Hi @taylormade. I'm sorry to hear of your recurrence. This cancer can be so brutal liking to hide and reveal it's ugliness in so many forms. I do not have any experience with Caelyx in fact I had to look it up as I had not heard of it before. As for side effects, I remember the long list from both Carb/Pax and I only experienced a few and like you I never vomited during or post any of my infusions (nausea yes but I managed that). Try not to let the list of side effects get into your head. I know they have lots of drugs and ways to counter some of these things. Perhaps you'll have one or some of the side effects but hopefully few and far between. You beat this 8 years ago and so I'm hoping you will have similar success this time around. You sound like a very strong woman!!!!
I'm guessing your treatments will be at PMH? The team there are amazing. They have so many 'on the ground' and 'in the moment' ideas. They did wonders helping me during my 6 infusions and I reacted a number of times to the medications. I'm hoping you will have a similar experience and can only wish you the best as you enter treatment. Hopefully your oncologist can also help with a plan to mitigate any side effects. Also there may be some Teal Sisters in this forum who have had Caelyx and can lend advise from their experience.
Please keep us posted. I know we will be thinking of you.
Original Message:
Sent: 03-16-2025 07:40
From: taylormade
Subject: 8 years later it's back
I'm a 72 yr old from Ontario 8 yrs ago I had an emergency surgery in Atlanta as a baseball size tumour on my ovary ruptured while horseback riding. Out of the bush and 3 hospitals later I had robotic surgery to remove all but my vagina. Back home 6 rounds of chemo st Southlake and I was clear. Until it reared its head. An incidental finding reveals a 2" mass in my psoas muscle touching the bone so not operable. Pathology says metastatic carcinoma but they can't agree on the type even at PMH.This started on Nov and now I begin my chemo in a week. Carb/ and pac combo plus maybe the red devil Caelyx. I'm reading horrid side effects like vomitting and runs. Has anyone had all 3? I never vomitted first time I took chemo. Weight loss great but not this way. Have still to meet oncologist before starting. Any suggestions welcome. Does anyone have similar recurrence? I'm ready to hear my best before date. Any guesstimates welcome.