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Teal Thursday - May 2025

  • 1.  Teal Thursday - May 2025

    Posted 7 days ago

    Can anyone else not believe that it is May already?! It feels like 2025 just started but here we are 5 months in! 

    Looking forward to having you join the Teal Thursday chats for May by posting below. If you have any questions please let me know. 

    All the best!



  • 2.  RE: Teal Thursday - May 2025

    Posted 7 days ago

    Hello Everyone,

       If springtime has arrived in your area, I can imagine that you are out enjoying the weather, or doing springtime activities. Spring has definitely arrived here on the west coast. We are enjoying blue skies and warm sunshine (17 - 20 c), with more in the forecast. 

       My update is that I am in my 4th week of recovery from the hysterectomy/debulking surgery. My stitches are itchy as can be, but healing well. I am walking daily and can easily do 3 km, but it is a guessing game in terms of how to stay within the recommended limits. I will go for a 6 week check-up with a local gynecologist in my town and hopefully will get the green light to do more movement and activity. 

       I have a telephone appointment booked with my oncologist at the end of May, presumably to go over the pathology report and discuss further treatment. As I mentioned previously, the surgeon took out the remains of the tumour, but said he didn't find anything else to remove, so I am wondering how she will interpret that in terms of my health trajectory? I understand that things can change on a dime, but I am hoping that she will take into account my previous good health, no complications in chemo and no complications from surgery, instead of quoting broad, possibly outdated survivorship stats. (I mention outdated stats because I read an article on the "My Ovarian Cancer" site which stated how rapidly things are changing with more effective treatments and longer survivorship than in past years). 

       I have decided that I want to see this doctor in person, rather than a telephone call. It feels too impersonal to talk on the phone about my health. I am willing to travel to Victoria (3.5 hours drive), as I have a strong need to be "seen" and have a direct, interactive discussion. I called this morning to change the appointment, and I hope it goes through. I am in the process of assembling some questions to ask her.  

       I also learned this week that BC doesn't use a team-based approach model for ovarian cancer patients, therefore explains why I feel disconnected from this type of medical support. There is an oncology team for breast cancer, so I wonder if it relates to the fact that breast cancer research/ support is well-funded? 

       These are my musings for today!  Sending you all warm wishes and hoping all is well!

    Leslie 




  • 3.  RE: Teal Thursday - May 2025

    Posted 7 days ago

    @LeslieA  Hello and thank you for your update.  Basically, you are sitting in limbo for now.  That is ok.  Sounds like you are healing well and getting those walks in really helps as well.  I think seeing your Onc in person is a fantastic idea and hope you get to do that.  So different from province to province in their models. Glad you found out they don't use a team based approach so that you are prepared for that. Glad you are in good spirits too.  Keep up the good work and we will chat soon.




  • 4.  RE: Teal Thursday - May 2025

    Posted 7 days ago

    It is now past 2pm and I am going to log off for now.  Be nice to get updates later from some of you ladies as you are probably busy now.  Well you all take care and enjoy the rest of the day.




  • 5.  RE: Teal Thursday - May 2025

    Posted 6 days ago

    Hi@LeslieA. You are doing great if you can easily walk 3km at 4 weeks post surgery. 👏 I don't think I got there until 8+ weeks and I was quite fit beforehand. 
    I drive 3 hours to see my oncologist so totally understand that need. Good for you for requesting that. 
    It is strange that we don't have consistency across the provinces but I think that even occurs in province too. 
    I hope you continue to progress so positively!! That's for continuing to share with us all. 




  • 6.  RE: Teal Thursday - May 2025

    Posted 6 days ago
    I have to keep reminding myself that I am only halfway through my surgery recovery and to take it easy! The only discomfort I feel these days is itchy sutures! 

    Unfortunately my request to meet the oncologist in person was rejected, as she is too busy, according to her secretary. It may happen another time, if discussed with her ahead of time. Here we are discussing matters that pertain to my health and survivorship over the phone and she probably doesn't even remember what I look like, as it was once in November 2024 when I was very unwell. So a very clinical conversation it will be and there isn't anything wrong with that from a pragmatic perspective. But with me being a counsellor, I believe that our connections with others (including professionals) matter a lot, at least to me. And that means our physical and emotional presence with each other in one shared space can be very impactful and influential. So I will work towards that for another time. 






  • 7.  RE: Teal Thursday - May 2025

    Posted 6 days ago

    @LeslieA I'm sorry the request was denied. It does seem odd. Too busy? Not a great way to position it.
    Can you request a video appointment? That shouldn't take any more time than a call. Perhaps you share your feeling of disconnection with the nurse? 




  • 8.  RE: Teal Thursday - May 2025

    Posted 5 days ago

    The oncologist's secretary explained that the doctor sometimes works from home doing her phone calls, so in-person meetings must be planned ahead of time with her pre-approval. I will discuss my preference for an in-person meeting with her on May 28th. And on the theme of medical disconnection, I didn't meet the surgeon until the day of my surgery, and didn't know who was operating on me until about a week before. Maybe that is the regular protocol these days? 




  • 9.  RE: Teal Thursday - May 2025

    Posted 4 days ago

    @Leslie  Obviously our journeys and requirements are all different.  We both deal with the same cancer centre and I am extremely grateful that I haven't had to travel to Victoria for every appointment.  I'm sorry you have felt disconnected.  Almost two years in I have only met with my oncologist, in person, twice and the nurse practitioner three times but I have had monthly phone appointments and when I was getting chemo I had an appointment with one of the staff oncologists at the local hospital prior to every treatment.  As for meeting the surgeons there are only two oncology gyno surgeons on the island so I was quite satisfied with speaking to Dr.Cohen by phone prior to my surgery then meeting him and Dr. Mazgani the day of my surgery.  
    You do what you feel you need!  Definitely ask for an in person appointment if you feel that is what is right for you.  You are your own best advocate.




  • 10.  RE: Teal Thursday - May 2025

    Posted 3 days ago

    Hi @LeslieA

    I sure hope that is NOT the protocol - this is definitely not patient-focused care and a horrible "trend".  I would file a complaint, but I don't know how things work in BC.  In Alberta there is an online patient feedback form that I've used a few times now - sometimes with good results, other times, not so much, but that's OK, as long as I have the opportunity to voice my concerns or make suggestions on how they could improve, I'm happy to have a way to register these things and they do keep the statistics for it (the Patient Coordinator told me over the phone), so it does matter.
    I don't see why the admin person wouldn't just book you an in-person appointment if she manages the Onc's schedule?  That is so bizarre to me.
    I sure hope they improve how they manage patients!  All the best at your May 28 appointment :) 




  • 11.  RE: Teal Thursday - May 2025

    Posted 18 hours ago

    As far as I know, there isn't a feedback system about the medical care we receive, at least it wasn't offered to me. I was very interested in providing feedback about my hospital stay and the exemplary care I received from one nurse in particular. I have thoughts about other aspects of my care that could be improved for the good of all future patients. I might do some poking around to see if an online feedback avenue exists. Thanks for the idea! 




  • 12.  RE: Teal Thursday - May 2025

    Posted 5 days ago
    Leslie
    I am so sorry to hear you cannot get a conversation with your oncologist in person if requested. I am just going to say “that is not ok”. I see you are a counsellor. I am a psychologist who does research on client/professional communication. Again not ok. I appreciate these days we have a mix of phone and in person but if you are needing an in person session an effort should be made to make that happen. You are so correct that connection is important and for some that can happen on the phone or zoom for others in person is important. I hope there is a way to make that happen for you but sorry you may need to assert yourself. This whole cancer journey is crazy enough without feeling frustrated that you are not able to have meaningful conversation with your oncologist.

    I was telling my oncologist and PA about a session I had last fall with a family of a child with learning needs. They told me they know it is going to be bad news if their child’s physician wants to meet in person and not by phone. I hear parents if kids in school say that too. They get a call or note home unless it is bad and then they meet in person. I think professionals are not award of this. My oncologist (who I really appreciate and am fortunate that I know she and the the team “know me”…….maybe because I make sure they do ha ha) and I had a great discussion. She acknowledged appreciating my sharing this.

    I hope your surgery recovery is going well and are feeling better. Great there is minor discomfort. I was living for a BATH after mine!! Sending you good energy and hope you get to a more comfortable place with you communication with your oncologist…..and oh, by the way. you are busy too!!! Healing and living with cancer…..also a full time job :-)
    LF




  • 13.  RE: Teal Thursday - May 2025

    Posted 5 days ago

    Thank you for your thoughts Graciebelle. I must admit that I "have a bee in my bonnet" (such an old term!) about the impersonal side of medicine, so I have decided to do a couple of things. I made an appointment to see my GP next week, because I want to talk to her in person so she can "see" me in this state of reasonable health. I have some questions to ask, but nothing urgent about my health for a change. She has been a disembodied voice on the phone over the last 6 months, so enough of that. I also intend to give her a handmade card to thank her for diagnosing me so quickly & activating the system to save my life. I am very grateful.

    I will also be seeing the local gynaecologist for a 6 week surgery checkup and I also intend to thank him for his encouragement during a very dark time last November when the tumour was taking me down. That bit of encouragement sparked hope in me and gave me the courage to keep going. 
    I want these doctors to know the important role they play in their connection with me, even if it's one office visit. I have also made a point of sincerely thanking every tech person, every nurse and every doctor for helping me so far, and that is a long list! 




  • 14.  RE: Teal Thursday - May 2025

    Posted 5 days ago
    I hear what Leslie is saying. I have always been a big believer in face to face connection. There is so many factors in communication beyond words and tone. Body language says so much too. I hope you can continue fighting for live meetings. This is the battle of your life and needs to be respected and supported. I suspect the culprit is the crumbling health care system. Not enough Dr's and the ones we have now do not put in the hours our older doctors did. So with less doctors giving less time  patients lose the care they hope for. Our Cancer Clinic in London has been great  and the monitoring and contact has been good and responsive when I have a complication. I too thank e eryone and have left hand painted cards in the hospital ward, chemotherapy area and to my Dr. Every time I have a blood test I tell them how great they did, because I am an expert in getting punctured !!
    Everyone loves to be appreciated.
    Keep fighting for the care you need. 
    We sure care that you do !!
    Have a wonderful.soring Sunday ! Flowers are popping here now, although we are a bit rainy. Need that too.
    Hugs and sharing care 
    Linda
    I have been thank



    Sent from my Galaxy






  • 15.  RE: Teal Thursday - May 2025

    Posted 4 days ago

    Linda, you are likely correct about the faltering health care system not meeting the needs of cancer patients today. I read once that cancer will affect approximately 50% of our aging population. I hope that stat is wrong. Our Victoria Cancer Care Centre serves Vancouver Island which is over 500,000 people. We have a handful of oncologists in Victoria but I couldn't find the current number. So no wonder the backlog. 

    There are plans to open another cancer care centre in Nanaimo, a town at the halfway point on the Island, which will make a difference, I hope. 
    Some provinces like Ontario are way ahead of others in terms of oncologists and related health services and I am glad that people can access the care they need. 




  • 16.  RE: Teal Thursday - May 2025

    Posted 4 days ago
    I love this so much. Acknowledging people that support us is so important. You’re taking control of the best you can. Well done I have this help you feel more in control. Love it! 😍Well done I have this help you feel more in control of it.




  • 17.  RE: Teal Thursday - May 2025

    Posted 2 days ago

    Hi @LeslieA. I understand the importance of recognition for folks that sometimes are just 'doing their jobs' however, their job can have such an impact on us. I took my GP flowers the first time I saw her post my surgery as she was the one who helped me get into PMH so quickly. Her smile of appreciation said it all. I also gave each one of my chemo nurses a Tim's Gift Card. It was for $25 so a small amount however, they treated me for 6-8 hours and for that, I was truly appreciative as they word hard.

    I hope your doctor will appreciate your need for an in-person meeting when you speak with her (I still think she can videoconference even if she's at home...for goodness sake, the technology exists). Regardless, how and what you desire as your care is what's most important in the end. Here's a quote I heard from yesterday which I think applies, "A good decision is one that feels right for me." So regardless of what the healthcare provider says, what you want is what is the most important thing. Keep the strong will going!

    Also, I hope you are continue to heal more and more each day! 




  • 18.  RE: Teal Thursday - May 2025

    Posted 20 hours ago

    What a great idea. Alwayslearning! You always feel so appreciative of their skills, but also their care and friendliness.  I have yet, since the fall of 2019 when I became an unwilling member of the club who visits the Bliss Murphy Cancer Centre in St. John's (NL), come across anyone who has been anything but warm and kind and patient, with my questions and concerns.  I consider them all angels at every level of responsibility.  I know the Covid pandemic set health systems back globally and they have yet to catch up, but so far I've managed not to fall between the cracks with ours. 




  • 19.  RE: Teal Thursday - May 2025

    Posted 18 hours ago

    Good afternoon Sisters!  I'm calling today "Thankful Teal Thursday". One year ago today I had my last (fingers crossed) round of chemotherapy!  Like@LeslieA and@Alwayslearning I also took gifts and cards that I had made to my care providers.  For the kind chemo nurses I had a sign made for them.  May 8/2024 I banged the gong and gave the nurses the sign.  




  • 20.  RE: Teal Thursday - May 2025

    Posted 14 hours ago

    Congratulations@JoanEG. Great pics and love the quote. May your health do nothing but continue in a positive trajectory!!




  • 21.  RE: Teal Thursday - May 2025

    Posted 14 hours ago

    Thank you! 🫶




  • 22.  RE: Teal Thursday - May 2025

    Posted an hour ago

    @JoanEG   So happy for you celebrating one year from ringing that gong!  What a day to celebrate indeed.  You have been feeling great by your posts and all you have been doing inside and out for work. Keep it up!  You are amazing!




  • 23.  RE: Teal Thursday - May 2025

    Posted an hour ago

    @Strongwoman Thank you.  I hope you are doing well. 🩵




  • 24.  RE: Teal Thursday - May 2025

    Posted 18 hours ago

    Yes a videoconference could work for me if that's the only option. I met with my GP and a locum doctor IN PERSON this week & they gave me some reasonable time to chat about my health. What pleased me was seeing this particular locum doctor who saw me last October when I was sick with cancer symptoms but not yet diagnosed. It was a full circle moment to have both doctors see me now, feeling & looking much better! 




  • 25.  RE: Teal Thursday - May 2025

    Posted 18 hours ago

    That's good to hear@LeslieA .  I'm glad you got to have a good chat with your GP and the locum you saw previously!  I am so fortunate that my relationship with my GP includes her just popping in for tea or answering questions that I text her.  She actually complains that I avoid in person office visits, lol.  I had a telephone appointment with my oncologist this morning but everything is so routine now, thank goodness, that it only lasted about 5 minutes.  I will have my next telephone appointment with her in 2 months unless something changes.  I will also have my 6 month CT scan in July.




  • 26.  RE: Teal Thursday - May 2025

    Posted 17 hours ago
    Hello sisters ! I am glad the hear that Leslie has made some closer communications. This is not a time to feel like you are alone in rough seas. My visits have been stretched out to 3 months with my oncologist, and doing bloodwork once a month. The pharmacy in Kingston who send my meds have already been in touch for the next delivery, showing me that I am on their radar too. I have had close scrutiny and lots of visits when concerns arose  but now basic monitoring unless I have a concern. I can reach the clinic at any time. I am fortunate to live closer to my clinic, as that certainly affects how often you want to make the trip. Sadly, the lack of drs, makes schedules full. My first visit to the Cancer Clinic was an eye opener, as to how many people are experiencing this scourge in some form. Good news this week via my family doctor, who promptly shared the CT results from last week. Things are stable, and no evidence of spread. There are a couple of notes I will ask about when I do see my oncologist in June. 
    Thankful for all the caregivers, and thankful to have you all to share our good news and concerns with.
    Have a great weekend !



    Sent from my Galaxy






  • 27.  RE: Teal Thursday - May 2025

    Posted 14 hours ago

    Happy World Ovarian Cancer Day to everybody! I hope that the next drug that cures us all is just around the corner. Never give up!




  • 28.  RE: Teal Thursday - May 2025

    Posted 14 hours ago

    @Tanja …I'll toast to that!! 🍾🩵

    We. Are. Warriors. 




  • 29.  RE: Teal Thursday - May 2025

    Posted an hour ago

    @Tanja   Yes. Happy World Ovarian Cancer Day to everyone!  I, too, hope they keep researching and find that drug, trial or something that will help one of our types and finds us a cure.  One never knows when that day will come but we all know they are working diligently in trying to find something for us. Fingers crossed they continue to work as hard as ever and that day is here sooner than we think. 

    Take care and have a wonderful weekend!




  • 30.  RE: Teal Thursday - May 2025

    Posted 14 hours ago

    That is great news @lbarr72

    It will make the weekend that much sweeter!!




  • 31.  RE: Teal Thursday - May 2025

    Posted an hour ago

    @lbarr72  That is wonderful news that there is stability and no evidence of spread. That is great news going into the weekend with. Thank you for sharing that with us.  It is nice to hear both the good and bad news on here. So nice when it is good news.  Keep up the good work and enjoy the weekend!




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