OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
New study recruiting participants on variations in care for hereditary cancer syndrome families
The information below is to inform you of a current research study being conducted out of St. Michael's Unity Health Toronto with researcher Dr. Yvonne Bombard. Ovarian Cancer Canada is committed to driving research forward, and therefore shares relevant opportunities with those affected by ovarian cancer, where appropriate.
Variations in care for hereditary cancer syndrome families: direct and indirect socio-economic impacts
The purpose of this study is to assess the indirect impacts of hereditary cancer care to the patient across different provinces with varying care systems, populations, and genomic testing technologies. Researchers will be using a survey to understand the indirect burdens of living with a hereditary cancer, and are looking for adults (18+) with a diagnosis of a hereditary cancer syndrome who receive care in Canada to take a 30 minute anonymous survey.
To learn more and/or participate go to: Hereditary Cancer Syndrome Indirect Impact Study