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@Alwayslearning Hi. No. Other stuff came up re trial so dealing with that. We have work arounds so I'm good for now. I ...
Hi @Larkk thank you for sharing your story and good luck with the walk. I hope you are able to get a Teal Sister to share their ...
Hi @GloHo did you ever get an answer on possible port replacement?
@Jessica@OCC thank you. For Teal Warriors on this site...I completed this survey and it casts a VERY wide net. I believe it ...
@GloHo wow...thank you again for this information. Per my 'alias' I am always learning from members of this site. You tend to ...
@Judith thank you for your post, for sharing your PARB perspective and all the additional information. I'm thrilled that ...
@Alwayslearning - the deadline to complete the survey is September 30th, 2025. Thanks!
Hello @GloHo , Thanks for your interest! The survey will be open till September 30th, 2025.
@DeniseBR It looks like we are at about the same point in our journeys. Sending hugs 🥰. @Alwayslearning I'm just ...
Good afternoon my Teal Sister Warriors! I'm posting this as a response to Niraparib (Zejula) not being available for ...
@Jessica@OCC can you advise if there is a deadline to complete the survey. Thanks. #Clinicaltrialsandresearch
@GloHo I feel like you have tried everything!! Your warrior spirit and resolve are amazing! 🩵 ...
@DeniseBR out of curiosity who mentioned the combination treatment option? I'm always curious if the information is coming from ...
@ellie it's great to see that there is continued research however at the same time, a bit disparaging when yet another drug ...
@heslopk thank you for posting the link.
@heslopk I found this yesterday and read it. Thanks
@Cole good luck this week and going forward🩵🙏🏻 ...
@GloHo you are a wealth of info. Thank you 🙏🏻 ...
Sorry you're going through this. Did you have an early recurrence? Are you platinum resistant? I had an early recurrence within ...
Very interesting. Thanks for sharing. Seems like slowly the data is being refined and new conclusions are being reached. In ...
https://zejulahcp.com/content/dam/brs-pharma-us/zejula-hcp/en_US/pdfs/ZejulaDearHCPLetterJune2025.pdf This is the new prescribing ...
I'm sure there will be lots of different info about these drugs, I think it's good to arm ourselves with as much research and ...
June 2025 FDA Zejula Google this and all will be revealed. Thank you for your lengthy reply nonetheless. Karen On Sat, ...
Hi, I am interested in your comment that the FDA does not prescribe Zejula for non-BRCA patients with HGSOC. I have not been ...
I was put on 200mg of Zejula and I was tired and hot. Went down to 100 which was ok but then found out this is not a good option ...
@Alwayslearning Thanks. I'm going to call the hospital that did the procedure to see what's possible/involved in getting ...
@Meinvan my team is all geared up!!!!
@Alwayslearning @heslopk this is what I'm suppose to go onto next. Will definitely ask for more info. I feel like it's kind ...
@GloHo This is great info and advice.🩵🙏🏻 ...
@Cole sorry you are feeling overwhelmed, I think anyone of us would feel the same. The ladies here have lots of knowledge and ...
@Alwayslearning . Will be here before you know it! Are you ready to rock it?!
Hi all Teal Sisters and those who support us who utilize this site too. Is anyone out there walking in this year's "Walk of ...
Hello @Cole Thank you for sharing your story and as others have already said, I'm so sorry that you had a recurrence so quickly. ...
@pepperbee I thought this may be of interest to you as you ponder your post chemo plan. I have no idea about this drug and it's ...
Oh my goodness @GloHo . I hope they are able to replace your port. The logical side of my brain says they should however I ...
@lbarr72 thank you for sharing your journey. For every story I read, there is a reminder of the challenges that we each have ...
My cancer treatment started with debulking surgery in late August 2023, followed by 6 rounds of chemo. They let me recover from ...
Thank you so much for this. I really appreciate your insight and encouragement 💕. My tumour has already been sent out for ...
@Cole Breathe in…breathe out. Feel better? I totally understand and feel the "I didn't get a break" comment. I have found ...
@heslopk I am well beyond this point but find this very interesting!! I have heard of successes…will be a very tough decision ...
Thank you so much for your support! I'll be on weekly chemo since this is an early recurrence, with occasional breaks if ...
Initially, treatment is with curative intent. Since this is an early recurrence within six months, I am considered ...
@Cole I've never been told I'm curable. I have no stage only considered advanced hgsoc due to my initial presentation. ...
Hi. I just want to revisit this discussion because I am starting to have issues with my port. I had a chest power port inserted ...
I've been taking Zejula for a few months. Reduced to 100 mg due to side effects. In my research I discovered that the fda in USA ...
Thanks for asking. I have High Grade Serous Carcinoma Stage 3C. My appointment was overwhelming. It's no longer curable. It's ...
@Cole Hi. Good question. First, I'm sorry you had such a quick recurrence. What type of cancer have you been diagnosed ...
@Cole sorry to hear you have had a recurrence so soon after finishing treatment. I can imagine how I would be feeling. ...
@Alwayslearning thank you will definitely keep you posted🩵🙏🏻. ...