OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Best Of
Re: Let me introduce myself.
Hello @DiamondGoddessYYC I'm glad you found this group. It has been immensely helpful. Welcome to the group nobody wants to be a part of. From your bio I see you have clear cell. So do I same stage. I was diagnosed in June 2023, had surgery July 2023, had the 6 rounds of carbo/taxol, like you I reacted to the paclitaxel pretty bad, but got through each round with the help of reactine.
Chemo was completed by mid November 2023 and I've been on surveillance ever since with CT scans every 3 to 4 months and blood work as well. I think it's worthwhile to mention that I had my tumor tested back after surgery and I have a targetable mutation PIK3CA. Have you had your tumor tested?
Fingers crossed for your upcoming scan. Hopefully your pains are just pains. I've been taking Lyrica for nerve pain the past 6 months but not for my feet/hands but rather for the side of my abdomen. I had a gigantic bruise after surgery and I'm pretty sure the nerve pain is from that. I'm in montreal not Calgary.. sucks for me
melissa
Re: Let me introduce myself.
I live in Ontario, Canada. Since the lump is ovarian cancer we are just going to proceed with the Topotecan treatment.
jayne
Re: Let me introduce myself
@lbarr72 welcome! I was diagnosed in September 2023 at 72 and had 6 rounds of chemo, surgery to remove all the things but left a mass which was attached to my small intestine, my colon and the head of my rectum. I then had 2 more rounds of chemo and now I am on cycle 7 of Olaparib with no side effects. So far my CA125 markers have stayed low and my scans have been clear. I was just scheduled for another CT scan and also a mammogram in January. You will find lots of support on this site. Please join in tomorrow morning for our Teal Thursday live chat!
JoanEG
Re: Recurrence
Re: Recurrence
Take care
Re: Exciting updates coming for OVdialogue
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
- A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
- Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
- Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform soon!
mfallis
Exciting updates coming for OVdialogue
Hi everyone,
I’m thrilled to share that we have some exciting updates on the way for OVdialogue.
These enhancements are designed to strengthen our community and make your experience even better.
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
mfallis
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Good afternoon ladies. I had an appointment with my oncologist on Monday and based on my recent bloodwork and CT scan I only have to go for bloodwork every 2 months instead of every 2 weeks, I only need an appointment with her every 2 months instead of monthly and my next CT scan will be in 6 months instead of 3.
Thank you @Alwayslearning for reaching out and connecting with so many of us lately. We seem to have lost touch with each other over the busy holiday season. I am really missing @Strongwoman she was the glue that held us together and I appreciate your efforts to fill that gap. I will not speculate on her absence but I must admit I am fearful.
Please take care everyone and remember just because we have been given a cactus, doesn’t mean we have to sit on it!
JoanEG
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
Forgot to mention…I have been journaling my personal trial experiences under clinical trials on this site if you are interested in seeing more details about this specific trial. 😊
GloHo
Re: TEAL THURSDAYS - Sign in and CLICK HERE TO ENTER LIVE DAYTIME ONLINE CHAT (1pm EST)
@melissa I’m so sorry you are dealing with so much right now! You must be feeling really overwhelmed. I’m glad you are sharing this with us here. As we all know stress is not good for our health!!! You need to just focus on yourself. Do what you need to do to take care of your mental and physical health. Remove yourself from anything negative. I know this is easier said than done! Praying for you and your family 🙏❤️🙏❤️
flory