Hi there, hope everyone is surviving this winter blast.
I'm wondering if anybody has an experience in knowledge of and/or working with third party cancer advocacy groups. I had a meeting with one group, Cancer Treatment Options and Management (CTOAM.com) just curious if anyone has heard anything about them. There are 2 other companies I'm looking into BlueGuide (blueguide.ca) and Navexio (navexio.com).
In my conversation with the CTOAM they talked about the bind that stage IV puts doctors in with a limited amount of options they can offer to us. As they described it, once you're diagnosed at stage IV, there's "only so much" a doctor is actually able to offer you and that they are guided by provincial guidelines. These groups, as they describe themselves, get to the bottom of things using research, trials and technology in ways that our docs might not have available to them.
Appreciate any insights, experience or advice on this from our brave and courageous women.
Best, Jill
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