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  • 1.  Elahere

    Posted 21 days ago

    Hello.  I am looking to connect with members who are being treated with Elahere or who are considering it.  
    I am now platinum resistant (after 3 lines of chemotherapy over 3 years) and my oncologist has been discussing Elahere as an option.  My tumour was previously tested and I have the required receptor.   I am waiting for an opthamologist appointment   

    I am interested in hearing from anyone who has been considering Elahere or who has started treatment. 
    Thank you!



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  • 2.  RE: Elahere

    Posted 7 days ago

    Hi @cynthiaj ... I was checking back over some posts and saw that there hadn't been any responses to this so I wanted to respond and get the post active again. Perhaps there is someone out there who is taking or is considering being treated with Elahere who may have missed your first post. I know it's in its "infancy" in terms of usage in Canada. Hopefully there is someone else out there in our community who has been approved for use and/or is considering.

    #Treatmentandsideeffects

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  • 3.  RE: Elahere

    Posted 7 days ago
    Thank you for reposting.  I would welcome any comments about Elahere as I am on the cusp of deciding whether to start it.   
    Hopefully there is someone out there in a similar situation!  






  • 4.  RE: Elahere

    Posted 6 days ago

    I have it waiting in the background.  Side effects sound wild.  Some women did really well on it and others found it to be too much or it didn't work.  But those who

    respond to it get some extra time so I say try anything when the time comes - you never know.  Can you get a second opinion from another oncologist to 

    help you decide? Good luck!

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  • 5.  RE: Elahere

    Posted 5 days ago
    Hi Bella Donna! Thanks for your message. ��
    I was also diagnosed in 2022 with stage 3C hi grade serous.  I had 3 lines of platinum based chemo and am now platinum resistant.  I had a colostomy in September of this year due to a lower bowel obstruction.  
    I am scheduled to start Elahere on Dec. 2 but need to get some clarity around the eye drop protocol.   
    I have had consults with the Princess Margaret Centre and have reached out to them for another consult as I would expect that Toronto has had more patients starting Elahere than here in Nova Scotia.   
    Do you know anyone who has started Elahere?
    Thanks.  






  • 6.  RE: Elahere

    Posted 5 days ago

    I don't know anyone but I am on an E layers Facebook group. You can ask to join and talk with lots of people there.

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  • 7.  RE: Elahere

    Posted 5 days ago
    Great, thank you!







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