Hi everyone,
My name is Becca and I was diagnosed with very rare Sertoli-Leydig ovarian cancer back in 2015 when I was only 20 years old, luckily caught at Stage I and was resolved with surgery, but I haven't felt quite right since then. Just last week I got results of a genetic test and it was confirmed that I have a rare pathogenic Dicer 1 mutation that predisposes me tumor growth in general, as well as a predisposition to cancer in multiple organs. It is what caused my specific type of ovarian cancer. I have been in therapy since before this diagnosis, but the genetic diagnosis kind of made me feel lonelier than I ever have before. My remaining ovary could succumb to my broken genes, and I am only 31. I am just looking for support from others that get what it is like to have the weight of what if, understand the scanxiety, and I would love to hear how you have managed to make it through your hard times, because I am struggling to make it through mine.
Thanks so much, with all my love.