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Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

Hi @NovaScotiagirl. I'm glad to hear you are now done your chemo. I had to look up extravasation as I had no idea what that was. Sounds nasty for sure. Hopefully your body now has the time you've earned, to rest and recover. My fingers, toes etc. are crossed that this all worked. I want to believe that you were 4.5 years clear and that this round will kick your body back into NED mode. I'm thinking of you.

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

@NovaScotiagirl

Sorry to hear you had such a difficult time with chemo but you made it through the entire cycle…way to go!

At my recurrence in 2021, after 2 1/2 years NED, my oncologist told me that my OC is manageable but not curable (as@Tanja noted).

I have been "managing" my cancer after recurrence for over 3 years now. I am on my 8th line of treatment, including 3 clinical trials. The last clinical trial was Carbo+Taxol+RP-6306 (trial drug). I was surprised that I was able to participate in this trial since I am deemed platinum resistant. Unfortunately, the trial ended after 6 cycles. Fortunately, this combo worked very well for me. My CA125 came down 95% and my tumours decreased, overall, by 30%…for this trial, that is considered partial response. This allowed me to take a well-earned chemo holiday 😊. I go back for a CT mid-April and we will decide on the best course of action moving forward.

I ended up having a reaction to Carbo this last round. My oncologist sent me for an allergy test for both Carbo and Cisplatin. Both results were negative so I was able to continue with Carbo with modified pre-med dosing. They started my pre-meds three days before infusion and added a couple more drugs (same as@Tanja).

Hearing recurrence or progression is difficult. I take the time to deal with my emotions and then I buckle up, get my positive hat back on and get ready for the next treatment. This usually entails some research on drug combos and clinical trials. I never go to a move-forward appointment without some ideas of potential treatments available and I bombard my poor oncologist with questions!! Self-advocating is a must for me 🤣.

I have to say that I have been very fortunate to have been asymptomatic throughout my journey with manageable side effects. Quality of life has been good. I am currently playing drop-in pickleball once a week and am painting the main floor of our house!

Just wondering…How were your blood counts during chemo? Did your CA125 decrease? Have you had a CT or is that part of your follow up? How are you feeling overall?

Good grief…another loquacious response!! 🤣🤣.

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

@NovaScotiagirl

Sorry to hear you had such a difficult time with chemo but you made it through the entire cycle…way to go!

At my recurrence in 2021, after 2 1/2 years NED, my oncologist told me that my OC is manageable but not curable (as@Tanja noted).

I have been "managing" my cancer after recurrence for over 3 years now. I am on my 8th line of treatment, including 3 clinical trials. The last clinical trial was Carbo+Taxol+RP-6306 (trial drug). I was surprised that I was able to participate in this trial since I am deemed platinum resistant. Unfortunately, the trial ended after 6 cycles. Fortunately, this combo worked very well for me. My CA125 came down 95% and my tumours decreased, overall, by 30%…for this trial, that is considered partial response. This allowed me to take a well-earned chemo holiday 😊. I go back for a CT mid-April and we will decide on the best course of action moving forward.

I ended up having a reaction to Carbo this last round. My oncologist sent me for an allergy test for both Carbo and Cisplatin. Both results were negative so I was able to continue with Carbo with modified pre-med dosing. They started my pre-meds three days before infusion and added a couple more drugs (same as@Tanja).

Hearing recurrence or progression is difficult. I take the time to deal with my emotions and then I buckle up, get my positive hat back on and get ready for the next treatment. This usually entails some research on drug combos and clinical trials. I never go to a move-forward appointment without some ideas of potential treatments available and I bombard my poor oncologist with questions!! Self-advocating is a must for me 🤣.

I have to say that I have been very fortunate to have been asymptomatic throughout my journey with manageable side effects. Quality of life has been good. I am currently playing drop-in pickleball once a week and am painting the main floor of our house!

Just wondering…How were your blood counts during chemo? Did your CA125 decrease? Have you had a CT or is that part of your follow up? How are you feeling overall?

Good grief…another loquacious response!! 🤣🤣.

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

@NovaScotiagirl when you learn about the "new drugs" please share. I'm amazed at the info we learn from each other that sometimes are medical team are not privy too. Teal Sisters rock!!

@NovaScotiagirl

Sorry to hear you had such a difficult time with chemo but you made it through the entire cycle…way to go!

At my recurrence in 2021, after 2 1/2 years NED, my oncologist told me that my OC is manageable but not curable (as@Tanja noted).

I have been "managing" my cancer after recurrence for over 3 years now. I am on my 8th line of treatment, including 3 clinical trials. The last clinical trial was Carbo+Taxol+RP-6306 (trial drug). I was surprised that I was able to participate in this trial since I am deemed platinum resistant. Unfortunately, the trial ended after 6 cycles. Fortunately, this combo worked very well for me. My CA125 came down 95% and my tumours decreased, overall, by 30%…for this trial, that is considered partial response. This allowed me to take a well-earned chemo holiday 😊. I go back for a CT mid-April and we will decide on the best course of action moving forward.

I ended up having a reaction to Carbo this last round. My oncologist sent me for an allergy test for both Carbo and Cisplatin. Both results were negative so I was able to continue with Carbo with modified pre-med dosing. They started my pre-meds three days before infusion and added a couple more drugs (same as@Tanja).

Hearing recurrence or progression is difficult. I take the time to deal with my emotions and then I buckle up, get my positive hat back on and get ready for the next treatment. This usually entails some research on drug combos and clinical trials. I never go to a move-forward appointment without some ideas of potential treatments available and I bombard my poor oncologist with questions!! Self-advocating is a must for me 🤣.

I have to say that I have been very fortunate to have been asymptomatic throughout my journey with manageable side effects. Quality of life has been good. I am currently playing drop-in pickleball once a week and am painting the main floor of our house!

Just wondering…How were your blood counts during chemo? Did your CA125 decrease? Have you had a CT or is that part of your follow up? How are you feeling overall?

Good grief…another loquacious response!! 🤣🤣.

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.  

@NovaScotiagirl

Sorry to hear you had such a difficult time with chemo but you made it through the entire cycle…way to go!

At my recurrence in 2021, after 2 1/2 years NED, my oncologist told me that my OC is manageable but not curable (as@Tanja noted).

I have been "managing" my cancer after recurrence for over 3 years now. I am on my 8th line of treatment, including 3 clinical trials. The last clinical trial was Carbo+Taxol+RP-6306 (trial drug). I was surprised that I was able to participate in this trial since I am deemed platinum resistant. Unfortunately, the trial ended after 6 cycles. Fortunately, this combo worked very well for me. My CA125 came down 95% and my tumours decreased, overall, by 30%…for this trial, that is considered partial response. This allowed me to take a well-earned chemo holiday 😊. I go back for a CT mid-April and we will decide on the best course of action moving forward.

I ended up having a reaction to Carbo this last round. My oncologist sent me for an allergy test for both Carbo and Cisplatin. Both results were negative so I was able to continue with Carbo with modified pre-med dosing. They started my pre-meds three days before infusion and added a couple more drugs (same as@Tanja).

Hearing recurrence or progression is difficult. I take the time to deal with my emotions and then I buckle up, get my positive hat back on and get ready for the next treatment. This usually entails some research on drug combos and clinical trials. I never go to a move-forward appointment without some ideas of potential treatments available and I bombard my poor oncologist with questions!! Self-advocating is a must for me 🤣.

I have to say that I have been very fortunate to have been asymptomatic throughout my journey with manageable side effects. Quality of life has been good. I am currently playing drop-in pickleball once a week and am painting the main floor of our house!

Just wondering…How were your blood counts during chemo? Did your CA125 decrease? Have you had a CT or is that part of your follow up? How are you feeling overall?

Good grief…another loquacious response!! 🤣🤣.

Following up on my last post. I have now finished my last 6 chemo therapy infusions for my recent recurrence.   It was a hard go and I did react badly on the last one with an extravasation in the final moments of the iv.   IV which was quite nasty. Now i have to wait until mid April for my follow up.

I found it difficult to come to terms once I recurred as now it is become a forever life altering  chronic disease.  I was so hopeful that it was not going to come back at 4.5 yrs clear.   The course of action now is to wait until it becomes symptomatic  before any treatment is possible and I can no longer have the platinum based chemo drugs that worked so well.