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Treatment Options and Princess Margaret Clinical Trials

DeniseBR
DeniseBR
in New Here? Read this First

I previously had two rounds of Carboplatin and Paclitaxel (6 cycles each) which were quite effective, but unfortunately the disease came back the first time after 6 months and the second time after only 3 months.

I am now undergoing the combination treatment of Caelyx and Avastin but am not sure this is proving to be effective and am scared about the uncertainty of my current situation.

Could anyone advise on possible next in line treatment options if Caelyx/Avastin doesn't work?

I am located in the GTA and understand clinical trials are offered at Princess Margaret. Does anyone have any recent experience there that they can share with me?

Thank you so much ..

Comments

  • Alwayslearning
    Alwayslearning

    hi @DeniseBR . Have you had an opportunity to express your concerns to your medical team? I’m hopeful they would listen and be able to help you understand what if anything, a clinical trial would mean if your specific situation.
    I believe there are a number of Teal Sisters on this site who have, are or know a fair amount about clinical trials. If you haven’t already if you search this site using the words “clinical trials” it should pull up some conversation threads.

    I’m sorry I’m not more helpful personally.

  • DeniseBR
    DeniseBR

    Thank you @Alwayslearning .. yes, I am having continuing discussion with my oncology team but wanted to be as informed as possible in those discussions. I am at Credit Valley Hospital in Mississauga and they don't seem to have any insight into what clinical trials are being conducted at Princess Margaret.

    Thanks also for the advice about Teal Sisters, which has been very helpful.

    Much appreciated ..

  • Alwayslearning
    Alwayslearning

    Hi @DeniseBR I'm attaching a link to the Clinical Trials section in the OV Cancer Canada's home page. Perhaps there is some information in here that could help? I'm sorry your medical team aren't as up to date as perhaps they could be. I'm sure that's frustrating. One thing I've learned from the OV Dialogue forum is that we have to be strong advocates for ourselves. It's sad however it's true. I hope this helps. Also if any Teal Sisters can weigh in on information regarding Clinical Trials, please drop a note for DeniseBR.

    https://ovariancanada.org/get-involved-in-research/clinical-trials-studies

  • flory
    flory

    hi @DeniseBR i am also at credit valley and want to switch my care to PMH. So far my request was met with some resistance. I’m not sure how to proceed. Feel free to private message me about your experience at CV.

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