Original Message:
Sent: 04-24-2025 15:10
From: lbarr72
Subject: Introducing myself
Thanks Strongwoman....love your title !! It is a beautiful day on SW Ontario. It started improving this week, so this is day 2 of warm & sunnyness !! It feels soooooo good after a long winter.
Working in the garden, but my husband has created a big, heavy project that is hard for me to help with despite all my exercise classes. He had 14 yards of topsoil delivered, and it's hard to see my 78 year old spouse moving it all. We did find a young neighbour to help and I have done a bit.
April 21st would have been my stepdaughters 46th birthday. She died of cancer in November, after a 5 year battle ( colo-rectal and then lung). We planted a hydrangea tree in her memory on the weekend. Our lives carry the weight of all life delivers. We are still caregivers, even when we need care as well.
Feeling generally good. So much better than when this all started 22 months ago. I was so sick, I had tended to my end of life plans. Life is definitely worth living despite the challenges so far.
My plan is to do something good with each day. It's the best way to carry on.
It is an honour to have you all in my world ! ❤️
Linda
Original Message:
Sent: 4/24/2025 1:27:00 PM
From: Strongwoman
Subject: RE: Introducing myself
@lbarr72 Thought I would check in and see how you are doing. Has the weather improved since your last post? It has here. Mother Nature has granted us some sunny and warm days with today being one of them. It has been lovely seeing the change in weather for sure and feeling the warmth of the sun. Nice that you and your friend are accompanying each other to your appts in June. Nothing like friend support especially when there is some scanxiety happening as well. Sounds like you are adapting to an exercise routine that is working for you. Nice. The break for your hubby sounds like it will be welcomed by both of you when the time comes. It will be a good time for him to spend time with your sons as well. I think it is hard for the men at times and why they get grumpy at times. The stress they must feel at times because they feel they need to take care of us or worry about us must be hard. The dreary weather definitely would not have helped either.
Well, hoping things have turned around for you and that they are a little more positive. As you say " chins and elbows up". Enjoy each day as it comes and try not to let the anxiety of the waiting of your testing to get you down in the meantime. Take care of you!
Original Message:
Sent: 04-10-2025 16:23
From: lbarr72
Subject: Introducing myself
Those of us in Ontario just can't find Spring !! Wet, cloudy, mixed snowy moisture keeping us inside. When the weather went crazy 2 days ago, I told my husband it was my fault. I had been puttering in the yard and picking up some winter debris and.....put away the snow shovels !! As well I had bought some pansies for the front step. Well, that was just asking for it !!! I stomped out to the shed in a big coat and got them back out. They can stay out until June if that acts as insurance against the weather.
Just got back from getting blood test in London, with a friend who needed one too. She has a biopsy on June 13th, right after my next appointment with my oncologist. I so hope she is not climbing on our bus !! I will find out what CT scan says about me on June 12th. We are accompanying each other to those appointments.
Feeling pretty good. Energy is a bit of a challenge, but I am getting to exercise group regularly, in attempt to get more strength and energy. The social climate of these groups is a huge lift too. One class is for seniors at our Community Centre, the other is through the VON at our local Legion. Keeping upbeat requires social activity for me, although I have learned to love quiet time as well. My husband is going to see and work with our sons in Nova Scotia from May 3rd to 21st, so I will plan some outings with my friends in hopefully better weather !! I keep telling him that he deserves a break from me. Have been grumpy and impatient at times lately. Not quite sure why. The dragging winter and dull skies are not so great. Perhaps a touch of "scanxiety. "
It's April and soon it will be better, and all the sweeter for the wait. Nothing like the first truly great day. You have to have lived through a snowy Canadian winter to fell how special it is !
Chins and elbows up !!!
Original Message:
Sent: 4/10/2025 1:04:00 PM
From: Strongwoman
Subject: RE: Introducing myself
@JoanEG You have been busy outside cleaning things up. That is a good thing if you are feeling up to it. Good for you if you are. Sounds like you have a good handle on the low residue diet too. That is good. It sounds like you are eating more than I am on it currently. That is good too. I am back to minimal eating and liquid diet due to how I am feeling especially today. So, lots of water and I might try an applesauce soon to see if that sits well or not. I sure hope so. Eating can be quite the thing when you can't eat what you want. Well I will go and see who pops up to chat today. Take care.
Original Message:
Sent: 04-08-2025 11:10
From: Strongwoman
Subject: Introducing myself
@Stellatrom A very good tip to have the pillow with you in the car on the way home. Helps for the bumps in the road too. There are many helpful tips in here for post op recovery and returning home. You can find them by typing in the key words and then reading the threads. They truly are helpful. Make use of them. Lots to read and to go by. Hoping you have a good surgery and recovery. Take care.
Original Message:
Sent: 04-04-2025 20:37
From: Stellatrom
Subject: Introducing myself
Hi there..one other tip. Make sure you have a pillow to cushion your belly from the seat belt when you go home.
Original Message:
Sent: 4/4/2025 8:28:00 PM
From: Alwayslearning
Subject: RE: Introducing myself
@Stellatrom I wish my nurses had shown me how to get out of bed. I never even thought to look online. Thanks for noting that. I have a scar down my abdomen from between my boobs to my pubic bone. Trying to get out of bed was so ridiculously hard for me post surgery. Your points will be helpful for another Teal Sister. Thanks for sharing.
Original Message:
Sent: 04-04-2025 16:46
From: Stellatrom
Subject: Introducing myself
Hi Leslie, I had a large mass on my right ovary 16x13x5cm that was removed on 03FEB including radical hysterectomy and appendectomy. Fortunately was stage 1. My surgery went very well and was only on extra strength tylenol and ibuprofen and had minimal or no pain. I had completed a 'prehab4me' preparation 4 weeks prior to surgery that was provided to me from my gyne-oncologist through University of Alberta. This was an excellent program to prepare nutritionally, physically, emotionally and informationally. I had to greatly increase protein in my diet to aid in recovery from surgery. I also had to drink 500ml of apple juice 3 hours prior to the surgery for the body to have energy during the surgery. There is a Youtube video showing you how to get out of bed after hysterectomy surgery and the nurses will show you how to do it. Foothills hospital has wifi, so I watched Netflix on my phone, but otherwise just generally dozed. They'll likely wake you up in the middle of the night to draw blood and my surgeon visited me each morning after surgery. I was in hospital for 2 days. Best of luck and I hope your recovery proceeds as well as mine.
Original Message:
Sent: 03-26-2025 13:12
From: LeslieA
Subject: Introducing myself
Hello Everyone,
First of all, I am very appreciative of how supportive everyone is to each other in this group. We all need a safe place to express ourselves openly but also feel encouraged. This looks like the right place for me.
I was officially diagnosed with stage 3 ovarian cancer in November 2024. My symptoms were vague and intermittent over the summer, such as occasional constipation and bloating. By October 2024, I experienced a lot of heartburn, belching, and pain up both sides of my abdomen and finally went to my GP, thinking it was something intestinal and/or just part of aging. (I am 68 years old). To my utter shock, she suspected OC and sent me for a CT scan right away, confirming my worst fears. There was a 14 x 6 cm tumour on my right ovary, no doubt pushing on my other organs, inhibiting my ability to eat full meals and causing pain. Also, evidence of some spread in my omentum, but as far as I know, no other spread. I lost 12 pounds over 2 months.
It was a long November waiting for my appointment with the oncologist in Victoria, who confirmed my diagnosis and treatment plan. Thereafter, I received 5 chemo infusions in the standard 3-week intervals and I felt so much better. After cycle 4, I had another scan and the tumour had retreated to less than 1/2 (6 cm x .5 cm) and hopefully cycle 5 kicked it down even more. No signs of cancer in the omentum at this point. Two of my cancer markers returned to normal levels and the CA 125 was down to 101 (previously 2400). I am now awaiting the surgical stage: full hysterectomy and debulking on April 7. I admit to feel both grateful and frightened, as I have never had any major surgery in my life.
After surgery, the plan is 3 more chemo sessions. Ugh. This cancer experience has been intense for me emotionally, mentally and physically, which I am sure everyone understands. There are days when I feel steady and optimistic, but also days when I feel very sad and discouraged. It comes and goes like ocean waves. I try to allow all the "feels" as it seems to help. I draw a lot and have put these emotions into art, which helps to externalize and let them go. Even still, it has been a rough go.
I was in good health before cancer and I hope this will help me recover well from the surgery. I don't know what to expect and perhaps it is all very individual.
Warmest wishes to you all!