It amazes me how varied our experiences are, but I guess we are all individuals. It shows me not to read too much into statistics, as several are defying the odds. I had 8" of sigmoid rectal colon removed during my debulking surgery, as well as my appendix. Getting my gut functioning smoothly, along with the constipating effects of chemo has had me using Restoralax daily ever since. I took the senacot occasionally as well, but rely on the Restoralax (or Shoppers version called ClearLax). It keeps things moving and my gut comfortable. It was mentioned that any discomfort is now viewed with concern, and I find that too. I had a CT at the end of August that showed " no evidence of disease.
We are each a puzzle to solve, using what has proven effective in others. So glad the have our medical teams and Ovarian Cancer Canada working so hard for us. Thank you !
Keep paddling ladies, and the boat moving forward ! Make the best of every day !!
Original Message:
Sent: 2/9/2025 10:55:00 AM
From: JoanEG
Subject: RE: Lynparza effects
Hi@lbarr72 I have been on Lynparza since June 2024. I have been very fortunate in that I have had no adverse reactions. I had a my latest CT scan in January and the results showed no sign of new disease and the mass that the surgeon was unable to remove when I had my surgery has shrunk which in turn has decreased the size of my partial bowel obstruction. My bloodwork has been good and my CA125 is at 7.2. My oncologist said this is exactly the result what they hope to see with patients taking Olaparib.
Original Message:
Sent: 02-07-2025 08:03
From: lbarr72
Subject: Lynparza effects
I started my OC journey midsummer od 2023, with surgery late August and 6 chemos from October until Frbruary 2024. I have now been on Lynparza ( olaparib) since April 2024. Twice I have pulled off it, first due to anemia, when the dosage was reduced and in November again when there was concern about the effect on my kidneys. I have had several visits with my oncologist at London CC and a kidney specialist and lots of blood tests. I have been feeling well, and able to be out and about and back to exercise group. The olaparib has done some minor damage to my kidneys, one of which was infarcted by a blood clot after surgery. I have gone back on the olaparib, as the danger of the Cancer overrides the minor kidney effects. I have been told to stop my BP med which is a low dose, as that will allow a better flow of blood to the kidneys. It certainly seems that everyone is having different experiences while the approach to my care is quite standard.
Has anyone else had challenges with olaparib ? Seems to be working.
Onward my fellow warriors ! It's another bright �� day !