Hello to all my Teal Sisters.
I am happy to share more information regarding my choice for treatment.
I am not sure if I mentioned in my initial post but the pathology report after surgery and the follow up with the surgeon confirmed that the tumour which was removed(20.5cm) from my left ovary and also present in my right ovary was a low grade stage 4 sarcoma. The Tumour had not attached itself to any other organs and the lymph nodes were clear. From what they saw there no trace of cancer.
After some research but not too much because sometimes the information is overwhelming but on consultation with my oncologist who let me know that there is not much research with this type of ovarian cancer but from the information she did have there was nothing that indicated it would be more beneficial to me to have the chemo than not and so I opted for the hormone therapy (Letrozole).
This felt like the right decision for me. Do I doubt myself at times? Of course I do!
I have CT scan of abdominal Pelvic and chest every three months and the follow up with my Oncologist to review the results
So far all good I have not had C125 bloodwork since before the surgery but i I have a requisition for blood work before my next CT scan which is booked for May21st.
And the waiting between the CT and follow up is always the most stressful time for me.
I hope this explains my decision ….this was right for me but maybe not for everyone. We all are on the same journey and yet they are all different for many reasons
Any feedback from anyone else on a similar journey would be appreciated
Angie
Sent from my iPad
Original Message:
Sent: 3/25/2025 9:10:00 AM
From: Alwayslearning
Subject: RE: New Member
Hi @asatino and welcome. I'm so glad you found this group and thank you for sharing your story. I believe everyone needs to make the treatment choice that makes most sense for them. Would you be willing to share what led you to opting out of chemotherapy/radiation therapy and choosing hormone therapy (Letrozole)? Sometimes that background is helpful to others who may experience something similar to you. It's all about sharing information in this forum. No rights or wrongs. No judgment. But knowledge is power for Teal Sisters. As well, how is your medical team monitoring you? Do you have regular visits for bloodwork? CT scans? CA125? I'm just curious. Please only feel free to continue sharing if you are comfortable. Also, yes a huge round of applause for GP's that are proactive and responsive for their patients. I too have an amazing GP who jumped on things right away for me. That alone can make a huge difference going forward.
Again, welcome and thank you for sharing.
Original Message:
Sent: 03-24-2025 09:37
From: asatino
Subject: New Member
Good morning everyone. I am new to the community. and let me begin by saying thank you to all of you beautiful souls for sharing your experiences. It is so important to those of us who are struggling with this new diagnosis. I have been reading all the comments for a few weeks in the beginning I didn't know if I wanted to share but reading so many of your posts makes me want to do the
same. So…. Let's me introduce myself I am a 68 year old widow and Mom to three amazing sons age 49,42,37 and grandmother to 2 beautiful granddaughters age 12 and almost 2 from Brampton Ontario.
I like some of you had very little or mild symptoms slight fatigue, shortness of breath and mild lower abdominal pain discomfort which I would describe as mild pressure but nothing I would call painful. I also had a nasty cough that would not quit.which is what took me to my GP initially. I also mentioned the a do al discomfort at which point she ordered chest X-ray and abdominal ultrasound.
I say Thank God for my proactive GP who called me as soon as she these result and send me along with a letter from her to the nearest Emergency department on July 23 of 2024. Long story short they drained 3 litres of of fluid from my right lung and found a mass in my left ovary.I was admitted for three days where they ran a few tests and was referred to Respiroligist and gynaecologist oncologist at Sunnybrook
I had surgery August 30th. Bilateral salpingo-oophorectomy Omentectomy to remove my ovaries, fallopian tubes and omentum.I had had a partial hysterectomy in 2006 when I was 49 to treat Fibroids .
surgery was successful I had an amazing surgeon. She removed a 20.5 cm mass from my left ovary .
The pathology report confirms Low grade serous carcinoma in the left ovary also present in the right ovary.
all the other organs are clear Lymph nodes clear. metastasis Pleural effusion in the right lung
No chemotherapy or radiation therapy for me I opted for the hormone therapy I am currently on Letrozole.
And sometimes I wonder and worry that I made the right choice.
I would be curious if there are any other members who opted out of chemotherapy/ radiation therapy and how you are making out
thank you all for being here it means a lot