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Hi my name is Kelli  I live in Ontario Canada.in 2022 I was diagnosed with stage 4a HGS ovarian cancer. It was in my right ovaries and right fallopian tube. Then it was also found in one enlarged lymph node in my neck on the left.   I had 6 rounds or carbo/ taxol. Then had my big debulking surgery followed 6 weeks later  3 more rounds of carbo / taxol plus avastin . In sept 2023 I had a scan and was declared NED. I tried zejula but it was interacting with other meds I took and had to stop. I continued with Avastin for a year. In sept of 2024 I had a scan and it showed my first reoccurrence 2 tiny spots 1.5 mm . So I'm currently in treatment again 6 rounds. On Tuesday it will be my last and 6 th treatment. My scan in Dec showed they had shrunk in half.  I will have another scan end of Apr. my fingers are crossed everything is ok as my birthday is the next day after it.   This is a long journey we are on but it's so great to talk with others going through the same thing.   

Thankyou so much. Sorry for the late reply it took me a bit to figure out how to reply. Lol.  I find this time around more lonely. I'm only 51 so all my friends still work.  I'm patiently waiting for nice weather so I can get out and walk. So I can get out a little more. I think the long winter makes it worse.  

@mom2boys  It is okay to feel lonely on this journey. It is difficult when your friends are still working and you are not as you go through treatment. Patiently waiting for the nicer weather is hard as Mother Nature seems to be having a tantrum every couple of days.  Today is not one of them.  That wind is bitterly cold and I will not be going for a walk today. Time to skip over that one for the day.  The long winter definitely has made it worse in being able to get outside more.  Thankfully that will be coming to an end soon.  At least I hope it is.  Once it warms up, we will connect and perhaps go on a walk together since we live in the same town. I can come to you and we can go for a walk from your area.  It would be nice to walk with someone every once and awhile. In the meantime, stay warm and take care of you!

Sorry for the late reply I couldn't figure out how to reply oh chemo brain 😜 I found this time a little harder because I keep getting low platelets after treatment. I've had 2 blood transfusions which also pushes my treatment back an extra week or two. 
I was in remission for a year before this first recurrence and then only 2 tiny spots were found. I'm hopeful  as I keep hearing of new things coming out. Definitely more options than years ago.  

My next scan is also apr 23rd. 😊🤞

I too have an April 23 scan. Im hoping the best for all of us..fingers crossed! I AM  on the clinical trial wirh Avastin and Niraparib combined with immunotherapy. I know you were on these 2 drugs before.  May I ask if your CA number fluctuated during the course of these drugs? Mine has been slightly increasing. What was your experience with Niraparib? Thank you for earlier response

@mom2boys @NovaScotiagirl @ANTONELLA   Looks like all 3 of you will be awaiting results the same day. I wish you all the best of luck and outcomes on that day. I also wish that you do not have to wait too long for your results as the waiting game can be long and cause anxiety. I do not wish that for any one of you. In the meantime, find some things to fill your days as you wait for your results. The time will go by quicker than you think. Take care. 

@NovaScotiagirl  Here is hoping your Oncologist is right and there are some new promising drugs or methods of treatment out there when you need your treatment next. They can be right sometimes when they predict or say stuff like that. I hope that this time around treatment is easier to manage for you and that you have good results. I will be rooting for you on my end that treatment goes well for you. In the meantime, take care of yourself. 

Hi @mom2boys and welcome to the group. Thank you for sharing your story and journey. I'm sorry you are in a recurrence however am sending nothing but positive vibes your way for your April scan. Hoping it will continue to show good news and progression against the spots. You have found a great group of Teal Sisters here. Strong, knowledgeable and so very supportive. If you have any questions, feel free to ask as there's likely someone here who has some info they can share. 

Please keep us posted following your April scan and outcome. Again my fingers are crossed for nothing but good news.

I will definitely keep you updated on the scan. I was to have my last treatment on Tuesday but my platelets were to low so will try again next week.  It was a little disappointing but I know it's not like it's not going to happen just delayed.  Thankyou for reaching out. I was slow replying as I couldn't figure out how to reply. Now I now. 🤣

Hi @momof2boys. I'm also a mom of 2 boys and diagnosed in 2018 HGSOC stage 3. I'm on a trial now that involves Avastin and Niraparib..I am in Ontario as well. Where abouts in Ontario? I am in Toronto 

Hi Antonella, 

thanks for replying. I was a little slow trying to figure out how to reply. Lol.  

im actually a mom of 3 boys. They are all in their 20's still a hard journey to go through no matter the age.  

I did Avastin and narapib as well how ever had to stop the narapib as it was conflicting with other meds that I took so was just on Avastin and that worked really well for me.  I am in Guelph Ontario so not to far from you.  

@mom2boys  Welcome to the group. You are so right that this is a long journey and it helps to talk to others going through the same thing.  I will have my fingers crossed for you that your new scan shows minimal or no growth. Especially since your birthday follows your appt.  It is hard to not have scananxiety either. What do you do to keep yourself busy and not focused on finishing treatment.  What comes next for you must be wearing on you as you wait.  It is hard to not have feelings of anxiety to see what is going on inside there. We get so trained to focus on every nuance and aches/pain that it can become hard to not focus on it.  Do you do anything to keep your mind off of everything?  Like your symptoms and not allowing them to be a focus but noting they are there to ask questions at your next appt instead of hyperfocusing on them.  Everything is difficult emotionally, mentally and physically while we wait. It is good you are being monitored and that must give you some relief to know that as well.  Wishing you the best as you wait for your results.  Perhaps join us for the Teal Thursdays and it may help to ease your mind as you wait this all out. We will be there to answer any questions you have should you have any and/or just be there to tell us what you have been up to lately. Something to keep your mind off it all while you wait.  Either way, we will be there. Hoping to hear from you in the near future. 

Thankyou for the welcome. I apologize my late response was trying to figure out how to reply lol I know now as I'm getting more familiar with the group.  Scanixity is the worst , I'm actually feeling pretty good no pain or anything. The only side effect is I'm tired alot. So if I do things I know my limit and when I need to rest . 
a lot of times I do little things around the house , I love reading and watching certain shows  and I don't think about having cancer at all . With the nice weather coming I'll be able to get out and walk more which also gets me out and my mind off things. 

I do plan to join a teal Thursday it will be nice to talk to others.  :) 

@mom2boys   I just saw that you posted that you live in Guelph, Ont.  It is currently where I reside too. We just recently moved to the city and I am slowly getting my bearings of my surroundings. I lived in the country before so having everything so handy and close is a new one for me.  I try to walk and not use the car to get around during the day.  Gets me my exercise and fresh air when I do that plus it saves on gas (not that I go that far).  

Looks like you have figured out how to reply on the forum which is good. Makes for engaging in conversation go that much better.  I am thankful that you are not feeling any pain or other symptoms. Being tired is a given with this disease.  All depends on the day and how we are feeling on that given day that determines how tired we can get.  Hopefully it isn't daily and severe but more chronic and light instead.  Nap if you have to, it can be refreshing to have a reset in the middle of the day. What  do you do to fill your days otherwise?  Any hobbies that are keeping you busy these days? Are you still working or had to stop for a bit like many of us. I had to stop completely at one point in time and the decision to do so did not come lightly or easily.  It was a hard decision to make that was for sure.  Today I am thankful for not working as I look at all the Legacy projects I have done for the family and friends which helped to fill my days with joyful projects.  I am currently finishing up a sweater that I am making for my Dad.  I had started it and then put it down for a length of time but am now back at it to see if I can complete it in a timely fashion.  So far so good.  I sit and plug away at it when I can and know it will come together soon enough for me.  Patience and persistence will get me there too.  

It is nice to not think about cancer and everything that goes with it. If you can manage to do that, it is half the battle. Wishing you luck in keeping your mind off the cancer and on other things. 

You are right, no matter the age of the boys, they are still your boys.  Mine are in their 20's too and I still worry about them just the same. Ours still live at home due to the economy and the lack of affordable housing out there.  We manage to co exist together nicely.  There are days it doesn't work but that is to be expected too. Wishing the economy was better to make it more affordable for everyone would be nice.  It is also nice having them around. How about you and your boys?

Oh maybe we're in the same area. If you're ever up for walking let me know.  I don't drive so can't get to you the only issue. 

all 3 of my boys live at home still as well. Same thing the prices of living. They give us a little money every month to help out as I'm also not working.  I had a home daycare for 23 years but had to close when I was diagnosed.  

@mom2boys  Perhaps we are in the same area.  That would be nice if we were.  We currently live over by Longos, Food Basic area. I can walk to my pharmacist as well.   I am usually up for walking so perhaps we can figure out where we both live and if we are close to each other or not first. Would be nice to have a walking partner.  I am sure we can figure something out that will work for both of us. 

Yes, I had to shut down my practice when I recurred and was strongly encouraged to stop working at the same time. Our boys too, help to pitch in and help with things at the house due to me not working.  Did you apply for the CPP Disability and Disabilty Tax Credit?  If not, I would encourage you to do so or talk to your accountant about it.  It is some money that comes in every month now that I have done it and it does help. The paperwork is a little crazy and long but once you get it done and in, it is easy after that.  You basically wait for their answer and the money comes monthly.  If you have already done this, good for you. You got the daunting paperwork out of the way. I won't ever return to work so don't have to worry about that either. Hope you find this information useful.

I am in the Eastend near Victoria and grange about 7 -8 min drive. We do go to that area though we love cobbs bread. My husband gets his hair cut at sport clips. It's so nice over there.