English community

Hi Vonnie_613 I am sorry you are experiencing neuropathy and have also had it from the onset of treatment in 2022. I haven't ...

Hi! No worries re the sleepless night, you are in familar territory. Before trying the ice during treatment I will try ...

Thank you for your advise @Alwayslearning I agree fully if I had 2 lines of treatment it would be covered as of spring this year ...

Hi Nicole, thanks for reaching out! I'm hoping OCC will establish a group for those of us with rare OC's - you're right, it ...

You're Welcome! Hopefully OCC can start a group here for all of us with rare OC's! 💙 ...

The walk in Guelph is amazing. It starts around 9 am for registration. It's a chance to meet other teal sisters as well seeing ...

Hi @Vonnie_613 ... sorry for the sleepless night 🙁. Hopefully the icing will help. 🤞 I hope you get some rest today. ...

Hi @MissERP if of any help here is a link to the Guelph walk site. It says it will be updated once they have full information ...

Thank you @DiamondGoddessYYC for sharing the link and spear-heading getting a similar group going in Canada! I was diagnosed ...

None yet. My reoccurrence was confirmed in May 2026 and I'm still navigating tests for genomic testing and biomarkers (Sept 9) ...

@Nicole What treatment did you get for your recurrence? On Aug 28, 2026, at 3:46 PM, richardnl via OVdialogue <Mail@onlinecommunity.ca> ...

Hi there, thank you for sharing. As someone dealing with clear cell ovarian cancer recurrence in 5 months, I would be very ...

It’s always started at 9 am, I think. Sent from my iPhone

Good morning @Alwayslearning ! Welome to see your early post I've been awake for most of the night as well and will soon ...

Heads up on an upcoming webinar from the "Look Good Feel Better" folks. Join Onco-Dermatologist Dr. Maxwell Sauder as he shares ...

@PMB ... that is very interesting. It's amazing how differently all our bodies are in terms of their reactions!

@JoanEG I do greatly appreciate you asking. If there has been a change somewhere along the line in terms of length of timing ...

Hello @Vonnie_613 ... it's 12:15 am and it's one of my sleepless nights so I thought I'd hop onto OVd. I remember all the ...

I find if my feet are cold my feet problem increases!! Pam Black

@florence2022 I'm glad you asked for a second opinion and do hope that will happen quickly. You have travelled far on your journey ...

Thanks @Willow for this information. What time does it start?

The walk in Guelph takes place at the Arboretum located at the University of Guelph. Access is off of College Avenue at Victoria ...

Hi @ Vonnie, thanks so much for responding to my questions and it is helpful. Will be sending positive thoughts your way hoping ...

Hi @Alexson , Yes the walking, balance and dizziness typically ends within a day. As for the bowel and throat issues I ...

@Willow @mom2boys are you able to share the details about the Guelph one, or is there a link to learn more? THanks 😊 ...

@Alwayslearning I have an appointment with my onc. NP on September 17th. i will ask why it was changed to 3 years. I have ...

Hi Vonnie. Thanks for keeping us updated on the side effects of Elehere. I have some questions I hope you don't mind. Does ...

@DiamondGoddessYYC. I have a clear cell OC. Thank you for the UK site link.

Hi @Alwayslearning Just finished my 8th treatment 2 hours ago. In a couple of hours I will have trouble walking which ...

Hello I'm not a big poster on this site but I gain lots of information and inspiration from reading all of posts here - thank ...

Thank you dear Leslie always wonderful to hear from you! Florence xxx

@MamaJacks thank you for letting me know. There are clearly differences by province and it appears, by oncologist as well ...

@Tanja thanks for the self advocacy reminder! Glad to hear that your efforts worked in your favour. It's so important to speak ...

Hi @Vonnie_613 ... I hope the treatment went well today and I'm glad they were able to continue. They certainly have ...

@JoanEG thanks for sharing. I hope the transition back on the Olaparib is going well. I'm also thrilled that your provincial ...

It should say MUCINOUS not Mutinous.....and Endometrioid ; but I can't edit the heading now! That's annoying. 😐😑 ...

I attended the recent Aug 25, 2026 Teal Tea and asked about a RARE Ovarian Cancer support group. I've attended the one they have ...

Thinking of you dear @florence2022 with caring thoughts as you navigate through another challenge. I am so sorry that you ...

Good morning! Still no scan results! I did meet one of my favorite oncologists yesterday and have been advised to go ahead ...

One year after I went off Lynparza (BRCA2+), I had my first recurrence. Underwent chemo again (Taxol and Carbo/Cisplatin) and ...

Dear Sisters, my journey has become more difficult lately whilst the radiation was effective on the pleura cavity tumours ...

@Alwayslearning. Everybody told me no to 2nd time Bevacizumab. When I then said I refuse 2nd round of chemo without it, I got ...

Hi @Vonnie_613 Thank you for your update. Scanxiety is the worst!! Hang in there. Sorry to hear you are having issues ...

Thank you!

Hugs Vonnie �� fingers crossed its good news only.

Good morning! Raining in Ottawa again ☺ It's been awhile since posting so here goes.....I am scheduled for my 8th treatment ...

@Alwayslearning I started on Olaparib following front-line treatment (6 rounds of chemo, surgery then 2 more rounds of ...

Hi @Tanja thanks for posting this version of the study. I've attached the study information I had previously posted in a separate ...

Thank you for sharing @Rola

@JoanEG I hope the transition back onto Olaparib will be smooth.🤞 Sorry for my continued curiosity however I'm assuming ...