Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?

OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.

Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!

Private genetic testing for ovarian and breast cancer

Grace
Grace
in New Here? Read this First

Hello everyone I am new here, lots of ovarian and breast cancer in my family, my Mom and her sister my aunt recently diagnosed with ovarian cancer, I have had genetic testing done at a clinic in Toronto, negative for BRCA 1 and 2, but I know there are other mutations that can cause these cancers, and am willing to pay privately for a more thorough genetic panel. Does anyone here know of any private company that can do more thorough, and most up to date testing for ovarian and breast cancer? Don't mind paying

Thank you and be well

Grace

Comments

  • mcb
    mcb

    Hi Grace,

    I dont know how to get tested privately but I would guess out of country, USA or Mexico.
    In my experience, the BRCA genetic test is part of a panel of more than a dozen possible genetic factors. Maybe that is only done for patients with OC and not family. Did you see your actual report or did your Dr tell you the results? Maybe they only communicated the BRCA results because that’s what most people have heard about.
    The other question you have to ask is if you got testing privately what would change about your medical treatment? Would you be followed more closely and how? (Yearly ultrasound, cancer marker etc) IMO, with your history you should be followed anyway. What preventative measures would be offered? Can you have your fallopian tubes removed when it fits your family planning?
    Keep advocating for yourself!

  • Grace
    Grace

    Thank you mcb for your post, helpful info and questions to consider. I contacted the genetic clinic in toronto where I am a patient and will be getting more genetic testing done privately through them with a company called Invitae based in the US. I appreciate your encouragement to advocate for myself

    Thanks again and be well

Categories