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@Lorraine5845 wrote:
back to the hospital I went on April 12. My calcium was thru the roof at 4.35 which causes all sorts of issues and not ready to go home. I have low blood pressure, my electrolytes too low. I don’t know if the immunotherapy did a number to my body but with only 5 treatments wasn’t worth
@GloHo wrote:
Sorry to hear you are back in hospital due to blood counts. It is impossible to predict how we will react to our treatment drugs. I was on immunotherapy earlier this year (a trial) and it affected my liver enzymes. It stopped working and I did weekly Paclitaxel until it stopped working. I am again in an immunotherapy trial…we will see how it goes.
Has your team been able to tell you why these counts are whacky? Do they attribute it the immunotherapy? Is there something you can do to resolve the counts? What type of issues are you experiencing?
I think this would be great info to share on Teal Thursdays. If you want me to put it on Teal Thursdays, I can do a cut and paste. I am heading to Toronto right now so it would be later this afternoon when I could help you out.
Let me know.
@Lorraine5845 wrote:
You can repost I don’t mind.
I’m hopefully going home tomorrow but all it takes is another thing going wrong with bloods.
@GloHo wrote:
Glad to hear you are hopefully heading home tomorrow 🤞. How are you feeling? Ready to go home? What types of issues were you experiencing as a result of your blood counts that made it necessary for the hospital visit?
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Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Something to look forward to!
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@Strongwoman I also take long acting and short acting dilaudid, because my onc was amazed I wasn’t on it. It made such a difference. But I am on such a lot of meds I am surprised my liver has not collapsed.
luckily, my bladder problem is in abeyance, just the occasional spasm.
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I heard back from the Onc…we are going ahead with the clinical trial.
I’m ok with Phase 1. I figure every drug has had to begin this way…some work, some don’t. I’m being positive and am hoping that this new drug is what I need. If not, I have a couple of standard of care drugs to fall back on. If it doesn’t help me…maybe my participation will help inform decisions for those that follow in the future.
Re: When is enough, enough?
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Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Kindly keep us updated as you can. We will all be thinking of you.
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I will be thinking of you!
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
After surgery, it is a tough journey. When I say I "shuffled" more than walked, I am not exaggerating. It was tough and hard but I got there and I know you will too. Do what you can to be prepared and it will help you along the healing journey.
Feelings will crop up and tears may flow, all normal and ok to not be ok or for it to come out in that way. Soon, the day will be here and the waiting and unknown will be behind you.
Here is to hoping that you will get to see your new grandbaby this weekend and basque in the newness and baby smells. They are intoxicating and does well for one's soul. Hugs.