I am glad that the second infusion felt better for you. Knowing more about what to expect also helps. (I also had to take the Dex the night before to offset the reaction I had the first time. I have done 5 infusions so far and believe that there will be some more after I heal from surgery). I remember the docs told me that they are looking for a downward trend in the CA125 and this has happened for you, so that is great. I understand and relate to the emotional part you are feeling. My tears get going after day 3 when I enter that low energy/feeling unwell chasm for a few days. I let myself cry and then usually feel better. It is all so tough, I know.
Original Message:
Sent: 05-10-2025 14:32
From: Meinvan
Subject: Morning ladies
Morning ladies,
So I had my 2nd dose of chemo on Thursday. It sent a little smoother then the first one, taking the Dex the night before. I still had some mild symptoms like weird stomach discomfort, hands and nailbed redness,started sneezing for some reason and just arm ache during the infusion. Other than that it was ok. Hgb was 95 after the transfusion I had after my first dose and my ca125 down from 545 pre to 300 post. I'll take those as a positive. Hair is really falling out now, so going to get it shaved on Tuesday. Little emotional lately. Next round scheduled for May 29th, then planning for CT and MRI to see if we can remove tumor yet or not. One day at a time. Thanks for being here