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Dearest OC Sisters

My personal journey started in July 2022 with a diagnoses of Ovarian cancer after two years of being told the pain was caused by my gallbladder. Following the shock of the diagnoses I had surgery in August and was staged as HGSCC 1C. After recovering I had 5 cycles of Carboplatin/Taxol the sixth infusion was paused due to mounting side effects. In the summer of 2023 my CTscan showed the cancer reoccurred and metastasized to my pelvis and lungs. Another six rounds of Carboplatin and Duxorubicin (red devil) at 5 cycles and I reacted to the Carboplatin. We paused for a few months to allow recovery and my next CTscan showed significant reduction of all the tumours 😀. In October 2024 I started 6 cycles of Gemcitibine and Bevacizumab, three infusions a month…the 3 month CTscan looked promising but side effects including dizziness and weakness caused another pause and a  follow up CTscan showed that it stopped working and the tumours were growing again. My pelvic tumour increased from 3.3cm to 3.6cm left lung 1.4cm to 1,9cm and 1.5cm to 2,2cm. I haven't had any treatment since January giving me a break and have been referred to a radiologist/oncologist to determine if radiation may work and also potentially taking oral chemo Cyclophosphamide (Cytoxan) daily 50mg. I have been trying to participate in trials but mostly my tumours have not expressed properly. Has anyone had any experience with radiation or Cytoxan?

Love and light,

Florence 🙏🩵

@florence2022   Welcome to the group.  No, I have not had any experience with radiation or Cytoxan.  Perhaps some of the other HGSC ladies may have.  How have you been managing on it and how  is it making you feel on a daily basis?  When or do you meet up with a radiologist soon to discuss any possibilities there? Is it even on the table for you as a choice in treatment?  I know for myself, it is off the table and not a choice at all for me.  I in fact have no choices or possibilites left on the table to treat my LGSC.  I am going on 3 years and have surpassed the dates they had given me for life expectancy.  I truly hope they keep being wrong about this more often as I take one day at a time fighting this disease.  

So what are next steps for you in your treatment? When do you see your Onc again and discuss what your current treatment is or is not doing for you? Fighting this disease is hard and taking it one day at a time can be difficult at times.  But we all do it and manage to get through it somehow.  I wish that for you too. Hoping you get some answers soon and that your current treatment is working for you.  Take care and maybe we will see you in the Thursday Teal Tea Time.  I will be there waiting to see  if anyone else wants to chat that day.  If you can't make it, you can always go back and read it later. As it is written as opposed to being virtual and in real time. Nice chatting with you and hoping to hear from you soon again.