OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Best Of
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
hi @Strongwoman
I'm in limbo now, waiting to hear from the drug access advisor about funding for PARP inhibitors. It’s unnerving being without treatment for 6 weeks and counting. I still have some residual nodules after chemotherapy and I’m concerned that they will grow without any pressure from treatment. I had postponed making a social media post hoping I could say I was NED.
Fortunately, it’s easy to keep busy at this time of year with crafts, projects and gift gathering. I joined a walking group and will start an exercise program offered by the University of Waterloo. My hair is starting to grow back! I wish I could choose eyelashes over chin hairs 😄
Re: Let's get started! Come and introduce yourself
So the tech just asked me the usual bunch of questions. Asked about surgeries so I say yes I had a hysterectomy. 30 seconds later she asks any chance of pregnancy....… I was like… I'm no. Think she felt bad. I told her, I get it, you're used to asking these questions all the time.
Re: Let's get started! Come and introduce yourself
@melissa the day after my surgery my gyn/onc surgeon told me not to have sex for 6 weeks. I’m 73 and my husband passed away 7 years ago. She knew that so we both laughed.
Re: Let's get started! Come and introduce yourself
@melissa that’s funny! I think of the bullet holes every time I go for a scan too! I hope your scan results are nothing but good news. 🫶
Re: Let's get started! Come and introduce yourself
Hi Teal sisters
I think our collaborative book should be called “The Sneaky Bitch” Thanks, Joan, I love it!
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Well, cottage week is over. Such a relaxing time. So nice to spend time with hubby away from my everyday reality! We made a 2-hour stop at my sister’s on the way home…so a 12-hour travel day by the time we got home yesterday. Puppy learned how to swim and she was so tired by the end of the day, she fell asleep with the ball still in her mouth 🤣.
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
So glad to hear that you are eligible for a clinical trial. Which trial are you going to be participating in? Will you be staying with friends on treatment days or have you considered staying at the Princess Margaret Lodge (they have a shuttle to the hospital)?
I am going to be at PMH and PM Lodge on July 9th (with hubby) and then again on the 14th, 15th and 16th. Maybe our paths will cross and we can say Hi and chat a bit.
I hear you on wait time! The wait between last treatment and beginning of next treatment/trial is a difficult time. You just want to get on with it! Hang in there. Once you have completed all the pre-trial steps (they get the results very quickly) and they verify your eligibility criteria, you will be in treatment lickety-split!
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
@GloHo the short bus was a big hit! We laughed soo much when we saw that cause it's an inside joke with the hubby and I. When we first met he jokingly asked me if I took the short bus to school when I was little lol. Almost 20 yrs later we still mention the short bus. It was fun cause it was our shuttle bus to downtown
Re: @GloHo
@Lorraine5845 I’m so glad to hear that you’re able to eat, even if it is hospital food! I can still remember the taste of a ghastly tuna sandwich that I managed to eat 5 days after debulking surgery. After two months, you must be willing to eat pretty much whatever they have?