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Hi Everyone

I've been on Avastin for over 3 years.  My urine protein was under 1.0 then it became 1.0 steadily.  Finally, a few weeks ago, it was 3.0 and Avastin was not given.  This past Monday, again, it's 3.0 and no Avastin given.  I taste a lot of salt in my mouth.  I've cut back on salt, protein and saturated fats. I'm drinking tons of water.  I'm seeing a kidney doc in Dec. What else can I do now? Did this happen to anyone here?  My fear is the cancer will grow while the Avastin is withheld.  Any experiences with this issue? I'm only on Avastin and Taxol every other week because platinum drugs did nothing for me.  It will be 4 years in Feb 2026.  How are all of you doing?

Hi @BellaDonna1959. I'm sorry to hear about the rise in the urine protein readings. I'll be honest. I googled it because they take so many different tests from our blood that I had to remind myself about this one. I'm glad they've got you in to see a kidney doctor so quickly (although I'm sure it feels like a lifetime away right now). Did your doctor suggest any actions in the interim? Do you continue with your Taxol treatments in the absence of Avastin?

I'd like to personally believe, without any medical evidence to support this, that with Avastin in your system for so long, and being given every other week, that the cancer will remain at bay. I've always believed these drugs linger in our system for awhile following their use. Particularly if the use has been long. However that is a NON medical opinion but one I like to hold onto.

Please keep us posted on how you progress. I'm hoping the kidney doctor will have some good advise/counsel and you will be back on track with your treatments. Sending positive vibes your way. 🩵

#Supportandencouragement #Treatmentandsideeffects

Thank you - that is a very positive message.  I agree with you and hope I have enough in my system to keep things at bay.  I am still getting Taxol, but when I had Cabo and Taxol my tumors grew (front line treatment) so I don't have much faith in Taxol alone.  I will let you know what happens next.  I get a scan today so next week I will see what's what when the results come in.  Thanks again!

@BellaDonna1959 🤞

@BellaDonna1959. Hope the scan shows reduction in tumors.  Hope the kidney function improves and your protein numbers decrease so you can have continued treatment.  Keep going strong!