Hi, My name is Sandra. I was diagnosed with HGS OC in May 2021., after a surgery done by my gynaecologist. I have had ovarian cyst for three years and I didn’t have any symptoms. I also had endometriosis, that caused extensive periods. I was 47 years old then. I didn’t let her remove uterus and right ovary, but I agreed with removal of affected ovary and both Fallopian tubes, since she said that ovarian cancers usually start in Fallopian tubes, and combination of endometriosis and the cyst is not good at my age. Could result in cancer. I agreed, so she removed Fallopian tubes and left ovary with the cyst. After the surgery she said everything looked ok, but pathologist report came HGS OC 2 mm in size in my left Fallopian tube. It hit me hard. I don’t have anyone in my family or friends circle with any cancer experience. In June I had another surgery done by oncologist surgeon, to remove remaining ovary and uterus with debulking. Pathologist report came negative. I started with chemo (6 rounds IV and IP plaxitaccel and IP carboplatin). I am finishing with round 4 these days.
I read a lot of recurrence stories here. Are there any good stories with this type of OC? Oncologist told me I was lucky, but didn’t want to tell me what that meant. Anyone here with any experience with such early stage? I would appreciate it.