@Alwayslearning Thank you for the reassurance. I know they have to inform us of the possibility but it doesn't make it easy when you are already scared of having surgery. Yes she said a stoma nurse would mark and area pre op on me. I'm just praying it won't be needed. I'm not sure how I'll feel if I come out of the OR with a bowel resection and ostomy too.
Original Message:
Sent: 07-05-2025 08:04
From: Alwayslearning
Subject: Surgery
Hi@Meinvan
Any uncertainty around what will happen during the surgery will cause anxiety, as if the surgery itself isn't enough to do that. If it helps at all, I too had to provide consent for a possible stoma as I had 12+ tumour and/or deposit sites through my abdomen so they weren't sure if a stoma would be done or not. They even had me go to a stoma clinic in advance, put an X on my abdomen to denote where it would be and sent me away with a kit on how to manage post surgery. So I 100% understand the anxiety the conversation has caused.
On the flip side, my understanding is that they try to prepare you for "everything" that could happen even if there a higher probability it won't. I know that's not the greatest reassurance but I hope it eases your mind a bit.
Also you are never bringing anyone down by sharing your experiences and thoughts. That's what this forum is for. We are here for each other. Sending you virtual hugs.
Original Message:
Sent: 07-04-2025 21:50
From: Meinvan
Subject: Surgery
Evening ladies,
Well my surgery is approaching in 13 days, I'm nervous of course. My surgeon called today to see how I'm feeling and doing as I didn't see her at my surgical consult the other week as she was away. Today she had to ask me to consent to the possibility of having to do a bowel resection and stoma during surgery. She said she is basing this on what she saw back in April when she did my Lap, so I guess the peritoneal deposits were seen everywhere including down by my rectum. I know on my most recent ct scan/MRI there was mention of a "cyst" near my rectum. So not sure if that is cancerous or not and that's what she is talking about or if there were cancerous looking deposits on my colon that she saw? She is hoping because I have responded well to the chemo so far that it's working down there too. Either way this kind of brought me down today thinking there could be more cancer there that I didn't know about. I know it was in my peritoneum but on my recent scans it wasn't visualized…..maybe I was feeling too optimistic that the chemo was working well. Now I'm left worrying until I get out of surgery and know what I'm dealing with. Too stressful, when you don't need stress in your life. Being a nurse having ovarian cancer and a bowel resection have truly been some of my biggest fears because I have seen the horrible things that happen with both these diagnosis. And I always go to the worse case immediately……Anyways thanks for reading my worries, don't mean to bring anyone down. Just feel lost some days