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And concerned about possible secondary cancer? I’ve been on olaparib/lynparza for 8 yrs and concerned about chronic low blood cell counts due to damage in bone marrow from the med. This damage can lead to blood cell mutations. I have been reducing the dose of olaparib but concerned about oc returning. Anyone else in this predicament?

@brendalee I was told at the outset that it was 2 years. I'm treated at PMH. The 'however' is that I think that's the standard. Perhaps there is flexibility if it has been working for you and based on your bloodwork etc. My oncologist won't enter into discussions about that at this point. She said that's a discussion for when my 2 years is approaching (which will be August 2026).

#Treatmentandsideeffects

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Hi @Courtenay. Are you new to the forum? If yes welcome. You've found a save space for women to share, inspire and learn from each other.

I was amazed when I saw you have been on Olaparib for 8 years. If you wouldn't mind sharing, what province are you in? So many of us on Olaparib (Lynparza) have been told that 2 years is the maximum so it's always hopeful when we learn about someone who has been taking it for longer than that. What dosage did you start at and what are you on now?  I'm 16 months in at this point and I'm in Ontario. Also what has your oncology team said about the risk? I was told about it at the outset and read up on that prior to taking it. Since it's been 8 years for you I'm curious if they said something recently that raised your curiosity. 

 I'm on a Lynparza/Olaparib Support group on Facebook and there are quite a few women in the forum that have been on Olaparib for years. Some 11+ years or more. It's an international forum of woman so you have to dig a bit into their stories to understand their locations and what is support in their country.

Thanks for asking the question. I'm going to be very curious to read this thread.

#Treatmentandsideeffects

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