Original Message:
Sent: 07-05-2025 12:56
From: TiffanyM
Subject: Abraxane (aka nanoparticle albumin-bound paclitaxel)
@DiamondGoddessYYC I have definitely had conversations with OCC about this concern, so they are aware of it with their advocacy work.
I agree, it is not patient-focused care AT ALL. In the big picture, we just need the chemo drugs to get better, they have not changed much in decades.
Original Message:
Sent: 07-04-2025 18:41
From: DiamondGoddessYYC
Subject: Abraxane (aka nanoparticle albumin-bound paclitaxel)
I agree with you @TiffanyM! Most of the Teal Teas I've attended women say they all reacted to Paclitaxel.
Why the health care field doesn't just switch over to Abraxane/nab-paclitaxel as the standard protocol is a mystery to me - why would you allow SO many side effects to happen to women when it's unnecessary?? This is a failure for patient-focused care IMO. Health care field needs to listen to the patient experience and update protocols.
@Alwayslearning - do you know if the annual Oct conference will discuss this? Why the health care field is not updating protocols to give patients nab-Paclitaxel instead of making women suffer consequences of side effects?
Could we / OCC do a petition or something to send to every Cancer Centre across Canada to appeal to patient advocates / people in charge to update the protocols to help us women? I would sign it to show support. Thanks for looking into this
Original Message:
Sent: 06-26-2025 16:57
From: TiffanyM
Subject: Abraxane (aka nanoparticle albumin-bound paclitaxel)
Hi Wendy and friends,
I had a similar experience as you and others with Paclitaxel, and was switched to Abraxane (with a lot of fighting for it) for the remainder of my treatments. As Lisa mentioned, it was a shorter infusion, but again, I had the same side effects as the standard Paclitaxel.
I feel strongly that we need to advocate for the use of Abraxane for folks. There are way TOO MANY stories of people having severe reactions, it needs to stop. It is so traumatic and scary, we shouldn't be put through more stress than we are already experiencing.
With kindness,
Tiffany
Original Message:
Sent: 05-25-2025 10:05
From: WEMK
Subject: Abraxane (aka nanoparticle albumin-bound paclitaxel)
Good morning Teal Sisters,
I see that word is getting out about Abraxane, an alternative for those who have experienced a severe reaction to Paclitaxel. After my initial cancer diagnosis mid-2021 I was prescribed 6 cycles of Paclitaxel and Carboplatin. During my first infusion I had an immediate negative reaction - stage 3 anaphylaxis. Paclitaxel was stopped and for subsequent chemo cycles I was admitted to hospital for at least one, if not two, overnights for a very slow infusion over 12 hours. Thankfully there were no further negative experiences, but I worry about the potential damage caused by the extended time period that the drug was being administered.
More recently my Oncologist removed a 10 cm mass on left ovary. With pathology indicating cancer recurrence, he has recommended me for a further 6 cycles of chemo. Due to my severe reaction 4 years ago I am "eligible" for Abraxane in place of Paclitaxel. My first cycle is Wednesday, May 28th. My fingers are crossed that all goes well, as the infusion period is 30 minutes and can be administered as a day patient.
I have also dusted off the two Ovarian Cancer Canada guides - By Your Side and Still By Your Side.
I am very grateful for everyone in the medical and research community, as well as my supporters near and far. Together we are making things better for all women who are diagnosed with this disease.
Be strong!
- Wendy