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As a result of having to go through another biopsy for the trial I am screening for, I have been enrolled in three different genetics testing studies!!

I was so so confused because each person I saw on my visits mentioned another study so I didn't know which one I was actually being enrolled in 🤪. 

As it turns out I am enrolled in three different studies 

1. BIODIVA (again)
2. Octane
3. Marathon of Hope

I am still a bit confused but the more info I can get from these studies, the better!!

I believe BIODIVA is the umbrella study for the other two.

In addition, the BIODIVA study asks for any future tissue and fluids (ie, ascites, pleural) that I am being treated for.

I ran into a road block at my last biopsy because I could not donate a tissue sample simply because of geography. I was signed to BIODIVA through London and I could not give my sample to the study because I was having it done through PMH. Me, being me, explained how absurd that was. It is one study…one database…and it is being run through PMH!!

So, when I knew I was having another biopsy, I broached the subject again. I also added that a lot of out-of-town patients who have signed up for BIODIVA at their local facility will end up at PMH if they are interested in clinical trials. That is a lot of tissue/fluids lost for the study! Turns out the lead for BIODIVA was on call during my visit this time and he heard my argument…again. 

They have signed me up for BIODIVA through PMH - using my original BIODIVA identifier.

This really doesn't help me in any way…it simply did not make sense to me. I hope now that this happens for more patients…the more samples they can get at different stages of a patient's journey has got to make a difference in their research!!

#genetics

#biomarkers

@GloHo thank you for sharing this information so openly. Can you remind me, what number trial will this be for you? I'm asking as I think it's important for us Teal Sisters to know that you don't necessarily stop at one!! 
You are a true leader in this area. Thank you!!

As a result of having to go through another biopsy for the trial I am screening for, I have been enrolled in three different genetics testing studies!!

I was so so confused because each person I saw on my visits mentioned another study so I didn't know which one I was actually being enrolled in 🤪. 

As it turns out I am enrolled in three different studies 

1. BIODIVA (again)
2. Octane
3. Marathon of Hope

I am still a bit confused but the more info I can get from these studies, the better!!

I believe BIODIVA is the umbrella study for the other two.

In addition, the BIODIVA study asks for any future tissue and fluids (ie, ascites, pleural) that I am being treated for.

I ran into a road block at my last biopsy because I could not donate a tissue sample simply because of geography. I was signed to BIODIVA through London and I could not give my sample to the study because I was having it done through PMH. Me, being me, explained how absurd that was. It is one study…one database…and it is being run through PMH!!

So, when I knew I was having another biopsy, I broached the subject again. I also added that a lot of out-of-town patients who have signed up for BIODIVA at their local facility will end up at PMH if they are interested in clinical trials. That is a lot of tissue/fluids lost for the study! Turns out the lead for BIODIVA was on call during my visit this time and he heard my argument…again. 

They have signed me up for BIODIVA through PMH - using my original BIODIVA identifier.

This really doesn't help me in any way…it simply did not make sense to me. I hope now that this happens for more patients…the more samples they can get at different stages of a patient's journey has got to make a difference in their research!!

#genetics

#biomarkers

@Alwayslearning

Of course…this will be trial #4! 😁

@GloHo thank you for sharing this information so openly. Can you remind me, what number trial will this be for you? I'm asking as I think it's important for us Teal Sisters to know that you don't necessarily stop at one!! 
You are a true leader in this area. Thank you!!

As a result of having to go through another biopsy for the trial I am screening for, I have been enrolled in three different genetics testing studies!!

I was so so confused because each person I saw on my visits mentioned another study so I didn't know which one I was actually being enrolled in 🤪. 

As it turns out I am enrolled in three different studies 

1. BIODIVA (again)
2. Octane
3. Marathon of Hope

I am still a bit confused but the more info I can get from these studies, the better!!

I believe BIODIVA is the umbrella study for the other two.

In addition, the BIODIVA study asks for any future tissue and fluids (ie, ascites, pleural) that I am being treated for.

I ran into a road block at my last biopsy because I could not donate a tissue sample simply because of geography. I was signed to BIODIVA through London and I could not give my sample to the study because I was having it done through PMH. Me, being me, explained how absurd that was. It is one study…one database…and it is being run through PMH!!

So, when I knew I was having another biopsy, I broached the subject again. I also added that a lot of out-of-town patients who have signed up for BIODIVA at their local facility will end up at PMH if they are interested in clinical trials. That is a lot of tissue/fluids lost for the study! Turns out the lead for BIODIVA was on call during my visit this time and he heard my argument…again. 

They have signed me up for BIODIVA through PMH - using my original BIODIVA identifier.

This really doesn't help me in any way…it simply did not make sense to me. I hope now that this happens for more patients…the more samples they can get at different stages of a patient's journey has got to make a difference in their research!!

#genetics

#biomarkers

@Alwayslearning

Of course…this will be trial #4! 😁

@GloHo thank you for sharing this information so openly. Can you remind me, what number trial will this be for you? I'm asking as I think it's important for us Teal Sisters to know that you don't necessarily stop at one!! 
You are a true leader in this area. Thank you!!

As a result of having to go through another biopsy for the trial I am screening for, I have been enrolled in three different genetics testing studies!!

I was so so confused because each person I saw on my visits mentioned another study so I didn't know which one I was actually being enrolled in 🤪. 

As it turns out I am enrolled in three different studies 

1. BIODIVA (again)
2. Octane
3. Marathon of Hope

I am still a bit confused but the more info I can get from these studies, the better!!

I believe BIODIVA is the umbrella study for the other two.

In addition, the BIODIVA study asks for any future tissue and fluids (ie, ascites, pleural) that I am being treated for.

I ran into a road block at my last biopsy because I could not donate a tissue sample simply because of geography. I was signed to BIODIVA through London and I could not give my sample to the study because I was having it done through PMH. Me, being me, explained how absurd that was. It is one study…one database…and it is being run through PMH!!

So, when I knew I was having another biopsy, I broached the subject again. I also added that a lot of out-of-town patients who have signed up for BIODIVA at their local facility will end up at PMH if they are interested in clinical trials. That is a lot of tissue/fluids lost for the study! Turns out the lead for BIODIVA was on call during my visit this time and he heard my argument…again. 

They have signed me up for BIODIVA through PMH - using my original BIODIVA identifier.

This really doesn't help me in any way…it simply did not make sense to me. I hope now that this happens for more patients…the more samples they can get at different stages of a patient's journey has got to make a difference in their research!!

#genetics

#biomarkers

@GloHo thank you for sharing this information so openly. Can you remind me, what number trial will this be for you? I'm asking as I think it's important for us Teal Sisters to know that you don't necessarily stop at one!! 
You are a true leader in this area. Thank you!!

As a result of having to go through another biopsy for the trial I am screening for, I have been enrolled in three different genetics testing studies!!

I was so so confused because each person I saw on my visits mentioned another study so I didn't know which one I was actually being enrolled in 🤪. 

As it turns out I am enrolled in three different studies 

1. BIODIVA (again)
2. Octane
3. Marathon of Hope

I am still a bit confused but the more info I can get from these studies, the better!!

I believe BIODIVA is the umbrella study for the other two.

In addition, the BIODIVA study asks for any future tissue and fluids (ie, ascites, pleural) that I am being treated for.

I ran into a road block at my last biopsy because I could not donate a tissue sample simply because of geography. I was signed to BIODIVA through London and I could not give my sample to the study because I was having it done through PMH. Me, being me, explained how absurd that was. It is one study…one database…and it is being run through PMH!!

So, when I knew I was having another biopsy, I broached the subject again. I also added that a lot of out-of-town patients who have signed up for BIODIVA at their local facility will end up at PMH if they are interested in clinical trials. That is a lot of tissue/fluids lost for the study! Turns out the lead for BIODIVA was on call during my visit this time and he heard my argument…again. 

They have signed me up for BIODIVA through PMH - using my original BIODIVA identifier.

This really doesn't help me in any way…it simply did not make sense to me. I hope now that this happens for more patients…the more samples they can get at different stages of a patient's journey has got to make a difference in their research!!

#genetics

#biomarkers