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  • 1.  Seeking Your Feedback on behalf of Ontario Cancer Canada (OCC) - Question #2 of 4

    Posted 3 days ago

    Hello Teal Warriors,

    OCC is seeking your feedback regarding the impact of OVdialogue. Thank you for those that took the time to provide feedback to the first question. If you didn't get a chance, you can still provide your feedback to Question #1. It will be in the discussion feed. 

    The second question is below. Thank you in advance for your participation.

    Question #2: Can you describe a time when someone from your healthcare team took action as a result of information you learned and shared from an OVdialogue conversation?

    #OCCinfoandupdates



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  • 2.  RE: Seeking Your Feedback on behalf of Ontario Cancer Canada (OCC) - Question #2 of 4

    Posted yesterday

    In response to this question...at a recent CT scan for which I am pre-medicated due to a previous "reaction" to the contrast dye, I had another breakthrough reaction. At that time, the radiologist informed me that I could not, going forward, have CT scans without contrast. I was a bit shocked by this as the reaction was minor. I did challenge him as I said they could increase my pre-meds as a first approach (I was on 13 hour prior and then 1 hour prior protocol). I'd heard you could do 13 hour, 7 hour and 1 hour protocol to increase the level of prednisone in your system. I was told that this was NOT an approach followed in Ontario.

    I reached out to the Teal Warriors on this site to see if anyone else had experienced "allergic reactions" and what the pre-medication protocol was. I learned that a number of individuals, including some in Ontario had used the 13/7/1 premedication approach. In a recent discussion with my PMH medical team we discussed this and my team said that upon time for my next CT, we would revisit. 

    The information from my Teal Sisters helped me to engage with and advocate for myself with my medical team!

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