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I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

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Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

@flory hi sorry to hear this news.  Hopefully you can get some clarity with your team.  What is the Octane study?  Thanks for sharing.

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

I will try to post a link to the study. 
https://octane.uhnresearch.ca/index.html#landing

part of the study is to do a circulating tumour test like Signatera. A liquid biopsy that measures circulating tumour cells. It was suggested that I get a scan in September instead of my scheduled scan in November. I am 18 months post frontline and on Zejula hgsoc stage 3c. Just nervous!! Thanks for the replies!! ❤️

@flory hi sorry to hear this news.  Hopefully you can get some clarity with your team.  What is the Octane study?  Thanks for sharing.

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

#Treatmentandsideeffects

Original Message:
Sent: 08-06-2025 19:56
From: flory
Subject: Octane Study

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

-------------------------------------------

I asked my oncologist for a phone appointment to discuss results of the study. Hopefully I'll know more soon. I made the mistake of googling terms in the report now I'm full of anxiety! Yikes 

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

#Treatmentandsideeffects

Original Message:
Sent: 08-06-2025 19:56
From: flory
Subject: Octane Study

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

-------------------------------------------

@flory ... Dr. Google can be a very scary place. I'm glad you've reached out to your oncologist. Please keep us posted. Deep breaths. 

I asked my oncologist for a phone appointment to discuss results of the study. Hopefully I'll know more soon. I made the mistake of googling terms in the report now I'm full of anxiety! Yikes 

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

#Treatmentandsideeffects

Original Message:
Sent: 08-06-2025 19:56
From: flory
Subject: Octane Study

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

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Thank you!! ❤️🙏❤️

@flory ... Dr. Google can be a very scary place. I'm glad you've reached out to your oncologist. Please keep us posted. Deep breaths. 

I asked my oncologist for a phone appointment to discuss results of the study. Hopefully I'll know more soon. I made the mistake of googling terms in the report now I'm full of anxiety! Yikes 

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

#Treatmentandsideeffects

Original Message:
Sent: 08-06-2025 19:56
From: flory
Subject: Octane Study

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

-------------------------------------------

I asked my oncologist for a phone appointment to discuss results of the study. Hopefully I'll know more soon. I made the mistake of googling terms in the report now I'm full of anxiety! Yikes 

Hi @flory ... I'm sorry you've learned that immunotherapy isn't an option. I'm not 100% clear on what an Octane study is. Would you be willing to share? 

I'm sure the doctor (oncologist?) recommending that you have a CT scan can be off putting. Did he/she provide any additional context? Did they request an 'emergency scan'. I learned that they can do that at PMH when they want a scan done with a 10 day period. If they didn't indicate timing perhaps that's a positive sign? Did you get a report or anything from the study leads with additional context? I'm hoping someone would provide some additional context to help you interpret what you've been told. Perhaps that can help to calm your mind (which we all know from personal experience can take us into a dark place quickly). 

I hope you'll be able to get some answers to help provide additional context and direction.

#Treatmentandsideeffects

Original Message:
Sent: 08-06-2025 19:56
From: flory
Subject: Octane Study

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

-------------------------------------------

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

@flory

I am currently awaiting my OCTANE results (also my second BIODIVA study results and, I think, the Marathon of Hope results).

First, ask your oncologist for a copy of the results. This will give you an understanding of just how many different things were tested and whether or not there are any sub-markers that may be targeted in the future. It will also be handy to share if you change oncologists/cancer centres in the future.

I have more info to provide but I am waiting for my discharge from PMH and my brain isn't firing on all pistons right now 🤣. I am heading home after discharge so will provide more info about my experience later today or tomorrow. 

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

@GloHo great suggestions for @flory. If there is anyone who knows about studies, it's you!

I hope you are feeling okay from your PMH visit.

Out of curiosity, is one invited to participated in the OCTANE study or is it voluntary (that's a question for both @GloHo and @flory)

@flory

I am currently awaiting my OCTANE results (also my second BIODIVA study results and, I think, the Marathon of Hope results).

First, ask your oncologist for a copy of the results. This will give you an understanding of just how many different things were tested and whether or not there are any sub-markers that may be targeted in the future. It will also be handy to share if you change oncologists/cancer centres in the future.

I have more info to provide but I am waiting for my discharge from PMH and my brain isn't firing on all pistons right now 🤣. I am heading home after discharge so will provide more info about my experience later today or tomorrow. 

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

@Alwayslearning anyone can participate in Octane. My oncologist sent my info in to PMH and they reached out to me and gave me an appointment for a consultation and to sign consent forms. They obtained tumour samples from my surgery and took blood. I had my follow up visit this week and I received a report with more information on my cancer. It takes approximately 4 months to get the results after your initial visit. The follow up visit was over the phone so I only had to go to PMH one time. I believe you can reach out to PMH as well to participate but I'm not sure. Perhaps@GloHo would know? Not sure if it be of any benefit to me but perhaps one day they can use the data they are collecting to help other women with OC. 

@GloHo great suggestions for @flory. If there is anyone who knows about studies, it's you!

I hope you are feeling okay from your PMH visit.

Out of curiosity, is one invited to participated in the OCTANE study or is it voluntary (that's a question for both @GloHo and @flory)

@flory

I am currently awaiting my OCTANE results (also my second BIODIVA study results and, I think, the Marathon of Hope results).

First, ask your oncologist for a copy of the results. This will give you an understanding of just how many different things were tested and whether or not there are any sub-markers that may be targeted in the future. It will also be handy to share if you change oncologists/cancer centres in the future.

I have more info to provide but I am waiting for my discharge from PMH and my brain isn't firing on all pistons right now 🤣. I am heading home after discharge so will provide more info about my experience later today or tomorrow. 

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

@Alwayslearning anyone can participate in Octane. My oncologist sent my info in to PMH and they reached out to me and gave me an appointment for a consultation and to sign consent forms. They obtained tumour samples from my surgery and took blood. I had my follow up visit this week and I received a report with more information on my cancer. It takes approximately 4 months to get the results after your initial visit. The follow up visit was over the phone so I only had to go to PMH one time. I believe you can reach out to PMH as well to participate but I'm not sure. Perhaps@GloHo would know? Not sure if it be of any benefit to me but perhaps one day they can use the data they are collecting to help other women with OC. 

@GloHo great suggestions for @flory. If there is anyone who knows about studies, it's you!

I hope you are feeling okay from your PMH visit.

Out of curiosity, is one invited to participated in the OCTANE study or is it voluntary (that's a question for both @GloHo and @flory)

@flory

I am currently awaiting my OCTANE results (also my second BIODIVA study results and, I think, the Marathon of Hope results).

First, ask your oncologist for a copy of the results. This will give you an understanding of just how many different things were tested and whether or not there are any sub-markers that may be targeted in the future. It will also be handy to share if you change oncologists/cancer centres in the future.

I have more info to provide but I am waiting for my discharge from PMH and my brain isn't firing on all pistons right now 🤣. I am heading home after discharge so will provide more info about my experience later today or tomorrow. 

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

Just found a comprehensive information piece for OCTANE. 

https://octane.uhnresearch.ca/

@Alwayslearning anyone can participate in Octane. My oncologist sent my info in to PMH and they reached out to me and gave me an appointment for a consultation and to sign consent forms. They obtained tumour samples from my surgery and took blood. I had my follow up visit this week and I received a report with more information on my cancer. It takes approximately 4 months to get the results after your initial visit. The follow up visit was over the phone so I only had to go to PMH one time. I believe you can reach out to PMH as well to participate but I'm not sure. Perhaps@GloHo would know? Not sure if it be of any benefit to me but perhaps one day they can use the data they are collecting to help other women with OC. 

@GloHo great suggestions for @flory. If there is anyone who knows about studies, it's you!

I hope you are feeling okay from your PMH visit.

Out of curiosity, is one invited to participated in the OCTANE study or is it voluntary (that's a question for both @GloHo and @flory)

@flory

I am currently awaiting my OCTANE results (also my second BIODIVA study results and, I think, the Marathon of Hope results).

First, ask your oncologist for a copy of the results. This will give you an understanding of just how many different things were tested and whether or not there are any sub-markers that may be targeted in the future. It will also be handy to share if you change oncologists/cancer centres in the future.

I have more info to provide but I am waiting for my discharge from PMH and my brain isn't firing on all pistons right now 🤣. I am heading home after discharge so will provide more info about my experience later today or tomorrow. 

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan

@flory

I am currently awaiting my OCTANE results (also my second BIODIVA study results and, I think, the Marathon of Hope results).

First, ask your oncologist for a copy of the results. This will give you an understanding of just how many different things were tested and whether or not there are any sub-markers that may be targeted in the future. It will also be handy to share if you change oncologists/cancer centres in the future.

I have more info to provide but I am waiting for my discharge from PMH and my brain isn't firing on all pistons right now 🤣. I am heading home after discharge so will provide more info about my experience later today or tomorrow. 

I recently participated in the Octane study at PMH. Found out I don't have any actionable mutations and I won't benefit from immunotherapy. I feel discouraged by this news. Also the dr recommended that I have a CT scan soon. This leads me to believe I have a high amount of circulating tumour cells and may be in reoccurrence. Circulating tumour cell testing was part of this study. Has anyone else participated in Octane and was told to get a scan