English community

I'm glad to hear that your infusions are going so well! I'm sure it's a huge relief to not have to deal with a reaction. Thanks ...

Thanks for sharing your experience Petra. I appreciate your support. So far (2 cycles) I have had absolutely no ill founded reaction ...

Hi Wendy, I was switched to Nab-Paclitaxel after having a serious reaction to Paclitaxel and my body was able to tolerate the ...

@DiamondGoddessYYC. I am not doing immune therapy right now- no need yet. I am Clear Cell (5% of all OC, more in Asia) diagnosed ...

Sorry your experience was not more positive. Regarding the fatigue. I am curious if anyone has looks at https://cancerfatigueservices.us22.list-manage.com/track/click?u=90d00eee2ddbc14d0448f1c56&id=3260b13074&e=b7a680e529 ...

Good luck and positive energy coming your way. let us know how it goes🙏🩵 ...

@DiamondGoddessYYC thank you and wishing you nothing but luck too 🤞 ...

Hi @DiamondGoddessYYC . I'm sorry to read about your recurrence. Did you have any symptoms that led to the discovery or was it ...

Hi Best of luck to you @Alwayslearning for your appointment next week! Happy Canada Day! I have a radiation consult appointment ...

Oh, that's nice @Alwayslearning ! Hibiscus bracelet. It's lovely :)

Hi @DiamondGoddessYYC I've tried to post this three times via my phone and it's being temperamental. This is a pic of the bracelet ...

Thank you @Tanja ! I will send this in to my Gyne-Onc to ask him about this. Hope you're doing ok? Appreciate your insig ...

Oh wow, illegal! Good to know. I'm glad it's OK to have the bracelet-maker - do you mind showing me what it looks like? Thanks ...

Hi, without going into detail I am currently doing caelyx treatments for my third recurrence. But even prior to this, I have ...

@DiamondGoddessYYC - as clear cell patient you may want to discuss possibility and effectiveness of immune therapy with your oncologist ...

Hi Tiffany, I agree 100%. With an estimated cost of an overnight stay in an Ontario hospital at $7,000, it is far more cost ...

I have been on Abraxane since March with no side effects. Also my CA 125 has just come down to the normal range since April 2022. ...

Hi Wendy and friends, I had a similar experience as you and others with Paclitaxel, and was switched to Abraxane (with a lot ...

Happy Thursday everyone. Sorry for the delayed 'jump on' but I'm tending to a sick puppy. Well she's not actually a puppy. She's ...

hi @hgtv - it appears that there are differences in how doctors/hospitals/provinces monitor for recurrence. I am being monitored ...

Hi @DiamondGoddessYYC we did not go to the beach but we did stop at a roadside to look at it. It was very pretty. We learned ...

Hello I did a search about radiation in the discussions and it seems yours @Readersmaven is the most recent one I found. ...

Wow, it looks amazing there. Did you manage to get to a beach with pink sand? It's one of the things I've been wanting to do ...

thank you!

Hi @hgtv I am a patient at PMH in Toronto and because I'm on Lynparza I have my bloods done every 2 months including CA-125. ...

Oh interesting! I’m not having any CT scans so it’s just the Ca125 monitoring! Anyone else just tracked by ca125? Thanks for replying! ...

Good morning Imissed the Teal Tea today. I have been busy with my elderly Mom who was just released from hospital. 'welcome to ...

Thank you so much😊 ...

I try and meditate to calm my monkey mind!!!

Thanks GloHo. Good advise. The tumour is currently being tested in London for FRa. I will ask about how I can check in ...

Hi! Joined my first tea today and I've been reading the book that was shared. 2 things interesting to me 1) it talks about first ...

@Alwayslearning Thanks. I'm quite happy going to my GP. She is a palliative team member here and has been staying on top ...

@Tanja I would hope there's a point person in the gynaecology unit for the Drs or maybe someone in the clinical trials unit? ...

Hi @GloHo I'm so sorry you didn't have the positive experience you were hoping for from the call. Perhaps he's more used to ...

@Meinvan ...I'm always amazed at what they can see on a CT scan. While some of it's scary, it's still good that they can identify ...

Hi @sheryl Sorry to hear the news about the qualification for most current clinical trials. I'm glad they at least have a path ...

@GloHo. Good advice. I also feel that there is a bit a person missing who keeps the view to match patients to available trials ...

@sheryl Sorry to hear there is no clinical trial available for you at this time. I'm glad your current treatment is keeping ...

CALL-OUT TO ALL TEAL SISTERS I have an upcoming opportunity to provide feedback to the PMH clinical trials unit. ...

Talked to the Palliative Care Dr. He went through my bloodwork and said he couldn't see anything that could be causing ...

Thanks Tanja. I really had never thought of this as an issue until it became one for me. It must be discouraging for you and ...

@Sheryl I know how you feel. As someone with clear cell ovarian carcinoma, I am almost never eligible for a trial. I read up literature ...

Some things on my CT scan that I need to discuss with my surgeon and oncologist when I see her next after surgery. Small right ...

Thank you. Done. Good luck

I'll try and join if I remember and can figure out the zoom thing.

Hello Teal Sisters, I missed our Thursday check-in again, as that day is often busy for me. (I had a massage and a visit ...

Hi @Meinvan my hubby is also born & raised Burlington. My team is, "Mel's Cure Crusaders" at the Halton Region (Burlington ...

Good for you, I don't know I'd be ready for the September walk just yet. Let me know if you have a webpage set up for donations. ...

Hopefully they have something to offer you for the doldrums as you call it. There are generally lots of options out there. ...

Just a quick update regarding my virtual appointment with Princess Margaret yesterday. It was actually quite disappointing. ...