Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Best Of
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Wow - 428 women are registered on this OVdialogue online chat - thank you everyone for participating!
Re: Recurrence in pelvic lymph nodes (radiation treatment)
@Marilyn...THAT’S what I was doing wrong! LOL Thank you so much!! 👍🏻
Re: Recurrence in pelvic lymph nodes (radiation treatment)
Thanks for tagging me Marilyn. Yes, I had 25 rounds of radiation. I started having diarrhea almost right away. I started radiation about a month after chemo. I don’t have kids so I can’t speak to caring for anyone but myself during rad. I have a very supportive partner that does most of the cooking and we hired cleaners while I was sick.
I found that eating a bland diet was helpful but didn’t eliminate diarrhea. Leafy greens, fried foods, and dairy will not be your friends. I would also use unscented baby wipes instead of toilet paper when I felt very sore. The cream sounds like it would be helpful but I didn’t use it. I drove myself to and from radiation so fatigue wasn’t so bad that I couldn’t do that.
I did find morning appointments better for me and I would go into the rad appt without eating. I’m not sure why but if I ate before rad I would feel more nauseated.
I became sensitive to eggs and even more lactose intolerant after treatment ended. Still have those sensitivities. I also still have fatigue 2 years later but it was most intense about 2-4 weeks after treatment ended. I was not expecting that!
I wouldn’t say it’s worse or easier than chemo, just different. Please feel free to tag me if you have any questions now or during your radiation treatment . 💓
I found that eating a bland diet was helpful but didn’t eliminate diarrhea. Leafy greens, fried foods, and dairy will not be your friends. I would also use unscented baby wipes instead of toilet paper when I felt very sore. The cream sounds like it would be helpful but I didn’t use it. I drove myself to and from radiation so fatigue wasn’t so bad that I couldn’t do that.
I did find morning appointments better for me and I would go into the rad appt without eating. I’m not sure why but if I ate before rad I would feel more nauseated.
I became sensitive to eggs and even more lactose intolerant after treatment ended. Still have those sensitivities. I also still have fatigue 2 years later but it was most intense about 2-4 weeks after treatment ended. I was not expecting that!
I wouldn’t say it’s worse or easier than chemo, just different. Please feel free to tag me if you have any questions now or during your radiation treatment . 💓
cdot
1
Over two years after chemotherapy
This is the first time I have been in the discussion. I was diagnosed with stage 1C ovarian cancer almost three years ago and had surgery and then chemotherapy. I am wondering how others are feeling (physically or psychologically) who, like me, are lucky to have been diagnosed early and living with the effects of chemotherapy and the disease.
blair_ns
1
Re: Made it so far- in remission CA125 is 8
I got my diagnosis back in 2016. My CA125 has been low for a while. I did hear though that some women have low or normal CA125 even when they have ovarian cancer! So as @PennyYVR is saying, it's important to tell your doctor what symptoms you might be experiencing.
Elsie13
2
Re: Let's get started! Come and introduce yourself
Welcome @VSC - Welcome to the site. Thank you for sharing all you have been through.
So you are done chemo for now? How are you feeling?
It is good they are looking after you and we hope for the best possible outcome for you.
Hope you find much support here. You are welcome to join us on the live chats for Tuesdays at 7:00 PM CST
So you are done chemo for now? How are you feeling?
It is good they are looking after you and we hope for the best possible outcome for you.
Hope you find much support here. You are welcome to join us on the live chats for Tuesdays at 7:00 PM CST
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Hi @Linda I am doing good how about you?
Tara
1
Re: Let's get started! Come and introduce yourself
Hello @JanCan - so sorry you are dealing with this and glad you have found this site.
This is the place for much support and we hope you feel less alone.
Yes, for sure - keep on that medical team/system. Our experiences here have focused us that we must advocate for ourselves. Please keep in contact with your Cancer Navigator system to get that appointment and perhaps your family DR can assist with that as well so you don't fall through the cracks.
Again, please do not hesitate to go to your ER department if you are in pain.
This is the place for much support and we hope you feel less alone.
Yes, for sure - keep on that medical team/system. Our experiences here have focused us that we must advocate for ourselves. Please keep in contact with your Cancer Navigator system to get that appointment and perhaps your family DR can assist with that as well so you don't fall through the cracks.
Again, please do not hesitate to go to your ER department if you are in pain.
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Thanks @Flowergirl Keep well and have a great week. Night night 🦋
Linda
1
Re: Teal Tuesdays - Live Online Chat! (Discontinued indefinitely)
Thanks @Flowergirl. I participated in the Cancer Chat this afternoon. Went very well and the 90 minutes just flew by.
Linda
1