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Hi. I was diagnosed in December 2020 with stage 3C HGSOC. Had chemo and surgery. Was on zejula for 11 months. I’ve been on some type of treatment since June of 2022. Tmr I am to start Topotecan. There doesn’t seem to be much info on this drug. My onc says this is the only thing left for me. I’m so discouraged and scared. Less than a month ago I found a lump in my breast. The biopsy came back as OC.

Hello Jayne!
I never had to be on a maintenance drug personally, so I have no comment about Topotecan. Hopefully someone else has something to offer?
Where is it that you live?
I'm in Calgary.
What is the care plan with the lump?

I live in Ontario, Canada. Since the lump is ovarian cancer we are just going to proceed with the Topotecan treatment.

perhaps the resources listed on CCS page could help? Cancer.ca

I can’t seem to paste the link? But they say check Drug product database on Government of Canada site

Hello @DiamondGoddessYYC I'm glad you found this group. It has been immensely helpful. Welcome to the group nobody wants to be a part of. From your bio I see you have clear cell. So do I same stage. I was diagnosed in June 2023, had surgery July 2023, had the 6 rounds of carbo/taxol, like you I reacted to the paclitaxel pretty bad, but got through each round with the help of reactine.

Chemo was completed by mid November 2023 and I've been on surveillance ever since with CT scans every 3 to 4 months and blood work as well. I think it's worthwhile to mention that I had my tumor tested back after surgery and I have a targetable mutation PIK3CA. Have you had your tumor tested?

Fingers crossed for your upcoming scan. Hopefully your pains are just pains. I've been taking Lyrica for nerve pain the past 6 months but not for my feet/hands but rather for the side of my abdomen. I had a gigantic bruise after surgery and I'm pretty sure the nerve pain is from that. I'm in montreal not Calgary.. sucks for me

Hi @melissa!

I typed out a response and now I don’t see it?!
if you ever come West, would be fun to meet up!

I did have my tumor tested, but nothing remarkable noted