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  • 1.  Coping Mechanisms - Seeking Input from Teal Sisters

    Posted 25 days ago

    Random thoughts that came to mind about coping. Have enjoyed reading all of your thoughts.  Writing a week after my 6th chemotherapy (and 70 hours of fasting, another chapter) - my second round of chemo treatments after cancer returned.

    GROWTH

    After almost 2 years of very little gardening activity, I went out and planted 5 little flowering perennials (Burgundy Mist).  My spirits lifted, for I was finally doing something as an act of hope as opposed to all the "Swedish death cleaning" that has been pressuring me during the past couple of years.  I really look forward to watching the little plants grow next summer.

    ART

    Am loving the artwork Teal Sisters are posting. The healing power of beauty.  Love LeslieA's Garden of Hope.   Also loved the excerpts from the book Beyond Stillness: A Diary of Ovarian Cancer (Eva R), giving a poetic voice to the almost unspeakable journey of the diagnosis we all face.  Would love to have a copy someday.

    I haven't found a voice - usually defaulting to stiff upper lip mode after bouts of despondency -  therefore I enjoy admiring the voices you have expressed.

    DIET

    I just read Belladonna's posting on this "Coping Mechanisms" thread.  You are a true inspiration. I am forever grateful to you for your posting about Jane McClellan's book How to Starve Cancer, and for your undaunted attitude.  I bought McClellan's book and two others: Eat to Beat Disease (Dr William Li) and Chris Beat Cancer (Chris Wark) and changed my ways overnight.  No dairy, meat (except some fish), or high glycemic foods.  My CA125 readings are now down to 7.  Feeling energetic and hopeful.  Paying a lot of attention to diet and exercise because I cannot tolerate niraparib (Zejula).

    DISCOVERY

    This illness has led me on a voyage of discovery in the realm of nutrition and recipes.  I have been trying new recipes (lots of ways to prepare tofu) and I now have a daily tea ritual. Chasing glimmers of hope led me to meet a Chinese grand master of teas. Green tea is known to help fight cancer, so I went on a quest and now have a small Yixing teapot and look forward to my daily tea ritual.  In fact, two friends are coming today for tea, so I'll give them the full ritual - Yixing teapot, Yellow Mountain tea, and tiny cups.  :-)

    PERSPECTIVE

    Mfallis_OCC suggested a webinar with Dr. Sammy Winemaker and Dr. Hsien Seow, which I watched and found helpful.  LeslieA suggested their book Hope for the Best Plan for the Rest, which I noted.  Feeling more peaceful.

    THANKFULNESS

    Very thankful for OVdialogue.  It has been a life buoy!



  • 2.  RE: Coping Mechanisms - Seeking Input from Teal Sisters

    Posted 25 days ago

    Thank you for sharing @Soleil. What a wonderful way of laying out your thoughts and what poignant perspectives you've shared. I love how the garden was able to "lift your spirits". It's amazing that what may seem like simple, everyday tasks for some can take on a much deeper meaning for those of us who are battling a disease. We've learned that the 'everyday' isn't always so easy. 

    It's funny that you say you haven't found your voice because I honestly believe I hear it. It's full of determination, exploration and self-healing. I recall many of your posts about how you've educated yourself and changed habits. Your story is one of success based on your hard work. It's worth celebrating. 

    I appreciate as well the sharing of the various resources you've become aware of along your journey. I know these have been shared across various threads and it's aways nice to see them in a collective way. If anyone is interested in the webinar that M. Fallis at OCC shared (by Dr. Sammy Winemaker and Dr. Hsien Seow), I've attached the link below.

    7 Tips for Navigating an Ovarian Cancer Diagnosis

    As well, if anyone is interested in looking for resources, go to "Categories" at the top of the OVd page. Click on the down symbol and a category list will pop up. If you scroll down and click on 'Resources', it will provide a list of discussion threads where OVd members have shared resources and practical tools. 

    @Soleil I hope your recent chemo is a success. Congratulations on a continued low CA125. Will definitely wait to hear your 'fasting' story. Sounds like there's another sharing there! Sending you hugs. 

    #Resources #Supportandencouragement




  • 3.  RE: Coping Mechanisms - Seeking Input from Teal Sisters

    Posted 21 days ago

    @Soleil,

       You have a gift with words; I enjoy reading your posts. I have been thinking a lot about hope lately. I am sharing a bit of my story at the Walk of Hope next week and want to be relevant to the theme. As I think about hope, I was searching for it outside of myself at the beginning of this journey of journeys, but I have managed to generate some internal hope, and it often comes from the tiniest of moments. Like you have done, planting flowers and for me a vegetable patch of tomatoes, beans, beets, and carrots. The tomatoes and beans flourished. The carrots were meagre and mealy. But it was fun to check on the garden everyday because it changed so quickly.

    Other sources of hope has been not feeling so alone with this disease; the teal sisters and our conversations have helped immensely. Also, cherishing a stunning sunset, a humorous conversation with a random stranger, attending a party this summer and meeting new people, walking my beautiful dog Ember, and snuggling in bed at night warm and comfortable. I have tried to write those summer moments down so I don't forget. It is easy for despair to wash over me, especially when I have medical challenges (which so far have been few). 

    Forming new habits with our diet is a hopeful act. I haven't yet developed a regular green tea practice, but I like the fancy ones from the tea shop. I plan to start drinking green tea daily. Thank you for the reminder. 

    Speaking of books, I am reading Kitchen Table Wisdom by Dr. Rachel Naomi Remen. It was recommended by Trudy Boyle who facilitates "Living Well with Cancer" from Wellspring. It offers a lot of life perspective from a physician who has a chronic illness. I have found the stories to be supportive and hopeful. Trudy Boyle herself provides wise, grounded, and inspirational thoughts about life that leave me much less afraid of the unknown and my fate. 




  • 4.  RE: Coping Mechanisms - Seeking Input from Teal Sisters

    Posted 9 days ago

    @LeslieA your sunflower painting is beautiful!! I love your thoughts on "hope". It's a word that takes on so many different meanings, often based on where we are in our journey. Your thoughts of how it has morphed over time reflect the evolution that hope can take. Thank you for sharing.💙

    Also, I appreciate the book recommendation. I've made note for future reference.

    #Resources




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