Best Of

@NovaScotiagirl I really feel for you. Recurrence is sucks no matter how long it has been. Though currently, all I wish for is 5y of survival to see my kids into the teenage years. This is my very sensitive point - to leave my children too young to be without a mom. Breaks my heart. For myself, I could die - though I would like to live longer, I have had a great time so far.

I feel that all this Platin strategies are just a patch up and what we all really need is a good systemic therapy that really cures OC. As a scientist myself, I have great hope in cancer scientist coming up with ground breaking solution. The understanding about the different biologies of OC, tumor micro environment and how our microbiome affects how we respond to treatment ( food is prebiotic) is fascinating and has made a great jump over the last 10years.

So hang in there, like I do - today on my cycle 11 carbo + paclitacel with high dose premed so I don’t react. I believe that we have a future!
sending all my love.

Hi @mazupardo

Nice to hear you are doing some fun things. Good luck with chemo #12 this week. Make sure to ask lots of questions of your medical team regarding the tumour marker and what it means. From personal experience I have sought second opinions for non-cancer related items in the past so I can't imagine why you wouldn't apply that same logic in cancer situations. I will however rely on others in this forum regarding their experience in this matter.

I'm doing well. Coming up to 2 months on the Olaparib. Side effects seemed to have settled down. My next bloodwork is next week to see how my white/red blood cells are doing. My CA-125 continues to hover around 14/15. It's a love/hate relationship with that number. That's what gives me anxiety every time I get it checked. I also had an appointment with the Breast Cancer Gene Carrier Clinic last week. Received a lot of good information due to increased risk of Breast Cancer now due to BRCA-2 gene however the focus for the next few years (unless I exhibit some symptoms) is on keeping the Ovarian Cancer under control. The boobies can wait their turn!!!

I'm going to a concert next week as well and then later in the month to Aruba with some friends. Pretty excited about that.

I'm very glad to have gotten you connected with this forum. 😊 The Teal Sisters here are an amazing, resilient, knowledgeable and empathetic group. Good luck at the doctor appointment. Keep us posted on your progress.

@Strongwoman we sure have been here before! I became complacent during my break from treatment, and I didn’t pick up on the signs.

Finally had a BM! Huge celebration 🎉 I’m back to PMH in the morning, so I’m happy to have things recovering. ❤️‍🩹 I’ve hit a wall this week as I’m feeling tired of everything, coming up on a year since diagnosis, and still in treatment, so, if I’m feeling well enough, we’ve decided to go to the Aquarium tomorrow afternoon! I’m really excited!

Wishing you all well. This is a tough journey with lots of ups and downs, and I’m so grateful for this group! Thanks 🙏

@mazupardo. Thank you for sharing your story. Quite dramatic. I am 54y, was diagnosed with clear cell OC in Feb 2023 stage 4. Carbo_Paclitacel +Beva after surgery, recurrence in spleen in Feb 2024, repeated surgery in June and now on my 2nd round of teh same carbo+paclitacel and Beva (on compassionate use as CCOC usually don't respond well to the standard chemo). I am pretty tough. I need to survive for my still young children (late bloomer) as long as possible. I work during chemo. I now started to bike to work again as well - new study: exercise lessens the chemo side effects. As I said, I am tough. But I break once in a while . Cancer and cancer survival is always on my mind. I do enjoy the days and focus on the things I am doing, but cancer always comes back in my mind every day. Sometimes just to say good night, and sometimes to keep me sleepless and worried. Yesterday, I broke down in despair as my chemo cycle was delayed by 2 weeks because my last sensitivity reaction to carbo was neither documented nor reported to my oncologist, and now I need to wait until I get desensitized (instead of already doing it 3 weeks ago, when it happened). I worry about delays, worry about responding even more severe to the carbo, but the main reason why I broke down, was that all my plans for the next week (mainly commitments for work) have been destroyed. The control over my life, that I am fighting so hard to keep, was yet, another time destroyed. I left the Oncology office, sat in the hallway and just cried.

I pull myself up , motivate me again, do it all over - but cancer f sucks.

Hello ladies

It has been a minute since I have posted but I read everyone's posts and keep you all in my thoughts. The past month or so has been filled with excitement, happiness, fear etc. as I returned to work part time middle of July. I was looking forward to my return to work after being off for a while due to my broken leg, then cancer. My excitement was short-lived as the working conditions in healthcare are very stressful. I realized that i am no longer willing to tolerate crap that I once did before cancer and I am happy that cancer has given me the strength to stand up against what I dislike and find unacceptable.

More importantly it has made me realize that time, no matter what the circumstances is precious and I want to spend my time doing things that bring me joy and in terms of work that is teaching so i started teaching again yesterday.

I want to extend a warm welcome to the ladies known as @itzwhatever @mazupardo @mcb I am saddened to hear of your diagnoses but glad you found us. This forum is a safe space, a place where about a year ago I found and has been very important for my mental well-being as it has allowed me to vent about my fears related to this disease. The things I do not want to unload on my husband as it is is clear that doing so causes him incredible stress and sadness. he is there for me in every other way but i have come to accept that the mere thought of my possible early demise is simply too much for him to handle for the time being.

I am here for anyone who might have questions about anything. i will just throw it out there that i am in Montreal so if anybody else is and wants to connect feel free to message me