I was inoperable and am platinum resistant. I have none of the gene defects that would be approved for a parp inhibitor. I was told the disease would likely end my life within months (which I totally reject as my prognosis). Now I'm on the weekly Taxol and starting Avastin next week every 2 weeks added to the Taxol. I am feeling better - less bulky and not as uncomfortable. I am wondering if some of you have made it through YEARS on this protocol? I don't want to ask any doctors anything about my timeline anymore. I would rather hear from survivors to give me some hope. Thanks.
What I can tell you is that your doctors will do everything available to extend your life. If your doctor didn't think the treatment protocol they are suggesting has that possibility they wouldn't recommend it. And always remember that when they give you estimates of time it's always using median data, meaning the timeline is an average of the shortest and longest that has ocurred. I was given 4 months to a year and here I am in my sixth year of treatment; this most recent with Caelyx and Avastin since November. I have two friends for whom the Avastin stopped working; one after 6 months with it and the other after year + on it. Both are feeling fine, look great and both cancers, while progressing again are progressing very slowly allowing some time to rest from chemo and explore other treatment options. But I have to admit that I have friends for whom the Avastin had no effect or it's efficacy became challenged very quickly. But Avastin may well not be the end of possibilities. There could be other treatments to try if or when Avastin or your current treatment fails. I"ve been very lucky as have a number of the gals in our community to have something else to try or qualify for one of many clinical trials out there these days.
My best advice is just to try to live each day to the fullest you can. I know it's hard, but imagine how much you're losing on it with a focus on the negative constantly. That emotional state can hold you back from experiencing so much that you are still able to experience. If you're struggling with your perspective I can sure suggest getting help from one of the soclal workers at your cancer centre. I know I did three years ago and my buddy...as I call her...has been enormously helpful keeping me balanced, especially through the really bad times. And, of course, continue to use our community here, join us in one of Teal Thursdays where we do a weekly live online chat, or Zoom in to one the Teal Teas. Unburdening yourself of some of your fears to a group who "get it" can be enormously helpful too.
Wish you were here so I could give you a huge hug. I feel you need that right now. So I'm sending a virtual hug to you right now.