English community

Wishing everyone a wonderful Mother's Day! Hope you all have a chance to get out and enjoy the special day and celebrate being ...

lbarr72, I just viewed your interview and I thought it was fantastic. You spoke so well and delivered an important message. ...

Hi @andyro @Alwayslearning , I am sorry to hear you are going through this. I can sympathize about your oncologist not ...

@lbarr72 what a great interview. THANK YOU SO MUCH for continuing to share your story and raising awareness. It's so very ...

@lbarr72 no doubt it is! I do love how supportive your oncologist is. I have learned that this isn't always the case so I'm very ...

Hi @andyro and I'm so glad you found us!! I know of one other member of this group @MissERP who has posted relative to her ...

Yes my head is spinning...but not in panic mode so far. Given the details on the CT report, I have more questions for my oncologist. ...

@LeslieA thank you ... we shall see when all my scan results and the CA 125 come in. Until then, I will enjoy the weekend ...

@lbarr72 my chest CT results were all clear. My labs were good with the exception of my WBC but while they were abnormal, ...

@LeslieA and @lbarr72 how strange is this. After thinking I had a recurring UTI, the thing that drove me to get a pelvic ...

@lbarr72 darn I'm so sorry I missed the interview. I'm going to see if I can find it on line. THANK YOU for continuing to represent ...

@andyro sorry you are here. Is this ct scan after you finished the 6 rounds of chemo? Was there any option of having another ...

I too believe that a cure is possible and coming🙏🏻. I pray we all get to be apart of that discovery🩵👊 ...

Thinking of you lbarr72 re: this news. May it just be surgical scar tissue like the Onc suggests, but if not, it sounds as though ...

Alwayslearning, I hope that all is well with your scan and the CA 125 test. I also hope that there is some resolution for your ...

Will let you know how it goes and send a link if possible. Felt like warrior doing it, but have finally seen my CT report of ...

I am certain that you will represent us well, lbarr72. You are very articulate and thoughtful. It is important that we get the ...

I believe that the cure is out there too and hopefully within reach during our lifetime!

To all my Teal Sisters … not a club we wanted to join however I thank you all for your continued inspiration & support. Thank ...

Hello everyone, I'm so happy for finally finding a group where I can voice my concerns and have people that can listed and understand ...

May 8 is World Ovarian Cancer Day. Dedicated to raising and promoting global initiatives, education, support, research and advocacy. ...

Crossing my fingers and toes that you hear only good news at PMH. Sunny but cool day here in Lucan. Managed to do all three ...

Hi all and happy first Thursday of May. The robins are out in full force here and the bunnies are everywhere! I live in what ...

Just a heads up on another workshop being offered by the "Look Good, Feel Better" group. It's being held virtually on Thursday, ...

@Courtenay thanks for sharing. I'm guessing your oncologist continues to monitor your bloodwork via labs and speak to you regarding ...

@brendalee I agree fresh air can do wonders. Our home gym is in our garage so it's pretty 'crisp' in there right now. I ...

It was actually my team that approached me about being in the trial since it is for platinum sensitive. I believe there is a 10 ...

@GoldenDaisy you are a trooper for continuing to push yourself to walk even with low energy and well done on the swimming. I ...

@GoldenDaisy good luck with the final infusion and yes hopefully you will see a decline in the CA125. Glad it is however on the ...

Thank you for telling me this.

I was on 100 mg Zejula from September 2022 until September 2025. I had no side effects. My oncologist said that the standard ...

One doc suggested quit overnight. I didn't feel comfortable with that. What if the disease comes back in a mo, 1 or even 2 years. ...

@golden daisy - is this the new treatment? I commend both you and @Always learning for being as active as you are relative to ...

My energy has been quite low with the last two treatments but I am pushing myself to get out and walk even if I dont feel like ...

Thank you so much for your reply. I still have one last carbo caleyx left. First few infusions were very positive. CA 125 was ...

Hello all. Well I must thank @brendalee for the nudge as I have not posted in a while. I wasn't sure if folks were 'done' with ...

@brendalee ... thanks for the nudge! I will go back to the original post and see how everyone is doing!!! Good on you for being ...

@Jessica@OCC ... thanks. I did complete the survey and said I'd be happy to help with any testing/trial (can remember the official ...

@Courtenay thank you for sharing more of your journey. With what you've been through, and now being 8 years out this is ...

HI @GoldenDaisy ... glad to hear your last round of chemo is done. I hope the chemo was a success for you. I am not familiar ...

Hello, I have been on Zejula since 2023. My oncologist has stopped with this PARB and told me I could only be on it for 3 years. ...

They are hoping to have a beta-version up for the fall and will be seeking feedback from users at that time. Thanks!

Spring is here (I think... and depending on your part of the country)! Welcome to the Teal Thursday chat for May 2026. ...

I have had cysts in my liver and kidneys for a long time. Possibly if you went off olaparib they could monitor those more closely ...

Yes, there were 3 regimens of chemo. The docs wanted a 3rd regimen to reduce the disease burden in hopes it would get better ...

@Courtenay - I am confused now and am a detail person..even when they don't really matter lol. I thought you didn't do chemo ...

measured my BP when I came home and it was very low. I guess it goes lower after exercise, but shouldn't be this low. I would ...

brendalee, I don't do the yawning, but I sure do the burping since getting sick and taking Olaparib. I also get heartburn here ...

brendalee, I know, we have been absent for quite a while. Good for you for doing an exercise class. I don't know about your ...

HI ALL! Yes, I am brca2, somatic. After 2nd recurrence, I waited about 2-3mo for microscopy surgery on liver, Ca125 was up, but ...