English Community

Hi! Joined my first tea today and I've been reading the book that was shared. 2 things interesting to me 1) it talks about first line treatment being curative! I never hear cure/ovarian cancer together 2) it also says ca125 is not the preferred way of tracking for reoccurrence which is currently all my Dr is doing to track for reoccurrence. How is everyone else being tracked? Thanks Heather 

Good morning Imissed the Teal Tea today. I have been busy with my elderly Mom who was just released from hospital. 
'welcome to the group hgtv.

 I  am also being tracked using ca125 along with abdominal and chest CT scan every three months and follow-up with my oncologist 

Hi! Joined my first tea today and I've been reading the book that was shared. 2 things interesting to me 1) it talks about first line treatment being curative! I never hear cure/ovarian cancer together 2) it also says ca125 is not the preferred way of tracking for reoccurrence which is currently all my Dr is doing to track for reoccurrence. How is everyone else being tracked? Thanks Heather 

Good morning Imissed the Teal Tea today. I have been busy with my elderly Mom who was just released from hospital. 
'welcome to the group hgtv.

 I  am also being tracked using ca125 along with abdominal and chest CT scan every three months and follow-up with my oncologist 

Hi! Joined my first tea today and I've been reading the book that was shared. 2 things interesting to me 1) it talks about first line treatment being curative! I never hear cure/ovarian cancer together 2) it also says ca125 is not the preferred way of tracking for reoccurrence which is currently all my Dr is doing to track for reoccurrence. How is everyone else being tracked? Thanks Heather 

Hi@hgtv I am a patient at PMH in Toronto and because I'm on Lynparza I have my bloods done every 2 months including CA-125. My oncologist thinks there may be an over reliance on the CA-125 which is interesting. I think it's because it can be influenced by so many other factors including any inflammation in your body from unrelated cancer items. That being said, she focuses on my over bloodwork results in tandem with the CA-125 and importantly what I'm reporting in terms of increasing or changing abdominal pain, changes in bowel movement, overall how I'm feeling etc.

She has said that if my CA-125 were to double or triple from the last result then it would warrant further investigation. My CA-125 has held steady around 18 for 10 months however during that time I've had terrible abdominal pain which is what led her to do a CT scan. Results were all fine (last was April). That was my first CT scan in 6 months. Lynparza has crazy side effects so it could have been that. 

I know, oddly, that there is clearly inconsistency in how different docs/oncologists approach our monitoring. The best thing you can do is be a strong advocate for yourself. If you truly feel a CT scan would be helpful then voice your concerns & rationale to your doctor. At least establish with him/her an understanding of why they only track CA-125 and why you feel other tests may be warranted. 
Keep us posted!

Good morning Imissed the Teal Tea today. I have been busy with my elderly Mom who was just released from hospital. 
'welcome to the group hgtv.

 I  am also being tracked using ca125 along with abdominal and chest CT scan every three months and follow-up with my oncologist 

Hi! Joined my first tea today and I've been reading the book that was shared. 2 things interesting to me 1) it talks about first line treatment being curative! I never hear cure/ovarian cancer together 2) it also says ca125 is not the preferred way of tracking for reoccurrence which is currently all my Dr is doing to track for reoccurrence. How is everyone else being tracked? Thanks Heather 

Hi! Joined my first tea today and I've been reading the book that was shared. 2 things interesting to me 1) it talks about first line treatment being curative! I never hear cure/ovarian cancer together 2) it also says ca125 is not the preferred way of tracking for reoccurrence which is currently all my Dr is doing to track for reoccurrence. How is everyone else being tracked? Thanks Heather