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Hello.  I am looking to connect with members who are being treated with Elahere or who are considering it.  
I am now platinum resistant (after 3 lines of chemotherapy over 3 years) and my oncologist has been discussing Elahere as an option.  My tumour was previously tested and I have the required receptor.   I am waiting for an opthamologist appointment   

I am interested in hearing from anyone who has been considering Elahere or who has started treatment. 
Thank you!

Hi @cynthiaj ... I was checking back over some posts and saw that there hadn't been any responses to this so I wanted to respond and get the post active again. Perhaps there is someone out there who is taking or is considering being treated with Elahere who may have missed your first post. I know it's in its "infancy" in terms of usage in Canada. Hopefully there is someone else out there in our community who has been approved for use and/or is considering.

#Treatmentandsideeffects

I have it waiting in the background.  Side effects sound wild.  Some women did really well on it and others found it to be too much or it didn't work.  But those who

respond to it get some extra time so I say try anything when the time comes - you never know.  Can you get a second opinion from another oncologist to 

help you decide? Good luck!

I don't know anyone but I am on an E layers Facebook group. You can ask to join and talk with lots of people there.

I would love to know if you started it and the outcome!  Hoping for good news. Eye issues? I expect using someone who understands the serious eye issues with this drug would be critical.

Hi @cynthiaj ... did you get any additional information to help inform your decision regarding Elahere? I believe you were going to start today. I hope you were able to gather information that has helped you feel better about your decision. Please let us know. 

#Treatmentandsideeffects

Hi there,

My name is Mysty and I'm also preparing to start Elahere. I have some reservations about the side effects to the eyes that I'm concerned about. I received a supply of eye drops from Abbvie, which is the maker of Elahere. (The eyedrops were delivered to my community mailbox and they froze in -19 C weather. The box says to keep them between +15-25C. I called Abbvie to let them know the drops they sent were ruined in freezing temps and they sent another supply to my freezing cold community mailbox. I called again to explain that they will need to send them some other way to avoid freezing temps. Stay tuned!)

The Elahere website provides quite a bit of info about eye care, which is great. That said, I'm hoping to hear from any women who are currently on Elahere and what their experience has been like. 

Here's the link to Elahere's info about eye care, including an eyedrop dose reminder:

https://www.elahere.com/eye-care#side-effects

Hi @Call_me_4828 and welcome to OVdialogue. It was also nice to meet you on this week's Teal Tea 😊  We are so glad you found this site and this strong, courageous and amazing group of Teal Sisters. I also appreciate that you 'tagged onto' an existing thread on Elahere. Hopefully the Teal Warriors in here will be able to share their experiences. I know it's so newly approved that you among others, will likely be the ones forging the path forward on this and helping to educate us. I'm wondering @mfallis_OCC if you are aware of a group, via OCC, that is connected or engaged with Elahere users? Just a thought.

When are you planning to start Elahere? I know you said you were preparing to start. Also, will you medical team be monitoring you? I'm curious as PARB takers such as me (Lynparza) are monitored so I figured you would be with Elahere. Just curious what the protocol might be for that.

Again, welcome to the group and thank you for sharing. I hope you will be able to get the information you are seeking. 

P.S. Sorry to hear about the eye drop delivery fiasco. Sometimes common sense just isn't so common 😗

#Treatmentandsideeffects