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Original Message:
Sent: 09-11-2025 14:55
From: Sylviequebecbc
Subject: Pleural effusion
Thanks everyone for your replies and support! Means a lot.
I had another thoracentesis (partial) 3 weeks ago, they couldn't drain it all because I was not well, my body started shaking, so after 1.5 L, they stopped. The downside is I will have another one soon, my GP wants it done within a week, still waiting for an appointment.
I am now on a blood transfusion schedule, every 2 weeks, as long as my hemoglobin keeps dipping. I have had 5 or 6 transfusions so far. I started my new treatment under the POG study, immunotherapy, which I get once per month. My next infusion is next week. I just hope it will help!
I am unable to eat much these days, vomiting more. Loosing weight and feeling weak. A home care nurse is coming today to start me on Maxeran injections, hope this helps.
That is for me right now, trying to stay positive!
Original Message:
Sent: 08-05-2025 14:58
From: Alwayslearning
Subject: Pleural effusion
@Sylviequebecbc I'm so sorry to hear that you are still being challenged with low hemoglobin levels and the unexplained internal bleeding. It seems strange but also maybe reassuring that your oncologist wasn't sending you to emergency however, it is no doubt still very unsettling. Hopefully your current oncologist can clarify what might happen if the cancer has invaded your bowels however try to be hopeful it's not that. I know how important it is to advocate for ourselves including getting answers so it sounds like contacting your previous oncologist may be helpful in your family doctor and/or current oncologist are not addressing things as you would like.
I do hope you get some answers soon. I know that stress on top of everything else is definitely not fun.
Sending warrior strength your way.
Original Message:
Sent: 08-04-2025 14:22
From: Sylviequebecbc
Subject: Pleural effusion
@Alwayslearning
Hi! I am doing ok I guess given all that has happened lately! My Hemoglobin is still trending down, even after 2 transfusions and an iron infusion. I may be bleeding from my bowels we think now, my stool is dark and there is some blood i can see. My oncologist said to follow-up with my family doctor about this, and he said we should keep an eye on that, stop my anticoagulant for a few days if my hemoglobin drops 10 points from last week (and it did, now 89), said maybe a colonoscopy might be too bad for me right now, but if the bleeding gets worse, we might have to do one. The one thing we wonder about is if they find that my cancer has invaded my bowel , are they going to do anything about it? I may not be a candidate for surgery at this point, so what next?
I think I will contact my previous oncologist and ask for his opinion....
So one day at a time!
Take care 🙂
Original Message:
Sent: 07-29-2025 10:00
From: Alwayslearning
Subject: Pleural effusion
Hi @Sylviequebecbc ... I'm checking in to see how you are doing? How is your hemoglobin level? Hopefully it's moved into the normal zone and you've got some energy back. Please let us know how you are progressing. Sending you healing hugs.
Original Message:
Sent: 07-13-2025 15:33
From: Sylviequebecbc
Subject: Pleural effusion
Hi Ladies,
Well, I had my second pleural effusion drainage (thoracocentesis) 4 days ago. I was very short of breath with any activity, but less coughing this time. I also have a very low hemoglobin, so I thought that was the reason for my tiredness, low energy and shortness of breath.
I was sent to the hospital because of my low hemoglobin, and while there, my latest CT scan results came in showing a large pleural effusion, so they drained 1.5L from around my left lung. My hemoglobin was 72 at the time, and their protocol is to not do a blood transfusion unless it is below 70, so they gave me an iron infusion instead.
I don't know if anyone has had a similar experience?
I am still very tired and I cannot do 1/2 of what i could just a short time ago. I take a shower (with a shower chair) then have to rest. I am a little down with all this!