English Community

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

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@pepperbee hi and welcome.  I just posted this evening about needing to start talking about the post chemo meds PARP inhibitors.  I too don't have the brca gene so suggested to me today that I will need to decide if I try these meds or not as there is no real evidence that it prevents a recurrence or not.  I go for my 5th treatment on Thursday. And then 3 weeks after that will be my final one.  I just had my surgery 4 weeks ago after 4 rounds of chemo.  Will be looking for inside in the coming days and weeks to figure out the pros and cons of this treatment for us non brca ladies.

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

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Thank you @meinvan and @ellie for your replies 

I will be looking up niraparib and making notes.  I appreciate the drug name.   I may have misheard one of the PAs  but I believe she told me that there probably wasn't any drug I would qualify for after chemo  so I feel a bit vulnerable and i need to do my homework   Such nice information from Ellie that she has had no recurrence  

As @ellie said, the HRD testing is done in the states - I believe the company is called Myriad (?)

I was told that the government used to pay for later stage testing but that the funding has recently been withdrawn.  

Thank you agin for your replies 

@pepperbee hi and welcome.  I just posted this evening about needing to start talking about the post chemo meds PARP inhibitors.  I too don't have the brca gene so suggested to me today that I will need to decide if I try these meds or not as there is no real evidence that it prevents a recurrence or not.  I go for my 5th treatment on Thursday. And then 3 weeks after that will be my final one.  I just had my surgery 4 weeks ago after 4 rounds of chemo.  Will be looking for inside in the coming days and weeks to figure out the pros and cons of this treatment for us non brca ladies.

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

-------------------------------------------

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I’m looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don’t see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

-------------------------------------------

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

-------------------------------------------

I believe that I don't have access to hrd testing currently, is there somewhere private to get this done?

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

-------------------------------------------

I believe that I don't have access to hrd testing currently, is there somewhere private to get this done?

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

-------------------------------------------

Hello 

I am new here - I've been reading people's post and gaining a lot of information.  I feel familiar with some of you now through your posts - this is a nice part for me.  I am HGSC non BRCA and HRD negative (probably - still waiting for tumour assessment results from USA) 

I was diagnosed in March and had a full hysterectomy etc in April.  I  will be doing my last of six chemo at the end of the month  I'm looking for  information  so I know what questions to ask my oncologist  about non recurrence drugs and follow up   

I don't see a lot of non BRCA people- is anyone in a similar situation as me ? 
Thank you . 

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