@Strongwoman thank you for your post! I am doing ok. The side effects from the medication are much better now that I am on a lower dose. I haven't had a bowel episode since last November, so that is a relief. My appetite is diminished, I get full fast, so I have to eat small meals more often, but really, I don't feel hungry most of the time, so I am not eating as much as I could.
My last scan showed some improvement on some level, stable lesions, and some grew. My CA 125 is dropping, from 1700's to 1500's in one month. So we think the med is doing something. She wants me to stay on it a bit longer before we switch to the 2nd med that came up in my study profile. Hopefully I won't get too sick before. She explained that the medications might work on the "mother cancer cells" but not on the clone cells, but we can't know yet since I haven't been on this med very long.
So time will tell. In the meantime, I am adjusting to my new normal, I won't be hiking up hills this summer, I am very thankful for my electric bicycle, I can get around without much effort. I can still do some housework, my daughter helps with the big jobs, and others too. I have started water color painting, it is relaxing.
So all in all, I am coping fairly well, but I have my moments!
Sending you warm hugs, keep me posted ❤️
Original Message:
Sent: 05-09-2025 09:10
From: Strongwoman
Subject: clinical trials
@Sylviequebecbc Checking in to see how your treatment is going and your symptoms. Are they being managed or are you having to tweak some things? How have you been feeling being on it? I have my fingers crossed for you. Like you, I am LGSC. Nothing is available for me so in the meantime it is day to day living. My cancer numbers continue to climb and I monitor symptoms and eating as the issues come up to hopefully avoid partial bowel blockages. How have you been doing in that department? How is your eating going?
Original Message:
Sent: 05-01-2025 15:13
From: Sylviequebecbc
Subject: clinical trials
Thank you for sharing this. I too am carboplatain reactive, but my cancer is low grade so I don't qualify for this study.
I am presently in another study called Personalized Onco Genomic, available in BC i know for sure. I am on a treatment through this study, with a medication that should fight the specific anomaly they found in my cancer by doing a DNA panel of one of my lesions. It looks like this medication is doing something, as shown on my last CT scan.
The side effects of the med I am on are challenging, so we adjusted the dose so I can tolerate it Keeoing my fingers crossed!
Original Message:
Sent: 03-23-2025 08:18
From: GloHo
Subject: clinical trials
ELAHERE clinical trial for platinum-sensitive Teal Sisters
I saw this on the clinical trials site and wanted to share with you. There are a lot of locations for this trial…Alberta, BC, Quebec and Ontario.
Mirvetuximab Soravtansine With Bevacizumab Versus Bevacizumab as Maintenance in Platinum-sensitive Ovarian, Fallopian Tube, or Peritoneal Cancer (GLORIOSA)
https://clinicaltrials.gov/study/NCT05445778?