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  • 1.  Questions to ask at the Ovarian Cancer Conference in May

    Posted 15 days ago

    Hi All,

       I will be at this conference along with some other teal sisters and I wondered about assembling some questions from any of you to put forward to the experts? I will do my best to ask them on your behalf. I am participating in the patient day which I assume will give us access to some of the researchers, oncologists, and other professionals. I am also attending some of the conference presentations throughout the weekend (which might be technical and beyond me), but I am determined to learn as much as I can, so that I can bring this information back to you. 

       Perhaps Ovarian Cancer Canada will video some of the presentations so we can refer back to them on this site at a later date. 

    LeslieA 



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  • 2.  RE: Questions to ask at the Ovarian Cancer Conference in May

    Posted 14 days ago

    Hi @LeslieA and thank you for this request. I would love to understand what research is being undertaken to examine an extension of the length of time for use of PARB inhibitors. Right now it appears from my understanding, that for most provinces, Lynparza (Olaparib) and Zejula (Niraparib) have limitations in terms of length of time they are supported following first-line treatment. For Lynparza (as you know), it's 2 years and I believe for Zejula it's 3 years. These timelines are based on studies done many years ago (I believe the studies were the SOLO studies).  Since the use of PARB inhibitors are an important part of treatment for many women, and we are hearing more and more about longer term use for women treated outside of Canada, what is being done to align with other countries to support longer term use?

    I appreciate if you get the chance at an appropriate juncture, to ask. Thank you for representing so many from OVd.

    #Clinicaltrialsandresearch 

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  • 3.  RE: Questions to ask at the Ovarian Cancer Conference in May

    Posted 14 days ago

    Yes Alwayslearning, I will be sure to ask this question as it impacts many of us. Thank you for starting this list. 

    LeslieA 

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  • 4.  RE: Questions to ask at the Ovarian Cancer Conference in May

    Posted 14 days ago

    Hello Ladies

    I as well will be at the conference. I am sure we can think of 100 questions to ask. I will start brainstorming. I would also love the chance to meet whoever is attending!

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  • 5.  RE: Questions to ask at the Ovarian Cancer Conference in May

    Posted 14 days ago

    Hi Melissa,
       It will be great for us to all meet each other at the conference. I will provide my cell phone number as we get closer to the event so we can coordinate a meet up. I think there are several of us attending. ��






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