English Community

 View Only

Log in or create an account to engage on OVdialogue. 

Expand all | Collapse all

Teal Thursday - June & July 2025

  • 1.  Teal Thursday - June & July 2025

    Posted 06-05-2025 12:04

    Hi everyone - I hope you are enjoying a wonderful day! 

    Looking forward to having you join the Teal Thursday chats for June & July by posting below. If you have any questions please let me know. 

    All the best!



  • 2.  RE: Teal Thursday - June & July 2025

    Posted 06-06-2025 08:42

    Hi everyone. Sorry I missed Thursday. I'm actually relaxing in Bermuda. My hubby & I decided we deserved some R & R after the past year. ☀️
    I hope the weather is sunny & warm wherever you are and you are treating yourselves with kindness. 




  • 3.  RE: Teal Thursday - June & July 2025

    Posted 06-06-2025 08:51

    Enjoy ☺️ 




  • 4.  RE: Teal Thursday - June & July 2025

    Posted 06-07-2025 09:35
    Wonderful! Enjoy😎
    Sent from my iPad




  • 5.  RE: Teal Thursday - June & July 2025

    Posted 06-25-2025 22:32

    Wow, it looks amazing there.  Did you manage to get to a beach with pink sand?  It's one of the things I've been wanting to do - go to a place to put my toes in pink sand and I understand Bermuda and Bahamas have pink sand!
    The currency is based on USD right?
    Hope you had a superb vacation!




  • 6.  RE: Teal Thursday - June & July 2025

    Posted 06-26-2025 08:35

    Hi@DiamondGoddessYYC we did not go to the beach but we did stop at a roadside to look at it. It was very pretty. We learned that it is illegal to remove pink sand from Bermuda. That was interesting to know. There is a designer in Hamilton that makes beautiful jewelry using the pink sand. She has been approved by their government to use it that way so I bought a bracelet. We even got to see her design process. It was cool. 
    Yes their dollar is tied to the USD which you could use freely on all purchases  




  • 7.  RE: Teal Thursday - June & July 2025

    Posted 06-27-2025 17:00

    Oh wow, illegal!  Good to know.  I'm glad it's OK to have the bracelet-maker - do you mind showing me what it looks like?
    Thanks @Alwayslearning!




  • 8.  RE: Teal Thursday - June & July 2025

    Posted 06-27-2025 17:25

    Hi @DiamondGoddessYYC I've tried to post this three times via my phone and it's being temperamental. This is a pic of the bracelet from her website. Hope it loaded finally. 

    Bracelet

     




  • 9.  RE: Teal Thursday - June & July 2025

    Posted 06-27-2025 17:51

    Oh, that's nice @Alwayslearning!  Hibiscus bracelet. It's lovely :) 




  • 10.  RE: Teal Thursday - June & July 2025

    Posted 06-06-2025 08:58

    Sorry I couldn't join the live chat yesterday. 
     I did want to share some good news from my follow up with my Oncologist on Wednesday after my last CT scan in May All clear 🙏🩵

    ca125 is 8 

     I am feeling blessed and oh so grateful. Will  try not to think about the next scan in three months




  • 11.  RE: Teal Thursday - June & July 2025

    Posted 06-06-2025 09:16

    @asatino that is fantastic news!! Congratulations. Try to live in the present with the good news vs thinking ahead. You deserve it. 




  • 12.  RE: Teal Thursday - June & July 2025

    Posted 06-07-2025 08:06
    Such great news!



    Sent from my Galaxy






  • 13.  RE: Teal Thursday - June & July 2025

    Posted 06-07-2025 09:37
    Wow! That is wonderful news. Enjoy the now and try not to focus on the future, which none of us know, anyways. So great to hear good news😊
    Sent from my iPad




  • 14.  RE: Teal Thursday - June & July 2025

    Posted 06-19-2025 13:29

    Hi everyone!! Just a quick update. Finished cycle 2 of my trial. So far, no new side effects. The drug is causing fatigue which dominoes to lack of energy and diminished mental state. Just not feeling myself. Dr referred me to Palliative Care unit at PMH and I have a virtual appointment with them today. Not sure how they can help…but anxious to find out if they can snap me out of these doldrums 🤣 🤞. 




  • 15.  RE: Teal Thursday - June & July 2025

    Posted 06-19-2025 14:04

    Hi @GloHo...glad to hear the trial is continuing with no new side effects although sounds like fatigue is your enemy. Be kind to yourself. You have, and continue to be going through a lot. I'm glad you could get the PMH Palliative appointment so quickly and that it can be done virtually. I know their role is to provide support for symptom management including mental/physical/spiritual and help with quality of life. You are so good at advocating for yourself so I'm hopeful they can help you. Sending you a virtual hug and some smiles.




  • 16.  RE: Teal Thursday - June & July 2025

    Posted 06-20-2025 14:33

    Hopefully they have something to offer you for the doldrums as you call it.  There are generally lots of options out there.  Glad the clinical trial seems to be going well.  Sending 🤗 




  • 17.  RE: Teal Thursday - June & July 2025

    Posted 06-24-2025 11:52

    Talked to the Palliative Care Dr. 

    He went through my bloodwork and said he couldn't see anything that could be causing my issues. No kidding! I'm sure my oncologist would have caught something if it was in my bloodwork!!

    Anyway…he mentioned a couple of drugs and told me to think about it and then talk to my GP since she's closer and part of the palliative care team in town.

    Ritalin to promote wakefulness for a few hours. 

    An antidepressant - weight gain and fatigue could be side effects. 

    He also mentioned sleeping pills. Although that's not really an issue for me, catching another hour of sleep might be a good idea. So, I am considering that.

    He never asked about exercise!!…often suggested to improve fatigue symptoms. 

    He is going to send a note to my GP so I guess I'll follow up with her.

    We are also getting a Hospice in town that should be opening this summer. I am definitely going to connect with them.

    I don't know what I was expecting but that wasn't it!! I didn't feel that he understood cancer and cancer drug fatigue. I guess I was expecting a definitive "this will help." No magic pill for me 🤣🤣🤣.

    I guess I'll just keep on truckin' the best I can. 

    Since originally writing this post, I have started feeling better. I am in a better place mentally. I have started taking my supplements consistently! I am still fatigued but I think it may be improving a bit. I do not want to take anything unless someone can assure me it will help me. Right now, I'm putting this whole thing on hold. 




  • 18.  RE: Teal Thursday - June & July 2025

    Posted 06-24-2025 15:22

    Hi @GloHo I'm so sorry you didn't have the positive experience you were hoping for from the call. Perhaps he's more used to patients that are looking for a 'chemical' way to manage. I know so many people that get overwhelmed even thinking of doing exercise so perhaps that was why he didn't even go there. Still, I can definitely sense your disappointment and I'm sorry for that. Can you request another appointment but with another doctor? I know I have been unimpressed with doctors throughout my life and via my GP have had 2nd referrals done. I know you are a very strong advocate for yourself so will do what's best for you. 

    I am thrilled to hear you are starting to feel better however so thank you for the follow-up post to your initial message to us. Keep taking good care of yourself.




  • 19.  RE: Teal Thursday - June & July 2025

    Posted 06-24-2025 15:44

    @Alwayslearning

    Thanks. I'm quite happy going to my GP. She is a palliative team member here and has been staying on top of what's going on with me. She will be a familiar face and someone I trust. It's just that I tend to drag my heels when I have to make yet another Dr appt!! 🤣 I will probably not do it immediately but wait to try to sync it up with the hospice opening. 




  • 20.  RE: Teal Thursday - June & July 2025

    Posted 06-28-2025 08:49

    Sorry your experience was not more positive.

    Regarding the fatigue. I am curious if anyone has looks at 

    https://cancerfatigueservices.us22.list-manage.com/track/click?u=90d00eee2ddbc14d0448f1c56&id=3260b13074&e=b7a680e529

    I just registered for an online consultation because I am open to all options. Fatigue is definitely an issue for me as well




  • 21.  RE: Teal Thursday - June & July 2025

    Posted 06-20-2025 12:41

    Hi GloHo,

    Hopefully the Palliative Care Unit had something to offer you yesterday.  Fatigue is always hard and affects my mental health and sense of wellness too.  Personally, I have not slept this well (or this long) since I was a teenager.  It is the fatigue that lasts all day and makes it hard to do the things you want to do that makes it hard.  Take care and I hope you find something that is helpful to you😊




  • 22.  RE: Teal Thursday - June & July 2025

    Posted 06-19-2025 14:15

    Hi all...sorry I missed the 1pm timeframe for hopping on. I was out grocery shopping and a crazy storm blew in so I hunkered down in the store until it eased up. The sky was almost black and I didn't want to be out on the roads during that. I was in Tillsonburg and my route home is through farmland so not much shelter there. I'm safely home now waiting for the storm to pass our way.

    I registered this week for the "Ovarian Cancer Canada 2025 Walk of Hope" on September 7th. I'm going to walk at the Burlington location again. Is anyone else registered to walk somewhere in Canada? I've sent my email out to drum up members for my team and seek donations. It's funny because last year when I was diagnosed and I sent my note out the funds rolled in immediately. This year, it feels like people may think 'all is well' with me - donations are slow. There are still a few months to go so I'm not done yet with my fundraising efforts however I will have to impart that the funding is lean for OC. Additionally, it's a chronic disease and Teal Sisters are never fully out of the woods. I did put some recurrence and survival statistics in my initial note. I'll be reinforcing those in my follow-ups.  

    It's otherwise a grey day here. Sounds like we are in for some crazy hot weather in the coming days. Is it hot where you are? Guess summer has finally arrived.

    I'm off to do some weights and hop on the treadmill. My weight has been rising quite a bit. Time to wrestle that beast!!! 

    Stay strong Teal Sisters. Looking forward to hearing from folks.




  • 23.  RE: Teal Thursday - June & July 2025

    Posted 06-20-2025 14:36

    Good for you, I don't know I'd be ready for the September walk just yet.  Let me know if you have a webpage set up for donations.  I grew up in Burlington, my mom still lives there.




  • 24.  RE: Teal Thursday - June & July 2025

    Posted 06-20-2025 14:57

    Hi @Meinvan my hubby is also born & raised Burlington. My team is, "Mel's Cure Crusaders" at the Halton Region (Burlington site). 




  • 25.  RE: Teal Thursday - June & July 2025

    Posted 06-22-2025 00:03

    Thank you.  Done. Good luck




  • 26.  RE: Teal Thursday - June & July 2025

    Posted 06-22-2025 00:02

    I'll try and join if I remember and can figure out the zoom thing.




  • 27.  RE: Teal Thursday - June & July 2025

    Posted 06-26-2025 16:50

    Happy Thursday everyone. Sorry for the delayed 'jump on' but I'm tending to a sick puppy. Well she's not actually a puppy. She's a 14 year old labradoodle who is slowly losing her hearing, eyesight etc. I think the extreme heat, even with the A/C on has been impacting her as she's not been herself. Strange breathing etc. however she seems happy and not in any distress. We are just keeping a watchful eye on her. 

    How is everyone else doing? I know many folks have been keeping us Teal Sisters updated with their journey's. Is everyone suffering from heat wherever you are and keeping cool? We desperately need some rain here. We keep hearing 'it's coming' but then it never does. We do have a lovely breeze here today on the shores of Lake Erie but the sky looks moody so perhaps it will rain later.

    I'm counting down to my next bloodwork/oncologist visit which is next week. Plus I have my annual physical with my GP. Might as well do it all at the same time. I'm hoping as we all do, for positive feedback from both. I did have my bone density done a few weeks ago and it came back as unchanged from last year (I have osteopenia which is one step before osteoporosis but my measures held steady so that's a good thing). It means I need to keep my weights up as well as my calcium and Vit D but I don't have to go onto any daily meds (which I'm trying to avoid). It is amazing how the things that were primary areas of focus in our lives take a back seat when you've had a cancer diagnosis. 

    I know it's not an official long weekend since Canada Day is on the Tuesday but I'll say happy Canada Day long weekend regardless. We have family coming to us as we are on the lake and it's a relief from the sweltering city heat. Stay cool everyone and keep fighting the good fight. 

     




  • 28.  RE: Teal Thursday - June & July 2025

    Posted 06-27-2025 18:00

    Hi
    Best of luck to you @Alwayslearning for your appointment next week!

    Happy Canada Day!

    I have a radiation consult appointment July 8 and I searched on here for others who've had radiation for lymph nodes - my recurrence is in para-aortic lymph nodes so it's very close to aorta and kidney vessels (so no surgical option).  I also have Clear Cell Ovarian Cancer Stage 3A1 and I find there are not too many people on this site with that diagnosis.  I was told it's rare - like 10% of the entire population (not just in Canada).  I did find one person replied to me and suggested asking about immune therapy, so I've left a message with the oncology department at ACCCC for someone to call me about that - if it's an option for me here in Calgary.  Wish me luck!




  • 29.  RE: Teal Thursday - June & July 2025

    Posted 06-28-2025 06:17

    @DiamondGoddessYYC thank you and wishing you nothing but luck too 🤞




  • 30.  RE: Teal Thursday - June & July 2025

    Posted 06-28-2025 08:45

    Good luck and positive energy coming your way. 
    let us know how it goes🙏🩵




  • 31.  RE: Teal Thursday - June & July 2025

    Posted 07-03-2025 20:40

    Hello Teal Sisters. Apologies for not hopping on at 1pm today but I was at PMH in Toronto for my oncologist appointment. So far my bloodwork came back 'all good' so I can continue into month 11 of Lynparza. I'm still waiting for the dreaded CA-125 result which I won't get until tomorrow morning so I'll be on pins and needles until that comes in.

    I'm going to babysit by 2 year old granddaughter tomorrow. I'm sooooooooooooo excited. 

    What happy thing is going on in all of your lives? I know we all have many struggles which I don't downplay at all. They are real. I do know however that there are moments of sunshine in between. Let us know what has put a smile on your face over the past few weeks. I'd love to hear the things that have lifted your spirits, no matter how small, simple or basic it might have been. 




  • 32.  RE: Teal Thursday - June & July 2025

    Posted 07-04-2025 06:26
    I have been in Ontario for a week , first time away visiting family since my diagnosis in 2020.   It was a little scary to leave my cocoon. So happy I did!



    Sent from my Galaxy






  • 33.  RE: Teal Thursday - June & July 2025

    Posted 07-04-2025 18:55

    Happy for you @NovaScotiagirl! Enjoy your family visit!  Nothing more important than maintaining our relationships and connections 




  • 34.  RE: Teal Thursday - June & July 2025

    Posted 07-04-2025 19:58
    Thank you!  I am .



    Sent from my Galaxy






  • 35.  RE: Teal Thursday - June & July 2025

    Posted 07-05-2025 07:40

    Good for you @NovaScotiagirl

    i hope you are having an amazing time!!'




  • 36.  RE: Teal Thursday - June & July 2025

    Posted 07-04-2025 14:29
    After a clear CT and good bloodwork, I am off on a travel adventure ! My olaparib may be causing some new effects, as my ankles are a bit swollen and red blotches decorate my lower legs, but my husband and I drove to Kingston, then train to Ottawa, connecting with old friends along the way. In Ottawa we boarded the Canadian Empress, a small cruise boat that took us down the Ottawa River and the St Lawrence back to Kingston over 6 days. It was filled with a lovely collection of seniors, who provided great conversation and shared some amazing life experiences. The food, views and stops along the way are all top quality. I highly  recommend it ! ( no i don't get any commission !!)
    Now we are on the road to Nova Scotia to see family. It is the best summer since Cancer arrived 2 years ago now. 
    I hope you all can have some special times this summer despite the worries we carry. Lay down the burden when you can, even if briefly !!
    A round of hugs to all !! 




    Sent from my Galaxy






  • 37.  RE: Teal Thursday - June & July 2025

    Posted 07-04-2025 19:02

    I agree @lbarr72 - it's nice to "lay down the burden" to take advantage of all the FUN things we can partake in for Summer!

    How was the cruise?  Is it a smooth ride?  Looks like it would be awesome.  I want to book a Caribbean cruise in the future or any type of escape where someone else cooks for me! 




  • 38.  RE: Teal Thursday - June & July 2025

    Posted 07-05-2025 07:48

    @lbarr72 this cruise looks so cool. I actually googled it because I was so curious. Such a cool way to explore that region in Canada. I'm adding this to my travel adventure list. Enjoy your visit to NS. I love the Maritime provinces and what a great time of year to be there. 

    I hope you olaparib side effects are settling down. The strange things we have to endure right?!

    I could feel the excitement and positivity radiating through your post. I hope the rest of your travels bring you much joy and laughter. It is after all, the best medicine. 




  • 39.  RE: Teal Thursday - June & July 2025

    Posted 07-17-2025 12:51

    Hello all and happy Thursday! I'm sitting on my deck at the cottage near Lake Erie on a blustery but welcome day. The humidity has been reduced considerably which I can tell based on the fact that I no longer look like orphan Annie (teehee). Post my chemo as my hair grew back it returned to the same colour however my normally straight hair is now a mass of curls. It's been a year since I completed my chemo (actually almost to the day) and the curls do not seem to be abating. So I guess I'm now a curly haired woman! 

    We celebrated my 60th birthday yesterday. It was low key with just a small gathering of friends/family as I really didn't want a big party or hoopla. The last year has been a lot and so I just wanted to sail into my 60's in quiet style. There was a euchre tournament (for those who play the game) which I won so it was fun.

    What is everyone up to this Thursday? I know there are some in surgery today whom we are sending all our love and energy to. There are others with upcoming test and or the start of a clinical trial. Plus we've welcomed new folks to the site. I hope wherever you are there is one thing that makes you smile today. 




  • 40.  RE: Teal Thursday - June & July 2025

    Posted 07-17-2025 13:07
    Sitting at our son's house in Nova Scotia woods, at the top of the south mountain of the Annapolis Valley, near Gaspareau. Sunny and hot, but rain coming tonight and tomorrow to break up the hot humid weather of this week.
    Just me and Bennie, their dog here right now, so I have been painting some local scenery for cards. Heading out soon to see the new little cabin on the lake nearby. We are hoping to be able to stay there for 1-2 nights before we start the long drive home on Tuesday. Although I am a bit slower these days, it's best summer in 2 years !! Lots of time with 4 of our grown up grandkids and kids. 
    Happy Birthday @AlwaysLearning ! Every birthday is special and glad you got to celebrate 60 !! Love euchre too...so glad it was your winning day !
    I hope everyone can find at least some small thing to celebrate today ! A power to all those in treatment today !



    Sent from my Galaxy






  • 41.  RE: Teal Thursday - June & July 2025

    Posted 07-17-2025 15:16
    Happy Birthday @Alwayslearning glad it is peaceful and fun.  @lbarr72 I am happy you had a lovely visit in my beautiful province, I have just returned home from a lovely lunch with my best friends and am peaceful within my soul today.  Good luck to those in surgery today,  wishing healing for all. 



    Sent from my Galaxy






  • 42.  RE: Teal Thursday - June & July 2025

    Posted 07-17-2025 13:41

    @Alwayslearning

    Happy Birthday! 🦀

    My birthday is today!  67 and 7 birthdays since diagnosis! Going out to dinner with hubby. A new restaurant in town so thought we'd give it a try  

    My updates…

    I was declined for Elahere!! Too many treatments. They have accepted some patients who are one over the three prior treatment criteria. Bummer.

    I thought I found another trial but the Ovarian cohort is closed in both centres I could attend! Another bummer.

    So, that leaves me with Arc101. I start next week. Hoping the t-cell aspect of the drug works for me! We'll see. So, more journaling of my experience to come. 

    Just making the best of it and hoping something will kick in 🤣.

    It definitely is a relief to have an overcast, breezy day today.




  • 43.  RE: Teal Thursday - June & July 2025

    Posted 07-17-2025 13:49

    Happy Birthday @GloHo 🎂... 7 birthday's since diagnosis. You are an inspiration!!! Enjoy dinner at the new restaurant. Splurge!!!

    I'm sorry you were declined for Elahere. I'll admit I don't know much about it but I know it was something of interest to you.

    I'm hoping the Arc101 trial will be the one for you!!! I've heard a lot of positive things about t-cell therapy for other cancers. You do the best journaling of anyone I know so whatever you capture will be epic.

    Enjoy your breezy birthday!




  • 44.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @Alwayslearning

    Thanks for the birthday wishes! Definitely a milestone.

    Happy Birthday to you, too!! A little late...but I've been thinking about you.

    -------------------------------------------



  • 45.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @GloHo how is Arc101 going??

    -------------------------------------------



  • 46.  RE: Teal Thursday - June & July 2025

    Posted 9 days ago

    @Alwayslearning

    Hello…I'm back! My schedule has been so crazy and the drugs make me dopey (yes, I'm blaming the drugs!) that I just haven't been able to focus. I've done a lot of catching up today but me thinks my brain is starting to protest now 😂. 

    -------------------------------------------



  • 47.  RE: Teal Thursday - June & July 2025

    Posted 8 days ago

    @GloHo you are back indeed! From everything I saw you had posted, you are anything but dopey 😁

    You've shared some amazing information. Thank you. I hope you are doing ok and are taking the time to rest. You've been through a LOT. I was exhausted reading it all!!!!

    -------------------------------------------



  • 48.  RE: Teal Thursday - June & July 2025

    Posted 07-17-2025 14:27
    Happy birthday GloHo and happy belated birthday to you, alwayslearning.
    Wonderful that you have gotten to your cottage, Alwayslearning. I love a day like today. Somehow it reminds me of childhood. Sounds like you have had a really nice holiday, lbarr. That is wonderful.
    That is too bad about the elahare, GloHo. I have no doubt that you will make the best of whatever treatment is offered to you. All your efforts have been an inspiration to me, for sure. I did get to Princess Margaret last week, where they took some blood and had me sign some paperwork. They do not currently have anything to offer me but I will have a virtual appointment with the oncologist again in September. What an amazing place that is!
    I have been reading a very good book that I came across on the ORCA website. It is a true story called, “Almost a Princess: My life as a Two Time Cancer Survivor, by Jane Loeb Rubin. She tells her story with humour and hope. I am really enjoying it.
    Other than that, I have a CT scan tomorrow and an appointment on Wednesday of next week with the oncologist to learn results. Dog sitting for my son this weekend and then for my daughter next weekend.
    Hope everyone has a good weekend 😊😊.

    Sheryl
    Sent from my iPad




  • 49.  RE: Teal Thursday - June & July 2025

    Posted 07-18-2025 01:03

    Happy Birthday@Alwayslearning and@GloHo!  
    I have a houseful right now.  My daughter and her hubby along with my grandson and his fiancée are here from Saskatchewan so we have been very much in the go.  I have a CT scan coming up on Monday and as always the scanxiety it rearing its head.  I am feeling reallly good and one year in on Olaparib I have no side effects other than a bit of stiff/achy muscles when I first get up.  
    I miss@Strongwoman and hope she is doing OK.




  • 50.  RE: Teal Thursday - June & July 2025

    Posted 07-18-2025 12:06

    @JoanEG good luck with the scan. As you are feeling good on the Olaparib I'm hoping it's all good news on the results. 
    Feel free to send@Strongwoman a private note. I'm sure she'd love to hear from you! 




  • 51.  RE: Teal Thursday - June & July 2025

    Posted 07-18-2025 12:13

    Thanks@Alwayslearning




  • 52.  RE: Teal Thursday - June & July 2025

    Posted 26 days ago

    Hello @JoanEG

    I am hear and miss you too.  Just not online like I used to be is all. 

    How did the results of your scan go? Do you care to share? I sent you a private message and have also responded to some other ladies in the group this morning. That is where you will find my updates. It seems like you are always on the go these days and is so good to see.  Keep on doing it and creating memories.

    I am doing ok most days and still struggle with eating daily. I do miss coming online but have to go to my son's room and use his computer to reply to the messages. Some days I just find all that too daunting and am lazy. I try to journal while my oldest one sleeps in the morning. That way if I have any tears he doesn't see them and I get my journaling done without interruption. My parents are coming from out of town this Friday and coming for a visit. They try to do this once a month which is nice. There is a cheese place by them so we put our cheese order in for when they come too. Lots of old cheese that is super yummy and less expensive than the grocery store. Plus I get to see them in person.

    My favourite outing is to a place called the Boathouse.  It is a tea place and I have their tea and scone for breakie there. It comes with jam and clotted cream plus whatever tea you want for $7.  I am meeting a friend there next week. It all agrees with my tummy which is even better. Plus it gets me out of the house for a couple of hours. It's funny cuz our old neighbour and I will go there to meet and then her boyfriend and I will go to Timmies for a tea and a doughnut to meet. He buys some of that old cheese when my parents come down and doesn't share it.  I just laugh cuz it's funny that I meet with them individually but is nice cuz the conversation is always different. 

    Anyhow I am going to get going and make my bed and get dressed for the day. Time to move a little before I don't want to do anything. Will have to go for a walk soon to find some kind of protein for dinner for them so that the oldest can bbq it up before he goes to work today. That is all that is on my list today or "to do's".  My hand is starting to ache a little from typing too so best to stop soon. I have two more weeks and the splint comes off and hopefully that is it! Can't wait to not wrap it on a daily basis and use it as normal.

    My skin is becoming thin too so when I scratch myself I am leaving marks on my arms mainly.  I feel so old when I look at it. Silliness.

    You have yourself a good day and we will chat soon enough. Keep up what you are doing and keep us in the loop. Take care!




  • 53.  RE: Teal Thursday - June & July 2025

    Posted 26 days ago

    Good morning@Strongwoman,

    I was so happy to get up this morning and read your message!  My daughter is still here from Saskatoon.  She has been here since June 27th but will be leaving on July 30th.  She is constantly on the go and of course it means lots of other family coming and going so my routines have pretty much gone out the window.  Tomorrow we have a birthday dinner for my oldest great grandson who is turning 11.  It will be here at my house as I have the most room for everyone.  I'm still trying to figure out how I got to be old enough to have an 11 year old GREAT grandson!!  I have five great grands now and although I love them all dearly this guy has a special place in my heart. For his birthday I paid for him to go to a BC Lions/Sask Rough Riders game last Saturday.  He is a die hard Eough Riders fan.

    it sounds like you are also keeping busy and doing a lot in spite of the splint on your hand.  As for the skin issues… ugh.   I am always covered in purple splotches or I tear my skin with the slightest bump one of the blessings of my old age and Olaparib.  However, I will take that over the alternative!  I don't have my scan results yet but hopefully I will hear today and I will definitely share with the group.

    Pic is of my daughter, granddaughter and great grandson at the football game.




  • 54.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    Good morning 

    We all have that 'special' person in our life that we enjoy and like to spoil that little bit more. It brings smiles to our faces too.  Great pic and looks like a good time was had by all! 

    I will await you posting your results too. If you need time to digest them, make sure you do. You come first!

    I had a crappy sleep and was up more than I was down. A nap is definitely in my future today. Maybe some CBD too to help with the low back pain I have today for some reason. Kidneys acting up again? Who knows. All I know is that I was doing my best to let hubby sleep as he is so busy at work lately.

    Any plans for the weekend?  We don't and it is supposed to be stupid hot again so hope we aren't doing much. Finished my book yesterday and started a new one last night. Am now reading Emma by Jane Austen whom I have never read before. Next I will continue on with the Girl with the Dragon Tattoo series. May journal a bit today and then again maybe not we will see.

    Have to see what my body says about it all today.

    Well I am off to find your other message you sent and reply to it.

    You have yourself a wonderful day!




  • 55.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    Hi @Strongwoman I've read the "Girl with the Dragon Tattoo" series. It was excellent. Much better than the movies. I hope your body settles down soon.




  • 56.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @JoanEG

    Thanks for the birthday wishes. A milestone no matter how I look it!! 😀

    -------------------------------------------



  • 57.  RE: Teal Thursday - June & July 2025

    Posted 07-18-2025 12:02

    @sheryl good luck with the scan. Enjoy the dog sitting. I find doggies are very good for the soul. 




  • 58.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @sheryl

    Thanks for the birthday wishes!!

    -------------------------------------------



  • 59.  RE: Teal Thursday - June & July 2025

    Posted 07-18-2025 17:47

    Happy 67th Birthday @GloHo!!




  • 60.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    @GloHo happy belated birthday?  Hope you had a great day celebrating you!😘




  • 61.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @Meinvan

    Thanks for the birthday wishes. Had a nice dinner out with hubby!!

    -------------------------------------------



  • 62.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @DiamondGoddessYYC

    Thanks for the birthday wishes! 7 years since diagnosis...it's such a blessing.

    -------------------------------------------



  • 63.  RE: Teal Thursday - June & July 2025

    Posted 07-18-2025 17:45

    Happy 60th Birthday @Alwayslearning!!




  • 64.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    @Alwayslearning happy belated birthday to you!  Hope you got out and did something wonderful and special 😘




  • 65.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    Thank you @Meinvan!!




  • 66.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    Hello all and happy Thursday. I'm a little early today as I have to hop on a call in a bit. It's finally raining here. We are in Long Point which is on the shores of Lake Erie in Ontario. We are about 1.5 hours from London, Ontario for perspective. We REALLY need the rain as it's been so stinking dry & hot. I hope it lasts for a little while but we are getting a nice downpour so that's a positive. It's also helping to clean my very dirty car so I appreciate that.

    My stomach is very grouchy today. I had a glass of milk last night and while I'm not lactose intolerant, I haven't had one in a while and so I think my body may be rebelling. Or perhaps it was the slightly spicy shrimp I had for dinner. Who knows. The bathroom and I are BFF's today and it's likely a water and toast day for me! Thankfully I don't need to go anywhere this afternoon. We do have tickets for our local theatre in Port Dover tonight so I'm hoping my system will be calm by then. 

    I'm slightly impressed with myself as I have gotten into the gym the last three days in a row. Doing weights and at least 45 min's of walking. I live in a VERY flat area so my treadmill is helpful for creating incline (and extra sweat). I'm trying to get back into my full routine of 5 days a well. I know how important exercise is for all of us. Today is a stretch and foam rolling day which is probably good with my tummy troubles.

    I hope others are doing well today and there's a ray of sunshine in your locale. If you have a moment, drop an update to everyone. It's always nice to hear how Teal Sisters are doing and/or if any help/advise/counsel is needed. We are after all, a very knowledgeable group.

    Be well and be strong everyone!




  • 67.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago
    Happy Thursday everyone. We are on the final hour of our drive back from Nova Scotia to Lucan, Ontario. ( just north of London). It's the third day of driving as we split the drive into 3 parts  stopping in Riviere du Loup , Quebec  and at a friend's cottage near Brockville, ON. We shall be very glad to get out of the car !!
    My mind is ahead of me  as I think of what I must do when we land home ! Unload car, get groceries ( away a month), start some meal prep for company coming tomorrow..and see what my garden has for us. Oh  and turn on the AC, as the car is warning us that it is 34C outside !!
    Rain is forecast...and will hopefully end the humidity.
    Our Arts Group is running a market at the Ailsa Craig Highland Games on Saturday. Set up is tomorrow and our guests are coming to participate.
    I know some of you are recovering from treatments, and facing struggles. Sending love and energy. This is my best summer in 2 years, so I am savouring it and have some loving energy to share. 
    Do whatever you can to have some pleasant moments  as we don't seem to have guarantees. Hope continues as we fight on.

     



    Sent from my Galaxy






  • 68.  RE: Teal Thursday - June & July 2025

    Posted 25 days ago

    @lbarr72 I hope you are home safely. Small world. I went to university with someone from Lucan. Later name "VanGeel" if that means anything. 
    Enjoy the market on Saturday. It's great to hear you are having such a great summer. You clearly deserve it!!




  • 69.  RE: Teal Thursday - June & July 2025

    Posted 18 days ago

    Hi all. It's Thursday and we finally have rain here on the shores of Lake Erie. It's very welcomed including the rapid drop in temperature. I put on a jumpsuit today to run errands and was actually quite thrilled to be wearing something other than shorts and a tank top. I'm not a summer person (I LOVE THE FALL) so this crazy heat has not been my friend however I don't have to blow dry my hair, just sit outside and let it dry so that's a bonus!

    I can't believe it will be August tomorrow. We will have a full house here at our cottage (which is also where we live) for the long weekend. My son, his fiancee and granddaughter plus my in-laws will all be here. The weather is going to be sunny and hot again so we will have lots of beach time.

    How is everyone doing out there? How is the weather in your area? How is your summer going? 

    I'm headed for a workout in an hour. I'm loving our new Peloton treadmill. Looking forward to hearing from folks out there today.  

    -------------------------------------------



  • 70.  RE: Teal Thursday - June & July 2025

    Posted 18 days ago
    Hello All,
       I am spending part of the summer at our cottage on Hornby Island, a beautiful gulf island in BC. Hornby has always been a place of respite and healing for me over the years, and is particularly important for me this year. The cabin is a few yards from a sandy bay and I walk my golden retriever across the beach every morning. The weather has been pure sunshine this past week with more in the forecast. The temperature rarely gets past 24 C at the best of times, but this year has been warmer than usual. I have been swimming in the ocean and the water has been warm and inviting. I am cherishing these days of feeling well and trying to stay with these pleasant thoughts & feelings, rather than worry about what the future might bring. It isn't easy, as I am sure you understand. 
       I had my last infusion in early July and I am impatiently waiting for my hair to grow back. It is like a lawn of mowed grass at the moment. I have a wig that I named Trixie because she is short and sassy. A number of women have complimented me on my fantastic hair style and have said versions of, "How do you get your hair to do that? It is so nice," and I hesitate between thanking them or disclosing the secret that Trixie protects. Either way it is amusing to me.
       I hope that everyone has an opportunity to relax and enjoy their summer. 

    Warmest wishes,
    Leslie 

    This is a sunset from Hornby Island that I took the other day, 
    Inline image









  • 71.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago
      |   view attached

    Good morning@LeslieA It sounds like you are having a lovely time on Hornby.  Only enough it is one of the Gulf Islands I have never visited.

    All of my family from Saskatchewan have finally gone home and I am back to my peaceful existence. The last week of their visit was very busy with two of my great grandkids having birthdays.  I finally got a photo with all 5 of my great grandchildren (photo attached).  My daughter left on Tuesday and I have spent the last few days giving my house a good cleaning and getting things done I put on hold for the month they were here.  I'm looking forward to a quiet B.C. Day weekend!

    On the health front, I had a telephone appointment with my Dr. on Wednesday to go over my latest CT results and am happy to report all is well, no sign of any new disease and a slight decrease in the partial bowel blockage.  Always a relief to get a good report!

    Have a lovely weekend everyone!

    -------------------------------------------



  • 72.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @JoanEG what a beautiful photo. Your great grandchildren as soooooo cute. Also by the way, you don't look old enough to have great grandchildren!!!!

    Congratulations on the great CT scan results. 🙌 That is excellent and glad to hear about the reduction in the partial bowel blockage. That must give you a good sense of relief (I just realized the pun in there). 

    I hope you continue to enjoy this positive time in your healing journey. It is always deserved considering all we each go through.

    Hugs!

    -------------------------------------------



  • 73.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @Alwayslearning thank you!🫶

    -------------------------------------------



  • 74.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @JoanEG

    Look at the proud grandma!! What a beautiful pic!

    Great news on your CT results! Congrats! 

    -------------------------------------------



  • 75.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @JoanEG beautiful great grandkids.  How lucky are you!  Glad to hear your CT scan results were positive.

    -------------------------------------------



  • 76.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @Meinvan thank you!😊 

    -------------------------------------------



  • 77.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    Very glad to hear that you continue to be well Joan. Love the photo of you with your grandchildren. 

    Leslie 

    -------------------------------------------



  • 78.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @LeslieA thank you! ☺️ 

    -------------------------------------------



  • 79.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    Hi @LeslieA ... what a lovely looking spot. It definitely looks serene and tranquil. 

    Try to be patient with yourself on the hair regrowth. I did find that my eyebrows and eyelashes came back much quicker than I thought. As well, I had pretty darn straight hair and now have a mass of curls. I'm one year since I finished my 6-chemo's and it's still a mass of curls. The colour came back the same but the curls...that's another thing altogether. I am happy not to be drawing in eyebrows because I really sucked at it and I sense I had a perpetual look of confusion on my face 😂 Perhaps you will get a true "Trixie" look (I love that name by the way ... nice and sassy).

    Continue to be well on your healing journey. Sending hugs. 

    -------------------------------------------



  • 80.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @LeslieA

    What a beautifuly picture. I can see why this would be such a relaxing and healing location for you. Enjoy!

    -------------------------------------------



  • 81.  RE: Teal Thursday - June & July 2025

    Posted 17 days ago

    @LeslieA glad you are relaxing and enjoying the summer on the island.  So beautiful! Your hair will come back, I have had no chemo in 6 weeks now in between treatments my hair is starting to grow back, very minimal still and I can't tell what color it is currently, I was light brown and wavy curls before, I think I'm going to end up being totally grey/white and curly when it finally grows back.  I'll have to learn to embrace the grey, but that's ok a price I'm willing to pay to still be here.  Before you know it your hair will be popping up and growing back before you know it!

    -------------------------------------------



Log in or create an account to engage on OVdialogue.