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Best Of
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Good afternoon ladies. I had an appointment with my oncologist on Monday and based on my recent bloodwork and CT scan I only have to go for bloodwork every 2 months instead of every 2 weeks, I only need an appointment with her every 2 months instead of monthly and my next CT scan will be in 6 months instead of 3.
Thank you @Alwayslearning for reaching out and connecting with so many of us lately. We seem to have lost touch with each other over the busy holiday season. I am really missing @Strongwoman she was the glue that held us together and I appreciate your efforts to fill that gap. I will not speculate on her absence but I must admit I am fearful.
Please take care everyone and remember just because we have been given a cactus, doesn’t mean we have to sit on it!
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Forgot to mention…I have been journaling my personal trial experiences under clinical trials on this site if you are interested in seeing more details about this specific trial. 😊
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@melissa I’m so sorry you are dealing with so much right now! You must be feeling really overwhelmed. I’m glad you are sharing this with us here. As we all know stress is not good for our health!!! You need to just focus on yourself. Do what you need to do to take care of your mental and physical health. Remove yourself from anything negative. I know this is easier said than done! Praying for you and your family 🙏❤️🙏❤️
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@JoanEG that is wonderful news!!! Every two months from 2 weeks is incredible progress and extending the timing between the CT scans is great news too. I hope that news bring lots of sunshine your way. I also love your cactus comment. So very true!!! Take great care.
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@JoanEG I like what you said about the cactus!
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@Alwayslearning I hear you on the muscle tone going to shit! Lol. I used to be able to do pushups from the floor, but now I can barely manage 3 against the wall. In hindsight I wish I had continued with some sort of strength training during treatment. I did walk every day, even if I could only manage 5 minutes at a time. It really helped with the leg pain that I experienced. I'm happy to hear that you've picked up swimming! I find it so relaxing and it's great for cardio. I would LOVE to be able to swim as well, but this whole show has caused a lot of unpredictable incontinence so I am scared to go anywhere near a pool. Hoping that pelvic floor training will help with that as well. As for the Cisplatin, my understanding is it is given if someone develops a sensitivity reaction to Carboplatin, which is not uncommon. It is more toxic than Carboplatin, which I can attest to.
@NovaScotiagirl I'm so happy your team was able change things up so your subsequent treatments weren't as bad. The first one sounded awful and getting to the halfway point is huge. Are you comfortable sharing what meds were changed? I'm curious considering the more intense side effects I experienced this last round. Wondering if I should talk to my team about changes if I need to go through more treatments. Wishing you all the best for your scan results at the end of month!
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@NovaScotiagirl so glad to hear that your medical team were able to change your meds to make the infusions better. They tend to have so many tricks up their sleeves. Also good to hear that your ca125 is in the downward trend. That's always positive news. Glad as well that you were able to get something for anxiety. I hope that is helping.
You are strong and you've got this! If you are up to it, let us know the outcome following your meeting on the 27th. Sending you hugs and positivity.
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thinking of you as well @Strongwoman and I hope you are okay. I also want to thank you for all of your advice and responses here on this site. You have been a role model in so many ways and I hope you know how much you have helped us all. Sending prayers for you 🙏❤️🙏❤️
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@Strongwoman missing you honey. How are you feeling? Sending love and prayers 🙏💕🙏
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@HorseGirl sorry for the late reply. So far I enjoy lifting light weights. I use 10 pound dumbbells and also the machines. I'm still going easy with them cause like you, the saw a small fat containing umbilical hernia. Most likely from my surgery as I have one of my small incisions there. My dr didn't even mention it when I saw her in November but I will bring it up next visit. So I'm trying not to work my core too hard.
The main benefit I get is increased energy and improved mood!! @JoanEG that is fantastic news!!!