English Community

 View Only

Log in or create an account to engage on OVdialogue. 

Expand all | Collapse all

Chemotherapy - what tips and tricks did you learn?

  • 1.  Chemotherapy - what tips and tricks did you learn?

    Posted 23 days ago

    Hello all,

    I know we have Teal Sisters on this site who are at various stages of their journey's. I thought perhaps we could do a focused post to help those who may be about to start chemotherapy. Whether it's for front line treatment, second line etc., gathering insight from the collective wisdom of the Teal Warriors on this site is always helpful. If I think back to my front line treatment, I felt alone walking in a wilderness. It all felt overwhelming. I wasn't even sure what questions to ask. When I found OVdialogue, I learned so much from folks "like me" who had real life experience. It was very helpful in my journey and healing.

    As such, what tips would you share with others who are approaching chemotherapy? Thanks in advance everyone. 🩵

    #Treatmentandsideeffects 



    -------------------------------------------


  • 2.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 22 days ago
    Alwayslearning, this is a great topic.

     I also felt very alone and scared when chemo was beginning, as I didn't know what to expect. I focused on a couple of things that I believed helped me recover well after the infusions and they were: drinking lots of fluids throughout each day (water, apple juice, herbal teas, etc.) to flush the chemicals out quickly, and daily walking. Even though energy drops a few days after the infusions, I walked, even if it was a short one. Movement kept me feeling steady physically and quieted my mind. 
    Everyone has their own unique responses to chemo, so I learned certain things that I needed to do for my body. The meds caused constipation in me so I learned to take Restoralax or something like it for the first few days to keep everything working. 






  • 3.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 22 days ago

    @LeslieA thank you for sharing your thoughts and suggestions. Here are a few of mine (in nor particular order):

    1. Keep a journal - I kept one specifically of my side effects post chemo. I captured it for every day leading up to my next infusion. It was SOOOO helpful as it helped to normalize for me, some of the repeat side effects I experienced. By my third infusion, I could pretty much predict what was going to happen on day 1 post, day 2 post etc. It also helped me to recognize when something was different that perhaps, needed attention. As well, whenever I met with my oncologist I could clearly articulated how things went post the chemo. Very helpful when your brain isn't quite functioning clearly.
    2. Icing my hands/feet to alleviate neuropathy - There are mixed reviews of this topic however my oncologist said that there was no harm in doing it (she just wasn't on the side of thinking it actually helped). We took Ziploc bags with us and whoever was with me that day, filled it with ice at the cancer centre. I kept that on my feet and hands (I rotated) throughout my infusion time. I had neuropathy after my first infusion and it was pretty bad. They reduced my infusion dosage by 10% however I also started the icing. My neuropathy dissipated by my third infusion. I had no long term impact after my 6th infusion.
    3. Drink water - I agree 100% with @LeslieA that staying hydrated was very important. I kept a jug in my kitchen that we filled at the start of the day. I had to finish the jug by the end of the day. That way I could tell how much I was drinking and/or it was a reminder to drink more.
    4. Use ginger products - I will swear by Ginger Gravol and also Gin Gin candies. Whenever I felt nausea I used the Gravol and also the candies. Yes, a few times I used the more powerful anti nausea drugs however for the most part ginger products were my lifeline. I never threw up once throughout my infusions and for that I was thankful.

    Those are a few of my thoughts. I hope they are helpful.

    #Treatmentandsideeffects #Healthandwellness

    -------------------------------------------



  • 4.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago
    All great suggestions that I agree with:
    I will give my little additions headings like Always Learning (�� always organized...not like me)..
    The main title is "Giving Myself Love - in body, mind and spirit."
    Exercise: 
     I took advantage of a program through the University of Calgary called Excel Learning which is designed especially for cancer patients.  You can do it online via zoom which makes it really easy on you - if you're not feeling great, you don't have to get dressed and go somewhere - and even if you're feeling lazy...it's just so easy because its in your house, that you will tend to do it.  They also customize it to what level you feel at.  For my first occurrence I did it at the "active" level..but second occurrence when chemo was much harder on me..I sometimes did the sitting level.  But I always felt the better for doing something for my body.  It's important to try not to let your muscles atrophy too much, and it helps your system function and build up again.
    I also walked - being outside in the fresh air does wonders for a person.  Walk to the end of the block..walk around the block..if you feel up to it, around the lake (for me that 4.2 km)...make sure you hear the birds and say hi to the trees and look at how wonderfully they are formed and perhaps bending to say hello to you.
    Tell yourself:  I love you my body.

    Nutrition:
    I love food and like to eat well.  I never really ate what they brought around on the volunteer carts because it was a lot of cookies and sugar, but I learned to bring snacks or lunch.  As well, I brought a water bottle with whatever I decided to bring or had tea from the cart.  I never suffered from nausea, but usually had a great appetite for lunch or supper after chemo due to all the steroids!
    I used to do a lot of prepping and freezing of soups and dinners in the week before the next chemo.  One of my sisters would come down and basically they didn't have to do much except clean up after eating which I loved because I am normally messy and I loved having the clean kitchen lol.  
    After my first recurrence, I didn't do so well.  I was okay sitting, but when I tried to stand and do food prep and stuff I would get out of breath easily...(my hemoglobin etc. recovery wasn't so great)...so my sister did more cooking.
    My cooking is more complex than hers but it worked out fine.
    I like to incorporate more beans and legumes or if I have a salad..I have more vegetables.  I use vegetarian and vegan and Indian cookbooks, but I'm not vegan..so I often add meat as well.
    Fiber is helpful to me...but then you gotta watch if it's doing good by you or you need to back off as some people can attest to.
    Fasting: with respect to fasting - I have a friend who suggested that I fast 1 or 2 days before, the day of and a day after - so that the cancer doesn't have any food and is weakened and the chemo can really go to town - and supposedly recovery is better
    I tried fasting for One day..and on the day of chemo I caved and ate something because I felt so horrible already from not eating that long....So that wasn't a route for me.  I am a person whose body wants breakfast, lunch and supper...and I'll nosedive when I don't get fed.  
    I try now to reduce carbs a bit more  but I could never be that strict with myself.  and I eat supper by 5 to try and have a longer period of "no food". 

    Constipation:
     I never suffered from nausea, but did suffer from stomach pain sometimes, as well as constipation (almost all medications can cause me to have constipation).  
    I think Restorolax is a necessity for all chemo patients! even though a part of me hates taking in what I call plastic.  I also had senna tablets with stool softener.  I would take Restorolax, and if I didn't go the next day then I would take 2 laxatives...and so on and so forth.
    Another thing that is helpful is taking Magnesium powder at night with h20.  It acts as a stool softener as well.  Take your Restorolax earlier...
    I have had terrible experience this go round with constipation where I ended up in ER and had to drink the drink.  Restorlax, laxatives suppositorys..nothing had worked.  Then I backed off on the fiber and mostly had fluid with rice etc.
    but honestly = normally for me, the more beans, legumes and vegetables the better.

    Meditation:
    A friend of mine told me about the APP Insight Medition which is Free...so I utilized that a lot.  In fact, I still throw something on every night.  You can customize it to whatever you want to focus on.  They have some that are on healing, some for deep sleep, some for digestion, you name it.  Some with affirmations (gratitude, self love etc.).  Another one which I found VERY useful when going through chemotherapy is:






  • 5.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago

    @brendalee thank you so much for sharing. I love your main title!!! These are all great tips and insights.

    I have had bouts of constipation too and Senokot-S is my best friend. It's strange because Restorolax makes me nausea. Very odd but it's good that there are options available so if one doesn't work, try something else. Also you reminded me about the dosing that an oncologist nurse told me. If I don't go one day, take one tablet. If I don't go the next day, take 1.5 - 2 tablets. It would good advice and has served me well. I just keep track of my bowels now to ensure there's no pattern/stretch of time that I don't go. The most has been 3 days but it all cleared eventually.

    I also appreciate the Meditation suggestion. It's not something I'm good at but you've reminded me it's something to explore. My brain gets very restless still at night. 

    #Treatmentandsideeffects #Healthandwellness

    -------------------------------------------



  • 6.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago
    Constipation:
    It's funny because when I was younger, it was common that I didn't go every day, but didn't fell constipated for the most part (until I got older...another story)...but now, if I don't go every day I can feel uncomfortable - for example, today lol.  Which brings me to another tip which was already mentioned.  Make sure you're hydrated.  That was another bonus of having my sister here.  She constantly got after me to drink more.  As part of that tip, I would say BE SURE you drink a glass of water when you get up...and Before that cup of coffee no matter how much you think you need it.   It may seem strange to you, but coffee can complicate constipation and if you think about it you're often more dehydrated in the morning (especially if you get up in the night to pee which is common for most of us, I'm guessing)- and that's one of the things that doctors also recommend if your bowels are screwed up - no coffee.

    Meditation:  I am not a meditator normally..like I could never sit down and just meditate and have never gone to a meditation group..but I find listening to these at night often calming and useful. 





  • 7.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago

    Great suggestions brendalee,

       I did some reading about prepping for chemo and I came to the conclusion is that there is a lot of information out there, some based on cancer myths and unqualified opinions. When I asked my oncologist about ways to boost recovery after chemo via nutrition, she said, "Eat more greens." She was right, but… I took that to mean that she was not knowledgeable in that area, so I searched for people who specialized in nutrition for cancer people. An important point I learned from doctors was to stay away from supplements and vitamins during treatment and instead eat foods that provide magnesium, iron, minerals, protein, etc. A nutritionist suggested adding hemp hearts or chia seeds to breakfast cereals because they boost protein which we really need. I also add ground flax seeds to foods as flax is very beneficial. I also ate a lot of fish because my guy fishes and it was easy to do and very nutritious. 

     I also read about fasting before chemo, and like you, did not think this was a good direction for my body. Because of all the steroids I took pre-chemo, I was a hungry gal and decided to eat what my body wanted to eat, which was homemade soups, starchy foods like potatoes, pudding, cheese and crackers, vegetables and fruit. I ate several small meals a day. I had nausea one day only, simply because I was constipated and had to take medication. After that, I was determined to offset that issue with fluids, meals, movement and natural bowel aids; it never happened again. 

    And the relaxation/meditation aspect is also very valuable. I was really tuned up (upset and worried), preoccupied, fearful of the future, etc. and I used the Calm app most nights to settle my body down before sleep. I heard that the Insight app was also very good. It takes a lot of practice to learn how to stay in the present moment and I still struggle, but it is much better. 

    LeslieA 

    -------------------------------------------



  • 8.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago
    Make sure to hydrate the chia seeds with some water first - a few hours before.  Then add them to fatty liquids/solids like milk/coconut milk/yoghurt.
    I am on a few supplements now after chemo finished.
    we can go into that another time..





  • 9.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 20 days ago

    @brendalee good tip on the chia seeds!! #Healthandwellness

    -------------------------------------------



  • 10.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 20 days ago

    @LeslieA it is so interesting how what we each eat can be so different. I was told that protein was VERY important leading into surgery and during chemo. I've always been a high need protein person and this served me well. My hubby would good up peameal bacon and anytime I needed protein, I'd grab a slice. It save my bacon (🤣) often satisfying hunger & staving off nausea. I can imagine for some that might do the opposite. I also kept a banana & plain crackers by my side at all times possibly chemo. They were much needed!

    As for fasting, I asked about that and was told never to do that going into infusions. So it's interesting the different information out there. 

    Appreciate your continued insight's!!

    #Treatmentandsideeffects

    -------------------------------------------



  • 11.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 22 days ago
    My chemo treatment followed my debulking surgery. Every step of this journey starts with apprehension and fear of the unknown,  but the staff at the chemo centre were so gentle and supportive. My first treatment was attended by a nurse who explained each step to myself and my husband. As there were 2 parts, first meds into the pcc line and second into the abdominal port that was installed during surgery, it took a whole day to complete. I was fortunate that the preparation meds helped make me able to accept the chemo without any major reaction. I had to be in bed and found that my legs would get " twitchy" and uncomfortable,  but anti anxiety meds solved that. The room was very cool, so although warmed blankets were available, I took a favourite cozy blanket with me each time. Also I took lunch  although there were volunteers offering cookies  crackers and cheese and drinks. My husband couldn't stay with me after the first time due to the lack of space in the busy clinic, so a book and my phone were a plus.
    The final hour of treatment involved rolling from side to side to maximize the contact of the med with peritoneal walls.
    The day after, I found wasn't difficult. The next 3-4 days I was very tired and my lower legs especially ached bone deep. My hair thinned and fell out after 2 treatments, and my dose of one med was reduced when neuropathy started in the soles of my feet. Though I still have that, it did not increase after the dose reduction.
    I have just left behind my 2 years of olaparib. I already have less fatigue, although at almost 74, I'm not as lively as I once was. Tomorrow I meet with my oncologist to discuss my recent CT and what the future may hold.
    Every new step has its own worries. New meds seem to be arriving but very specific to certain forms of ovarian cancer. 
    My wish someone beginning the chemo step ? You will see that you are far from alone, between patients and staff. Soak up that courage and the thoughtful and professional care. Take faith in their knowledge and ability to respond to reactions.
    You will survive more than you ever thought you could. In the process you too will become a Teal Warrior !  ������‍♂️



    Sent from my Galaxy






  • 12.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago

    Thank you @lbarr72 for sharing and your insights. I love that you took a blanket with you. I never thought to do that but I've heard of others doing that. Anything that makes you comfortable is a great idea!

    Again congratulations on completing the Olaparib 2 year mark. A definite achievement. I wish for only positive news from your upcoming oncologist appointment and of course for your future health!!!

    #Treatmentandsideeffects #Supportandencouragement #Healthandwellness

    -------------------------------------------



  • 13.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 21 days ago
    @lbarr - your treatment sounds so different from most.  Was it the normal platin/taxol treatment?  Having a port in your abdominal wall and having it in bed and rolling are something I haven't heard before.  Where were you being treated and is it a standard procedure there?





  • 14.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 20 days ago

    I think all good points here.  Remembering to drink lots and flush out the drugs is important after every chemo.  Get out and walk, whether is around the block or 5 kms move your body. The vitamin sunshine is good for the soul.  Eat, you need to fuel your body to fight the beast.  Talk to friends.  Give yourself grace when you just need quiet time.  It's ok to take time to rest and do nothing, you are healing.  I also keep a notebook of everything I eat in a day and any symptoms I have. Bloodwork results etc.  Finding this group was also a huge help so I never feel alone and can ask questions or vent when I need to with no judgement.

    -------------------------------------------



  • 15.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 20 days ago

    @Meinvan excellent points. Also I couldn't agree more about finding this group. You've all helped me cope more than you might know. ❤️

    -------------------------------------------



  • 16.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 20 days ago
    My treatment was at the Cancer Clinic in London, ON.  The chemo was the routine carbo and plat. 
    When I was diagnosed at 3C HGSOC, I had peritoneal carcinomatosis along with 2 tumors. This meant that I had a " cloud" of cancer cells in the fluids of my abdomen. So the surgery removed all possible tumors abd affected tissues ( reproductive organs, omentum, appendix and a section of sigmoid rectal colon) and the chemo was to create an atmosphere that did not encourage cancer cell growth( was my understanding) . Due to the amount of cells, directing some of the chemo directly into the peritoneum would help "wash" " the inner area of this perfusion of cells. Rolling around made me feel like a washing machine !
    I was fortunate to not react adversely to the meds.
    As for the constipation comments, it was something I rarely had before cancer. The meds did cause it for me, and even now ( over 2.5 years later) it's a daily plan to keep things moving along !! Restoralax must love us, because it's a daily dose for me ! Getting my gut functioning again after surgery including the colon resection was a challenge. I make sure its working or I get uncomfortable. I sometimes have to add a couple of Senacot pills as well. For the most part all is OK now in that department. Guess it goes with the territory ladies !!





    Sent from my Galaxy






  • 17.  RE: Chemotherapy - what tips and tricks did you learn?

    Posted 16 days ago

    Hi all...I appreciate everyone taking the time to share their thoughts, insights and wisdom. I was also recently reminded about a video on 'Managing the side effects of treatment' via the OCC Speaker Series. See the link below. As a reminder, there are a lot of videos and other resources on the OCC site.

    Managing the side effects of treatment

    https://www.youtube.com/watch?v=4MtT6whuvRU

    #Treatmentandsideeffects

    -------------------------------------------



Log in or create an account to engage on OVdialogue.