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Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

@sheryl

Sorry to hear there is no clinical trial available for you at this time.

I'm glad your current treatment is keeping the cancer stable.

I am currently waiting for my FRa results. It does take awhile to get the results - it's been well over 8 weeks now. So, the sooner you can get in for bloodwork to get the process started, the better. 

When you go in to sign the paperwork, I would suggest you discuss their process for tracking individual patients waiting for trials. Personally, I would set up a check in schedule with the Dr to see if there are any new trials. They are very busy and my concern would be that my file falls through the cracks. I'm not sure what that schedule would look like…every month or two you could call in to inquire? Also see if there is someone you can contact directly each time…that way you don't have to explain why you're calling each time.

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

@sheryl

Sorry to hear there is no clinical trial available for you at this time.

I'm glad your current treatment is keeping the cancer stable.

I am currently waiting for my FRa results. It does take awhile to get the results - it's been well over 8 weeks now. So, the sooner you can get in for bloodwork to get the process started, the better. 

When you go in to sign the paperwork, I would suggest you discuss their process for tracking individual patients waiting for trials. Personally, I would set up a check in schedule with the Dr to see if there are any new trials. They are very busy and my concern would be that my file falls through the cracks. I'm not sure what that schedule would look like…every month or two you could call in to inquire? Also see if there is someone you can contact directly each time…that way you don't have to explain why you're calling each time.

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

@sheryl

Sorry to hear there is no clinical trial available for you at this time.

I'm glad your current treatment is keeping the cancer stable.

I am currently waiting for my FRa results. It does take awhile to get the results - it's been well over 8 weeks now. So, the sooner you can get in for bloodwork to get the process started, the better. 

When you go in to sign the paperwork, I would suggest you discuss their process for tracking individual patients waiting for trials. Personally, I would set up a check in schedule with the Dr to see if there are any new trials. They are very busy and my concern would be that my file falls through the cracks. I'm not sure what that schedule would look like…every month or two you could call in to inquire? Also see if there is someone you can contact directly each time…that way you don't have to explain why you're calling each time.

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials

Hi @sheryl Sorry to hear the news about the qualification for most current clinical trials. I'm glad they at least have a path forward with continuing with the current plan/treatment since it does seem to be having an effect. I'm going to have to do some research on what an 'alpha receptor' is however I hope you have those so that Elahare becomes an option. Thinking of you and sending nothing but positive thoughts your way.

Just a quick update regarding my virtual appointment with Princess Margaret yesterday.  It was actually quite disappointing.  Because the tumour was of mixed etiology (mostly high grade serous but a small amount of carcinoma sarcoma in uterus), it makes me ineligible for most clinical trials.  I had actually forgotten about the sarcoma that they had found in the biopsy.  The doctor suggests that I continue with my current plan/treatment since it is slowing down the progression of the cancer and hopefully the cancer is alpha receptor positive and we can try elahare.  She will have me come in to get some bloodwork done and sign consents on case anything comes up in the future.  She states that it would likely be only phase one trials if something does come up.  So disappointing but at least I know where I stand with respect to clinical trials