Hi all. I am 49 and was diagnosed in October 2016 with stage 3c high grade serous. Had hysterectomy surgery in November 2016, and they also removed my omentum. He debulked as much as he could in my peritoneal cavity where most of my cancer was. Inserted an IP port into my peritoneum for chemo. Am BRCA negative. Had first line treatment from December to May 2017. Chemos were carboplaten (every 3 weeks) and taxol weekly. Was NED until symptoms started appearing in spring of 2018. First recurrence in June 2018 and started same chemo in July 2018, only this time instead of weekly treatment, it was a stronger dose every 3 weeks. Finished end of October 2018. Was lucky to partake in a clinical trial shortly after for Lynparza (Olaparib). CT scan after last treatment showed a spot that is either scar tissue or remaining cancer, but there is no way to know for certain unless it changes on a scan, which it has not up to now and my results are no progression of disease. I get a CT scan every 8 weeks because of the clinical trial. I get bloodwork done every month as part of the clinical trial as well. My CA125 got down to 6 after the 2nd recurrence in October 2018. In April it was 7. In May it was 9. In June it was 11. And now in July it is 18. I am worried. My Oncologist said we just monitor for now and can’t know anything for sure until CT scan shows progression of cancer, which he said normally doesn’t show up on a scan until your CA125 is between 50-100 and higher.
My question is, have any of you had jumps like this in your CA125 without it being a return/recurrence of the cancer?
Thank you xo