Hello everyone,
I am part of a new Clinical Trial (Trevi) and I start tomorrow. It is comparing a new drug by AstraZeneca to a standard of care that is different depending on if you are folate alpha high or low. If you are folate alpha high, then the standard of care is Elahere. If you are low, then the Dr will determine what the standard of care is. So if you are folate alpha high, there are two really good options. I got randomized today and will be receiving Elahere. Was hoping for the new one but, really, there are no bad options here. Purpose of my post is two things: 1- to let people know of this trial as it is a way to get Elahere and 2- to ask about side effects from anyone who might have been on Elahere. I know the basics (eyes, neuropathy etc). Just wondering if anyone did the icing as prevention and if it worked? I got very mild neuropathy with my first treatment and none with the second.
Again the trial is Trevi run by AstraZeneca