The post below was made by my wife about 5 days after she got a tentative diagnosis of ovarian cancer back in January. On February 11 in the wee hours of the morning, she woke me saying she was having trouble getting her breath…trouble breathing. I rushed to her side of the bed to realize that she wasn’t struggling to breathe but was breathing very slowly and very shallowly. I grabbed the phone and dialed 911. Even tho the ambulance was at the station near us and they got to us within 10 minutes…she slumped in my arms on our bed and drew what was to be her last breath. The EMTs worked nearly an hour to bring her back but she couldn’t breath on her own nor would her heart beat without the compressions. I stood over the three men holding an extra light for them as they incubated her and tried to bring her back to me. Those minutes are etched in my mind. She’d only felt ill for about 7 was and had only had the results of a CT scan less than 3 was earlier. They deemed she died of a pulmonary embolism. I knew I could eventually lose her to ovarian cancer but I never dreamed that she was at death’s door…I don’t believe she did either. The last 4+ months have been a nightmare. To complicate our saga, I was diagnosed last July with colon cancer and after very successful surgery in August I began a chemo regimen of CAPOX September 29th only to collapse 10 days into the treatment because of not having the DPD enzyme needed to metabolize the capecitebine. I spent October in hospital after being resuscitated twice, returning home frail and using a walker. She’d nursed me for weeks and the day she told me she didn’t feel right was the day I’d put away the walker. I nursed us both for that next 7 wks. I know now that I survived to care for the love of my life her last 7 wks. We had almost 15 years together and had so many plans yet. I just wanted to post here so that those who reached out to her last January would no what became of her. She found comfort in your words of encouragement. Thank you for that. Hug your loved ones close tonight for Pat and I.Pat’s widow…Lindapheteach20 said:
Hi. My name is Pat and I am 70 years old. I have been active and healthy my entire life. On December 26, 2020 I started feeling unwell. I lost my appetite, felt bloated, dry heaves, night sweats and some diarrhea. I went to get a COVID test on January 2 which came back negative on January 4. I phoned my family doctor to explain my symptoms and she said to assume I had COVID and had gotten a false negative test which she had experienced with other patients. I continued to feel very unwell and went for another COVID test on January 13 which also came back negative. On January 17 I called 911 to have the ambulance take me to the ER. After blood work, X-rays and CT scans the ER doctor came to tell me the diagnosis. Based on the abdominal/pelvis CT there is a large (13.7 x 10.6 x 9 cm) multiloculated complex cystic mass in the pelvis highly suspicious for malignancy. Probably of ovarian origin. There is diffuse complex free fluid throughout the peritoneal space and omentum suggesting malignant ascites and peritoneal/omental metastasis. This was a lot to take in and digest. The ER doctor did a CA-125 test and the number that came back on that is 273. The ER doctor said they would be referring me to our regional cancer centre. I was sent home. The next day I contacted my family doctor to get her in the loop and make sure I was indeed referred. She contacted the regional cancer centre and was told they needed a definitive diagnosis from a biopsy or fluid draw before I could get an appointment with them. She has put in an urgent request for both of those and forwarded the CA-125 results. It has been 4 weeks since this all began and it is very frustrating to be sitting anxiously awaiting to get these tests done. I feel like I’m a ticking time bomb. I am having difficulty eating but trying to get as much in as possible. I should also mention that my partner is already a patient with the regional cancer centre having had colon cancer surgery this past August. That surgery was very successful but the follow up chemotherapy was a disaster resulting in a 3 week hospital stay in October. Fortunately things have righted themselves. It was very scary. I am thankful to have found this group and be able to learn of other’s experiences and share mine.
I am currently waiting to hear if a bed is available at London’s Victoria Hospital for a desensitizing introduction of Taxol over 23 hours, along with my second Carboplatin treatment. Alas a bed wasn’t available yesterday. So I’m a little anxious with the uncertainty but have a strong desire to keep moving with my treatment.
I have not asked Dr. Prefontaine about specifics of my cancer (CA 125 levels, grade or stage) because I’m not sure what this information would do for me other than create something else to worry and obsess about. I would be very interested in learning from others what are the advantages and benefits of having this information. Any input and recommendations would be greatly appreciated!
After a very difficult period between last fall and May this year when my GP provided very limited medical support for my health concerns, my ‘case’ was finally picked up by an extremely caring Doctor Merotto in Stratford. He took action quickly, scheduling CT scans, ultrasounds and blood work. When he made a commitment to me, he kept it. His communications and feedback were timely and thorough. I am grateful for his professionalism. I am also extremely thankful for the medical professionals and staff whom I have met in London and Stratford. I have the utmost respect and trust in them. They are the experts.
Thank you for listening.
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