We. Are. Warriors.
Original Message:
Sent: 05-08-2025 19:22
From: Tanja
Subject: Teal Thursday - May 2025
Happy World Ovarian Cancer Day to everybody! I hope that the next drug that cures us all is just around the corner. Never give up!
Original Message:
Sent: 05-08-2025 16:31
From: lbarr72
Subject: Teal Thursday - May 2025
Hello sisters ! I am glad the hear that Leslie has made some closer communications. This is not a time to feel like you are alone in rough seas. My visits have been stretched out to 3 months with my oncologist, and doing bloodwork once a month. The pharmacy in Kingston who send my meds have already been in touch for the next delivery, showing me that I am on their radar too. I have had close scrutiny and lots of visits when concerns arose but now basic monitoring unless I have a concern. I can reach the clinic at any time. I am fortunate to live closer to my clinic, as that certainly affects how often you want to make the trip. Sadly, the lack of drs, makes schedules full. My first visit to the Cancer Clinic was an eye opener, as to how many people are experiencing this scourge in some form. Good news this week via my family doctor, who promptly shared the CT results from last week. Things are stable, and no evidence of spread. There are a couple of notes I will ask about when I do see my oncologist in June.
Thankful for all the caregivers, and thankful to have you all to share our good news and concerns with.
Have a great weekend !
Original Message:
Sent: 5/8/2025 4:07:00 PM
From: JoanEG
Subject: RE: Teal Thursday - May 2025
That's good to hear@LeslieA . I'm glad you got to have a good chat with your GP and the locum you saw previously! I am so fortunate that my relationship with my GP includes her just popping in for tea or answering questions that I text her. She actually complains that I avoid in person office visits, lol. I had a telephone appointment with my oncologist this morning but everything is so routine now, thank goodness, that it only lasted about 5 minutes. I will have my next telephone appointment with her in 2 months unless something changes. I will also have my 6 month CT scan in July.
Original Message:
Sent: 05-08-2025 15:53
From: LeslieA
Subject: Teal Thursday - May 2025
Yes a videoconference could work for me if that's the only option. I met with my GP and a locum doctor IN PERSON this week & they gave me some reasonable time to chat about my health. What pleased me was seeing this particular locum doctor who saw me last October when I was sick with cancer symptoms but not yet diagnosed. It was a full circle moment to have both doctors see me now, feeling & looking much better!
Original Message:
Sent: 05-07-2025 13:07
From: Alwayslearning
Subject: Teal Thursday - May 2025
Hi @LeslieA. I understand the importance of recognition for folks that sometimes are just 'doing their jobs' however, their job can have such an impact on us. I took my GP flowers the first time I saw her post my surgery as she was the one who helped me get into PMH so quickly. Her smile of appreciation said it all. I also gave each one of my chemo nurses a Tim's Gift Card. It was for $25 so a small amount however, they treated me for 6-8 hours and for that, I was truly appreciative as they word hard.
I hope your doctor will appreciate your need for an in-person meeting when you speak with her (I still think she can videoconference even if she's at home...for goodness sake, the technology exists). Regardless, how and what you desire as your care is what's most important in the end. Here's a quote I heard from yesterday which I think applies, "A good decision is one that feels right for me." So regardless of what the healthcare provider says, what you want is what is the most important thing. Keep the strong will going!
Also, I hope you are continue to heal more and more each day!
Original Message:
Sent: 05-03-2025 20:57
From: LeslieA
Subject: Teal Thursday - May 2025
Thank you for your thoughts Graciebelle. I must admit that I "have a bee in my bonnet" (such an old term!) about the impersonal side of medicine, so I have decided to do a couple of things. I made an appointment to see my GP next week, because I want to talk to her in person so she can "see" me in this state of reasonable health. I have some questions to ask, but nothing urgent about my health for a change. She has been a disembodied voice on the phone over the last 6 months, so enough of that. I also intend to give her a handmade card to thank her for diagnosing me so quickly & activating the system to save my life. I am very grateful.
I will also be seeing the local gynaecologist for a 6 week surgery checkup and I also intend to thank him for his encouragement during a very dark time last November when the tumour was taking me down. That bit of encouragement sparked hope in me and gave me the courage to keep going.
I want these doctors to know the important role they play in their connection with me, even if it's one office visit. I have also made a point of sincerely thanking every tech person, every nurse and every doctor for helping me so far, and that is a long list!
Original Message:
Sent: 05-03-2025 19:33
From: graciebelle
Subject: Teal Thursday - May 2025
Leslie
I am so sorry to hear you cannot get a conversation with your oncologist in person if requested. I am just going to say "that is not ok". I see you are a counsellor. I am a psychologist who does research on client/professional communication. Again not ok. I appreciate these days we have a mix of phone and in person but if you are needing an in person session an effort should be made to make that happen. You are so correct that connection is important and for some that can happen on the phone or zoom for others in person is important. I hope there is a way to make that happen for you but sorry you may need to assert yourself. This whole cancer journey is crazy enough without feeling frustrated that you are not able to have meaningful conversation with your oncologist.
I was telling my oncologist and PA about a session I had last fall with a family of a child with learning needs. They told me they know it is going to be bad news if their child's physician wants to meet in person and not by phone. I hear parents if kids in school say that too. They get a call or note home unless it is bad and then they meet in person. I think professionals are not award of this. My oncologist (who I really appreciate and am fortunate that I know she and the the team "know me"…….maybe because I make sure they do ha ha) and I had a great discussion. She acknowledged appreciating my sharing this.
I hope your surgery recovery is going well and are feeling better. Great there is minor discomfort. I was living for a BATH after mine!! Sending you good energy and hope you get to a more comfortable place with you communication with your oncologist…..and oh, by the way. you are busy too!!! Healing and living with cancer…..also a full time job :-)
LF
Original Message:
Sent: 5/2/2025 12:00:00 PM
From: LeslieA
Subject: RE: Teal Thursday - May 2025
I have to keep reminding myself that I am only halfway through my surgery recovery and to take it easy! The only discomfort I feel these days is itchy sutures!
Unfortunately my request to meet the oncologist in person was rejected, as she is too busy, according to her secretary. It may happen another time, if discussed with her ahead of time. Here we are discussing matters that pertain to my health and survivorship over the phone and she probably doesn't even remember what I look like, as it was once in November 2024 when I was very unwell. So a very clinical conversation it will be and there isn't anything wrong with that from a pragmatic perspective. But with me being a counsellor, I believe that our connections with others (including professionals) matter a lot, at least to me. And that means our physical and emotional presence with each other in one shared space can be very impactful and influential. So I will work towards that for another time.
Original Message:
Sent: 5/2/2025 11:33:00 AM
From: Alwayslearning
Subject: RE: Teal Thursday - May 2025
Hi@LeslieA. You are doing great if you can easily walk 3km at 4 weeks post surgery. 👏 I don't think I got there until 8+ weeks and I was quite fit beforehand.
I drive 3 hours to see my oncologist so totally understand that need. Good for you for requesting that.
It is strange that we don't have consistency across the provinces but I think that even occurs in province too.
I hope you continue to progress so positively!! That's for continuing to share with us all.
Original Message:
Sent: 05-01-2025 14:05
From: LeslieA
Subject: Teal Thursday - May 2025
Hello Everyone,
If springtime has arrived in your area, I can imagine that you are out enjoying the weather, or doing springtime activities. Spring has definitely arrived here on the west coast. We are enjoying blue skies and warm sunshine (17 - 20 c), with more in the forecast.
My update is that I am in my 4th week of recovery from the hysterectomy/debulking surgery. My stitches are itchy as can be, but healing well. I am walking daily and can easily do 3 km, but it is a guessing game in terms of how to stay within the recommended limits. I will go for a 6 week check-up with a local gynecologist in my town and hopefully will get the green light to do more movement and activity.
I have a telephone appointment booked with my oncologist at the end of May, presumably to go over the pathology report and discuss further treatment. As I mentioned previously, the surgeon took out the remains of the tumour, but said he didn't find anything else to remove, so I am wondering how she will interpret that in terms of my health trajectory? I understand that things can change on a dime, but I am hoping that she will take into account my previous good health, no complications in chemo and no complications from surgery, instead of quoting broad, possibly outdated survivorship stats. (I mention outdated stats because I read an article on the "My Ovarian Cancer" site which stated how rapidly things are changing with more effective treatments and longer survivorship than in past years).
I have decided that I want to see this doctor in person, rather than a telephone call. It feels too impersonal to talk on the phone about my health. I am willing to travel to Victoria (3.5 hours drive), as I have a strong need to be "seen" and have a direct, interactive discussion. I called this morning to change the appointment, and I hope it goes through. I am in the process of assembling some questions to ask her.
I also learned this week that BC doesn't use a team-based approach model for ovarian cancer patients, therefore explains why I feel disconnected from this type of medical support. There is an oncology team for breast cancer, so I wonder if it relates to the fact that breast cancer research/ support is well-funded?
These are my musings for today! Sending you all warm wishes and hoping all is well!
Leslie
Original Message:
Sent: 05-01-2025 10:44
From: mfallis
Subject: Teal Thursday - May 2025
Can anyone else not believe that it is May already?! It feels like 2025 just started but here we are 5 months in!
Looking forward to having you join the Teal Thursday chats for May by posting below. If you have any questions please let me know.
All the best!