrence in Sept 2024 in bowel ...

I think if you recur after going off the med, lynparza, you should be allowed to go back on the medication. Courtenay On Sun, ...

Thank you @Alwayslearning — your reminder not to place too much weight on CA125 is a good one. It also brought to mind ...

@danidelbiondo this is exactly my point with the CA 125. Thank you for sharing. It's definitely a piece of information ...

@lbarr72 I think I've said this before but regardless it needs to be said again....CONGRATULATIONS on completing the two ...

My CA125 always posts around 3am. I check myuhn at 3am just to see the number. It is an addiction for me. My CA125 was never ...

@LeslieA my oncologist does not do "regular" scans. In fact, after my start of Lynparza in August 2024, my first scan was 6 months ...

@Call_me_4828 these are the times when I truly despise the CA-125. It can very much mess with our heads. I agree with ...

@Meinvan the beams of light shining down on you can only be a sign of renewal and hope. What an amazing photo! Well done ...

@Meinvan thank you. I am aligned with you and believe they will be waiting for our arrival, with lots of licks ❤️ ...

lbarr72, I can definitely understand your apprehension about coming off Olaparib and feeling like the safety net has been taken ...

Thank you so much Dani. Your kind words and information have given me hope and something to look into. I appreciate you. ...

Meinvan, I am trying to focus on the benefit of more energy, because leaving behind the maintenance effect of olaparib, is scaring ...

All oncologists are different. I don't have the BRCA1 or BRCA2 gene, and I'm not on PARP inhibitors and never have been. My oncologist ...

@lbarr72 thank you. Yes you all need to be proud of ourselves. I hope your CT scans are clear.🙏🏻. How are you feeling ...

@LeslieA thank you for the kind words. Yes, I truly believe we have all accomplished so much on this journey and we should all ...

Bravo Meinvan !! Like Leslie said, we must celebrate how far we have come !! And also what you have been able to do !! I am awaiting ...

Meinvan, I can relate! It was a year ago that I had debulking/full hysterectomy surgery (April 7, 2025) and on that day, ...

Hi Call me, I'm sorry to read your CA125 went up. Always disconcerting no matter how much, or how little, it goes up. Your CT ...

Hi All, As predicted, my third Elahere treatment was postponed due to my eye issues and the neuropathy I’m experiencing in my ...

I took a walk this week around Sasamat Lake, a bit of a hike but I did it. My friend took a picture and she captured ...

@Alwayslearning so sorry to hear about the loss of Bailey. As a dog mama my entire life I know how hard that time is when ...

@Cole thank you so much. It was tough when I got up this morning and she was not there to greet me. I know each day will ...

I'm so sorry for your loss. Bailey sounds like such a beautiful, gentle soul, and it's clear how deeply she was loved. ...

Thanks @LeslieA I appreciate it. I think what's weighing on me is that it all happened so quickly. We knew that could be ...

Alwayslearning, As someone who is very attached to my Golden Retriever, I am so sorry for the loss of your dearly loved ...

Thank you @JoanEG … she was a very good girl and our hearts are heavy 💔 ...

I'm so sorry for your loss @Alwayslearning . Sending you a warm hug 🫂 ...

It is my hope we can all continue with our treatment with minimal or manageable side effects. We have no option but to trust in ...

Thank you @brendalee ... it is so heartbreaking. I always say that death is inevitable, it's just never actually expected. ...

soooo sorry to hear it. Geez Louise. Big hugs to you across the country.

Thanks @wisdomseeker . Hopefully it will make it's way to Canada from the UK in the near term. Appreciate you sharing. #C ...

@danidelbiondo thank you for sharing. I'm glad they've been able to continue with your treatments while managing the eye side ...

Thank you @lbarr72 . I feel I may be crying for a few days to come however we know she is at rest now. She had been ...

Hi @Call_me_4828 and thank you for the update. I'm so sorry to hear about your eyes however am glad to hear you got fairly quick ...

Sorry to hear about Bailey. It's always so very hard to see them go. Big hugs !!! Sent from my Galaxy

Sorry I missed signing in yesterday however my dog was unwell and today we had to put her to sleep. She was just shy of her ...

@wisdomseeker thank you. I always love hearing there is new treatments in the works.