Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?

OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.

Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!

Niraparib

Has anyone experienced an elevated ca-125 and slight progression of disease on this drug. The question I have is whether they will discontinue it or keep trying for a bit

Comments

  • @annlaba
     Apologies for not answering this for you earlier. Although I have never taken the drug I am positive this is a very real concern for you. What I do know about elevating CA 125 levels in general are that most often, Oncogists look for a consistent trend when monitoring them. That could mean trends of slow gradual rise or faster climbing numbers upwards or vice versa. This is usually over a 2-3 months to see what the trend is in addition to treatment, response to treatment and symptoms or any additional testing and their results.  This is what helps them paint a better picture for the answer you are searching for. I do hope that helps.
     Alternatively, I typed in Niraparib into the search bar and at least 9 different discussion threads came up. There could be some very valuable info in those threads for you. I would suggest reading them to see what info they hold.
     I hope you find the answers to the questions you are seeking, have alternative therapies to turn to if this is not the one for yourself and/or you make the correct answers for you and how you choose to live your best life.
      I will be curious to see an update from you when you are ready to share with the group.
    Take care